Epilepsy Talk

Celebrities Supporting Epilepsy | October 3, 2011


There are some people who don’t turn a deaf ear to what everyone else doesn’t want to hear. The phobic fear of epilepsy.

For example, Greg Grunberg is a true “Hero.” Not just as a TV star but also as the spokesperson for the Epilepsy Foundation of America. He is joined in his support by:

Courteney Cox – who achieved fame for her role as Monica Geller on the NBC sitcom “Friends”.

Leonardo DiCaprio — internationally famous for his performance in “Titanic”, “Gangs of New York”, and “The Aviator”, to name a few.

Jennifer Garner — famous for her T.V. role as CIA agent Sydney Bristow in the thriller “Alias”, which aired for five seasons

Chanda Gunn — USA Olympic Women’s Ice Hockey goaltender, and bronze medal winner of the 2006 Winter Olympics. She is also the proud spokesperson for the Epilepsy Therapy Project and Epilepsy.com.

Larry King — recognized in the United States as one of the premier broadcast interviewers, winning an Emmy, two Peabody Awards, and ten Cable ACE Awards.

Sarah Jessica Parker — the unforgettable Carrie Bradshaw from “Sex in the City” which aired for 94 episodes!

Geoff Pope — an American football cornerback who earned a Super Bowl ring with the Giants in Super Bowl XLII.

Don Rickles — American stand-up comedian and actor — one of the most respected talents in entertainment.

Charlie Sheen — noted movie and television actor, recently donated 10K for epilepsy

Jason Snelling — American football running back for the Atlanta Falcons of the National Football League.

Sylvester Stallone — Rocky! A film which became a cinematic legend, scoring ten Oscar nominations, winning Best Picture Award of 1976.

Donald Trump famous American business magnate, chairman and president of The Trump Organization.

Neil Young – Canadian singer-songwriter who is widely regarded as one of the most influential musicians of his generation.

And, on the other side of the pond there’s:

007’s Daniel Craig. (The only blonde to play Bond!) He Supports Epilepsy Action in England.  Along with:

Dame Judi Dench CH, DBE, FRSA — honored and famous for her contributions to British film and stage.

Hugh Laurie – the most watched leading man on television in his role as “House M.D”

Sir Roger Moore — debonair as Simon Templar in “The Saint” and James Bond in “Live and Let Die”.

Jonathan Pryce, CBE — versatile and accomplished Welsh stage and film actor and singer.

Claudia Schiffer — one of the world’s most successful models, having appeared on over 500 magazine covers.

Emma Thompson — winner of Hollywood’s Oscar twice, and three time BAFTA award winner for her witty stage and screen performances. ..

Can you name some others?

Resources:

http://www.looktothestars.org/search?utf8=%E2%9C%93&query=epilepsy&s=Search

http://www.looktothestars.org/charity/398-pediatric-epilepsy-project

http://promise.talkaboutit.org/news/

http://en.wikipedia.org/wiki/Judi_Dench

http://en.wikipedia.org/wiki/Hugh_Laurie

http://www.klast.net/bond/rm_bio.html

http://www.fandango.com/jonathanpryce/filmography/p57980

http://en.wikipedia.org/wiki/Claudia_Schiffer

http://www.imdb.com/name/nm0000668/bio

http://en.wikipedia.org/wiki/Courteney_Cox

http://en.wikipedia.org/wiki/Leonardo_DiCaprio

http://en.wikipedia.org/wiki/Jennifer_Garner

http://my.epilepsy.com/EPILEPSY/chanda_gunn?print=true

http://en.wikipedia.org/wiki/Larry_King

http://www.imdb.com/name/nm0000572/

http://en.wikipedia.org/wiki/Geoff_Pope_(American_football)

http://en.wikipedia.org/wiki/Jason_Snelling

http://www.imdb.com/name/nm0000230/bio

http://www.imdb.com/name/nm0725543/

http://en.wikipedia.org/wiki/Donald_Trump

http://en.wikipedia.org/wiki/Neil_Young


19 Comments »

  1. Wouldn’t it be Wonderful if All or even Most of these celebrities Met on National TV & Shared their experiences? Their Trials & Tribulations And their Successes! The only one I have heard ‘Speak Up’ is Chandra Gunn & that was YRS ago. Nothing Since. Am I missing something, somewhere? I must be. Seeing as How you named sooo many that I had no clue about. Good Work Lady. :) As Always. Note: I posted it in Epland. :)

    Comment by candi — October 5, 2011 @ 1:35 PM

    • Thank you. I didn’t have a clue about them either, until I did some research!

      Comment by Johnson — October 5, 2011 @ 6:14 PM

  2. He retired earlier this year from the NFL’s New York Jets, but former Pittsburgh Steeler Alan Fanaca. I remember his daughter has epilepsy so he worked with our local foundation for their annual summer walk.

    I agree Candi it would be nice if these celebrities held an event together to make it that “we don’t talk about this”. Too many people still have false perceptions about epilepsy. I actually emailed NBC recently after a visitor on Jay Leno (she was a comedian, I don’t even remember her name), made some very ignorant comments during her interview. I was very blunt that they should not have aired that, but I received no reply.

    Comment by Katrina (@PghKatrina) — October 5, 2011 @ 2:31 PM

  3. That would be fantastic to see them in a big national show talking about what they went through or how they feel. Or on VERY popular show’s like one of the awards (oscar or emmy’s), or the celebrity apprentice one plays for a donation to the National Epilepsy Foundation. Or a couple of them get on live with Regis and Kelly and talk about it.
    On the website Patients like me, they showed one guy that is just like me with epilepsy. He’s either Chuck Norris, or his identical twin. So I wonder if that celebrity might have it.

    Comment by Shawn Wittman — October 5, 2011 @ 10:44 PM

  4. A lot of these people, don’t have epilepsy, they just support it.

    Unfortunately, not too many who are alive “fess” up to having it… :-(

    Comment by Phylis Feiner Johnson — October 6, 2011 @ 3:47 PM

    • It doesn’t matter if they don’t have it. Obviously, for them to Support us, Someone in their Lives Did have Epilepsy. Or did they just pick a Disorder to support? I know, :) “Not unheard of” but I just can’t picture that. :) And if they support a cause/disorder, wouldn’t they have done some ‘homework’ First. or maybe? I know they have ‘Advisers’ sometimes, who Tell them who or what they should Support as Tax Write-offs,
      but, Still……

      I agree! Those who are alive or know others’ who have/had EP are ‘Still In The Shadows’ . Just like the General Population. But, at least the Internet is helping us get the word out. :) For Now! :)

      Comment by candi — October 7, 2011 @ 10:39 AM

      • A LOT of famous people through history have had epilepsy. I know one famous actor that supports right now and knows all about it. That’s Harrison Ford. That’s because a few very close loved ones in his family have Epilepsy. Remember the classic old show Abbott and Costello. Bud Abbott had Epilepsy. Also the one that started the Nobel Peace prize, Alfred Nobel. Also Sir Isac Newton, and Neil Young, Napolean Bonaparte, Agetha Christie, Charles Dickens, Alexander the Great, actor Danny Glover, Michelangelo, Leonardo Da Vinci,President Theodore Roosevelt, Richard Burton, and actor Hugo Weaving

        Comment by Shawn Wittman — October 7, 2011 @ 10:26 PM

  5. Most of these celebrities do support many other causes as well. But some of them genuinely have relatives with epilepsy.

    An ironic aside…

    I was at the doc’s (not neuro) and gave him one of my epilepsy awareness pens. He told me his daughter had a seizure disorder. At which point, his nurse chimes in: “I didn’t know she had a seizure disorder Joe. My nephew has epilepsy.”

    And they had been working together for years!!!

    Comment by Johnson — October 7, 2011 @ 4:09 PM

    • Point made, Phylis. :) Too many PPL are staying quiet about EP or seizure disorders. But, I figure in DR/Nurse situation: Doc doesn’t discuss personal Life w/ Employees. As it should be. Never take your work Home & don’t take your personal Life/worries to work.

      Comment by candi — October 8, 2011 @ 12:01 AM

  6. I know of another, and I heard him talk about it on TV not too long ago. It’s Harison Ford, he talks about it because it runs in his family. He didn’t say which family member, or members have it. But some have it, maybe he’s the one.

    Comment by Shawn33 — October 16, 2011 @ 10:39 PM

  7. He’s just fabulous. Take a look at

    YEEEEE HAAAAA! Harrison Ford and the cast and crew of “Morning Glory” talk about epilepsy!

    http://epilepsytalk.com/2010/12/10/yeeeee-haaaaa-harrison-ford-and-the-cast-of-crew-of-%e2%80%9cmorning-glory%e2%80%9d-talk-about-epilepsy/

    Comment by Phylis Feiner Johnson — October 17, 2011 @ 2:03 PM

  8. Yes, the silence is deafening! This code of silence that fuels the stigmas surrounding not only epilepsy but also many mental illness, auism and other neurological conditions. The only way to end these stigmas about these conditions is to talk about them–and not in hushed tones, either! As a child, I was diagnosed with epilepsy; I thank God that I have not had any seizures since about 15 years ago. All my life, I grew up with a contellation of behavioral, social and learning problems that I believe are undiagnosed high-functioning autism (not Asperger’s as I did NOT have early language development). I want to be part of breaking this code of silence that just keeps the stigma going.

    Comment by Lisa DeSherlia — October 22, 2011 @ 9:19 PM

  9. YOU GO GIRL! Thought you might like reading the articles below:

    YEEEEE HAAAAA! Harrison Ford and the cast and crew of “Morning Glory” talk about epilepsy!

    http://epilepsytalk.com/2010/12/10/yeeeee-haaaaa-harrison-ford-and-the-cast-of-crew-of-%e2%80%9cmorning-glory%e2%80%9d-talk-about-epilepsy/

    Epilepsy Hall of Fame

    http://epilepsytalk.com/2009/09/13/epilepsy-hall-of-fame/

    The Isolation of Epilepsy

    http://epilepsytalk.com/2010/07/09/the-isolation-of-epilepsy/

    Confessions of 40 years with epilepsy…

    http://epilepsytalk.com/2010/04/24/confessions-of-40-years-with-epilepsy/

    Comment by Phylis Feiner Johnson — October 22, 2011 @ 10:12 PM

  10. Connor Doran of America’s Got Talent – Indoor Kite Flier is still speaking up! We have been traveling around North America doing shows, performances, and presenting the Dare to Dream Program to raise Epilepsy Awareness! For more information see his website and his facebook page.
    Facebook : https://www.facebook.com/connor.doran.566

    Website: http://connordoran.com/
    Yes, I am a bit proud… because he is my son.. and I have been traveling with him. We aren’t famous celebrities but because he spoke openly about his Epilepsy on America’s Got Talent it has brought a lot of people to talking about it more openly..

    Dare to Dream…
    Amy Doran

    Comment by Amy Doran — June 8, 2012 @ 2:37 PM

  11. Connor Doran of America’s Got Talent – Indoor Kite Flier is still speaking up! We have been traveling around North America doing shows, performances, and presenting the Dare to Dream Program to raise Epilepsy Awareness! For more information see his website and his facebook page.
    Facebook : https://www.facebook.com/connor.doran.566

    Website: http://connordoran.com/
    Yes, I am a bit proud… because he is my son.. and I have been traveling with him. We aren’t famous celebraties but because he spoke openly about his Epilepsy on America’s Got Talent it has brought a lot of people to talking about it more openly..

    Dare to Dream…
    Amy Doran

    Comment by connordorankiteflier — June 8, 2012 @ 2:38 PM

  12. Hats off to him! Now if we just had a few million of people like him…

    Tell him he’s truly “one in a million!”

    Comment by Phylis Feiner Johnson — June 8, 2012 @ 3:04 PM

  13. Thank you to All of you who have come forward about this. It IS very difficult to talk about (my daughter has epilepsy). If we can find more people that can come forward about the fact that they either have it or someone they know or love has it it opens up so many doors. Just knowing that there are more people out there that have had experiences with it makes it just a little bit easier, not only for me but for my daughter. No one wants to be alone.

    Comment by Jane — June 19, 2012 @ 6:24 PM

  14. Hi Jane,

    Your daughter might enjoy this article as well:

    Epilepsy Hall of Fame

    http://epilepsytalk.com/2009/09/13/epilepsy-hall-of-fame/

    Comment by Phylis Feiner Johnson — June 20, 2012 @ 10:09 AM


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

    Categories

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive notifications of new posts by email.

    Join 1,043 other followers

    Follow Epilepsy Talk on WordPress.com
Follow

Get every new post delivered to your Inbox.

Join 1,043 other followers

%d bloggers like this: