Epilepsy Talk

25 Best Epilepsy Books for People of All Ages | April 30, 2011


When I decided to begin an epilepsy library for reference, I was absolutely overwhelmed by the millions of books out there.

So, I went to Amazon, rolled the dice and ended up spending needless money on a lot of duds.

Don’t get me wrong, some were of value, but most were a waste of time.

So, to save you from my disappointing experience, I’ve combed the web, epilepsy foundations, blogs and wherever else I could think of to find books that would actually inform, explain and even sometimes, entertain.

I hope you’ll find something of use on this list, which is truly a labor of love…

EPILEPSY BOOKS FOR CHILDREN

My Mommy Has Epilepsy

By Stacey Chillemi

As a mother of three and a woman with epilepsy, Chillemi is realistic about her limitations, “Having epilepsy and being a mom is difficult at times because I worry that if I have a seizure and I am unable to recover fast enough, that my kids will suffer,” said Chillemi. In fact, the entire time Chillemi has been a mother she has had only one tonic-clonic seizure resulting in serious injury. According to Chillemi, she was walking the dog with her children when she felt a seizure coming on. She immediately instructed the children to go inside and wait downstairs for her. Following the seizure, Chillemi realized she had suffered a head injury and reached out to a neighbor for help. After the tonic-clonic seizure Chillemi decided to write a children’s book, called “My Mommy Has Epilepsy”.

Her goal was to help children understand epilepsy in an age appropriate way as well as to help dispel some of the fear she had witnessed her own children experience. “I don’t want my children to get nervous or to worry about my seizures and the tonic-clonic seizure really motivated me to write a children’s book to help them and other kids cope and understand epilepsy.”

Chillemi cautions women with epilepsy to monitor their stress level. “Don’t try to accomplish too much. Do as much as you can and remember to set realistic goals and to reward yourself each day.” She also believes that in order to live with epilepsy and maintain a positive attitude it is important to focus on one’s self.

She advises women with epilepsy to educate themselves about their epilepsy and believes knowledge helps alleviate stress as well.

$11.95 at http://www.amazon.com/

Mommy, I Feel Funny! A Child’s Experience with Epilepsy

Danielle M. Rocheford (Author), Chris Herrick (Illustrator)

Based on a true story, this book introduces the reader to Nel, a little girl who is diagnosed with epilepsy. The story takes you through the days following Nel’s first seizure. Suddenly, Nel and her family are faced with thoughts, fears and emotions that come with the discovery, understanding and acceptance of epilepsy.

Through simple but thorough explanations, we learn what Nel experiences when she has a seizure, visits her doctor and has testing done. Every child with epilepsy and parent of a child with epilepsy should hear this story.

$12.95 at http://www.amazon.com/

Dottie the Dalmatian has Epilepsy – ages 2-6

By Tim Peters & Company

A delightful illustrated story for young children. Dotty the Dalmatian discovers she has epilepsy. At first she feels embarrassed and afraid, but she learns to accept and control her seizures and goes back to her important job of helping the firefighters save lives. A large colorful poster accompanies the book.

$4.70 Used at  http://www.amazon.com/

Lee the Rabbit with Epilepsy – ages 3-6

By Deborah M. Moss (Author), Carol Schwartz (Illustrator)

Read your child this delightful story about the young rabbit with epilepsy. It tells how Lee and her family cope with the challenges of epilepsy, beginning with Lee’s first seizure and initial visit to the doctor, through her diagnosis and treatment. Use it to explain epilepsy to your child with epilepsy, as well as to brothers, sisters, and friends.

Koko the Service Dog: A Seizure Response Dog Shares His Story – ages 6-12

By Lisa Mink

Koko shares his story as a seizure dog in a fun and engaging manner that teaches children important lessons about people with disabilities – that it’s not about what they can’t do, but what they can do. This true story explains Koko’s role as a seizure response dog and how important service dogs can be in the lives of people with disabilities.

15.09 at  http://www.amazon.com/

Living with Seizures

By Heather Tuttle

A 7-year old girl writes and illustrates this one-of-a-kind book to explain to other children what it is like to have epilepsy. Her book addresses epilepsy education, interaction with kids at school & first aid while dispelling common myths about the disorder. Most importantly, the book tells others that kids with epilepsy are no different than anybody else.

Free PDF Download http://www.ebooknetworking.com/books_detail-0964971305.html

Mom, I Have a Staring Problem

By Marian Carla Buckel

Tiffany, a 7-year-old, describes her experience with absence (petit mal) seizures, her feelings, wishes and fears.

$12.00 from http://www.amazon.com/

Sarah Jane Has Staring Moments

By Kate Lambert, Illustrated by Rebecca Morris

7 year-old Sarah Jayne Possembury has “staring moments” know as Absence Seizures. With the help of her best friend John, Sarah overcomes her classmate’s prejudices and lack of understanding towards her epilepsy. The book shows that through simple communication and understanding, children can be empowered to overcome the obstacles they face.

Author Kate Lambert, was inspired to write the book after her daughter Lille, was diagnosed with Absence Seizures at age 5. In the early days following diagnosis, Kate recalls particularly difficult times concerning the lack of understanding towards Lille’s condition. Kate was determined to write the book to help others understand.

Available at www.sjstaringmoments.com

Because You Are My Friend

This coloring book is a fun and convenient way to help explain epilepsy to your brother or sister, friends or classmates.

FREE to residents of PA. Email your name and address to the Children & Family Services Coordinator at staff@efwp.org or call 800-361-5885.

FREE EBOOKS

At WWW.WOWIO.COM you can download e-books for free. Limits are 3 books a day and no more than 30 a month.

A search on “Epilepsy” resulted in the following:

Epilepsy: A Cleveland Clinic Guide

By Elaine Wyllie, M.D.

This guide provides expert medical advice from an award-winning physician at one of the nation’s best hospitals for the treatment of epilepsy and seizures. Dr. Elaine Wyllie, a world-renowned neurologist and epilepsy specialist, guides you through all aspects of epilepsy, from the definition of seizures and their underlying causes, to treatment with medicine or surgery. This book provides a comprehensive, one-stop source of information about epilepsy, while also outlining clear and concise actions for maximizing care and treatment of this disorder.

List Price: $14.95

WOWIO Price: FREE

Growing Up with Epilepsy: A Practical Guide for Parents

By Lynn Bennett Blackburn, PhD

This book will appeal to busy parents who want a quick reference guide: information is organized in a manner easy to look up, chapters discuss social and behavioral as well as psychological concerns and issues, and parents receive basic tools to help their kids through all manner of concerns. An important tool for everyday living.

List Price: $19.95

WOWIO Price: FREE

Epilepsy and Pregnancy

By Stacey Chillemi, Blanca Vazquez, MD

Here are the basic facts you need to make medical decisions throughout preconception, pregnancy, labor, delivery, and the early days after childbirth. Topics include preconception, fertility, pregnancy risks, risks to the fetus, nutrition, keeping fit, what to expect during pregnancy, fetal development, and labor and delivery. In addition, the book includes guidelines for the use of antiepileptic drugs during pregnancy, recommendations and questions to ask your neurologist, a glossary, and much more.

List Price: $16.95

WOWIO Price: FREE

110 Puzzling Cases of Epilepsy

By Dieter Schmidt and Steven C Schachter

In this fascinating volume, the author details more than one hundred instances where health care practitioners faced unusual challenges in treating epilepsy. All aspects of epilepsy are explored through these cases, from the sometimes confusing initial diagnosis to patient responses and treatment methods.

List Price: $69.95

WOWIO Price: FREE

PERSONAL ACCOUNTS

Epilepsy in the Family

By Suzanne Yanko

In this readable informative guide, the author has taken a journalist’s approach to the subject, interviewing a number of professionals and telling “real-life” stories. She belives that true understanding lies in personal accounts — from those of families to her own experience with surgery. The comprehensive section on epilepsy surgery has won an award for its description — from the patient’s point of view. A terrific and interesting resource either for those who have epilepsy or epilepsy in the family.

$26.80 from http://www.amazon.com/ (E-book: $9.99)

You Are Not Alone: Parents of Teens with Epilepsy Share Words of Wisdom

The Epilepsy Foundation

A kit made up of DVDs, audio CDs, pamphlets, and a Facilitator’s Guide to help parents cope with their child’s epilepsy as the child becomes a teenager, and the parent’s role changes. Parents are encouraged to use the kit to learn how to support and encourage their teen to take charge and learn how to manage their seizures and their life.

Epileptic

By David B.

An award-winning animated novel by one of Europe’s most celebrated comic artists.  It tells the autobiographical story of his family’s struggle with his older brother’s seizures, and their search for a cure. Publishers Weekly has called it, “one of the greatest graphic novels ever published.”

$12.89 from http://www.amazon.com/

Seizure Free : From Epilepsy to Brain Surgery, I Survived, and You Can, Too!

By Leanne Chilton

Here, in her own words, is one woman’s triumph over epilepsy and brain surgery. It is an informative and positive story designed to give others hope and encouragement while enduring and having to live through seizures, medication, and surgery.

$12.95 from http://www.amazon.com/

Brainstorms: Epilepsy on Our Terms – Stories by Children with Seizures and Their Parents

By Steven C. Schachter, MD; Georgia D. Montouris, MD; John M. Pellock, MD

Firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends.

“Epilepsy on Our Terms” reveals the terror, uncertainty, and frustration felt by children and parents after an initial seizure or a diagnosis of epilepsy and documents the ongoing trials, tribulations, and triumphs of coping with seizures, medication schedules and side effects, health care providers and hospitals, schoolmates, siblings, relatives, and friends. These accounts provide realistic insights into the myriad issues encountered in living with childhood epilepsy.

It also includes a straightforward medical discussion of childhood seizures, written in layperson’s terms by Dr. Pellock; a glossary of medical terms; and a guide for schoolteachers and parents written by William Murphy, Executive Director of the Epilepsy Association of Massachusetts.

Appendices provide a directory of Epilepsy Foundation of America affiliates; a list of recommended books, publications, and videotapes; and information about the Epilepsy Foundation of America’s Winning Kids program.

$21.95 from http://www.amazon.com/

Brainstorms: Epilepsy in Our Words – Personal Accounts of Living with Seizures

By Steven C. Schachter, M.D.

This book presents a collection of 68 personal accounts from people with epilepsy  illustrating the wide range of experiences associated with seizures and living with epilepsy. Many of these stories are told by people who have had epilepsy for years and their passages are heartfelt and realistic. An introductory section explains epilepsy and different seizure types from a medical perspective in an easy-to-understand and accessible manner. An index helps readers focus on particular symptoms and other specific aspects of seizures, such as seizure warnings and triggers.

$21.95 from http://www.amazon.com/

Brainstorms: Epilepsy in Our View – Stories from Friends and Families of People Living with Epilepsy

By Steven C. Schachter, MD

A collection of personal stories from friends, family members, and co-workers of people with epilepsy in which they describe their observations and feelings about witnessing seizures and about the person with epilepsy. The book sheds light on the social consequences of epilepsy while increasing understanding of what’s happening when a person has a seizure.

$21.95 from http://www.amazon.com/

Brainstorms: Epilepsy in Our Lives – Women Living with Epilepsy

By Steven C. Schachter, MD; Kaarkuzhali Babu Krishnamurthy, MD; Deborah T. Combs Cantrell, MD

Here is a collection of frank and honest stories from women with epilepsy, told in their own words, describing what life is like with this disorder. Women discuss the impact of epilepsy on their roles as mothers, wives, and individuals, and express their concerns about how epilepsy will affect pregnancy outcome, the health of their babies, and parenting. They also share candidly how epilepsy impacts family planning, fertility, and sexuality.

$22.95 from http://www.amazon.com/

Brainstorms: Epilepsy in Our World – Stories of Living with Seizures from Around the World

By Steven C. Schachter, MD & Lisa Francesca Andermann, MD

This is a collection of frank, first-person narratives by people with epilepsy from 21 countries which offers unique perspectives on the personal and social aspects of seizure disorders. Reflecting a diverse array of cultures, the narratives of this book reveal many common concerns and show the distinct ways that people around the world affected by epilepsy react to the diagnosis and cope with their families, friends, and communities. The book includes chapters on the Global Campaign Against Epilepsy and a physician’s firsthand experience in East Africa.

$22.95 from http://www.amazon.com/

REFERENCE

Epilepsy: 199 Answers: A Doctor Responds to His Patients’ Questions

(Highly recommended!)

By Andrew N. Wilner

Good information in an encyclopedic format — question by question. It answers in very plain English, the questions a person needs to know first-off when diagnosed. The questions address not only the concerns of a person with epilepsy, but it also addresses issues that family members might want to know.

The Health Record is a great way to help patients help themselves get more out of their doctor visits. The Drug and Medical Information lists important numbers of drug companies so that a person can obtain more information about the drugs they take. The Resource Guide is worth the book alone as it lists support groups, organizations, comprehensive epilepsy centers, summer camps, and other important contacts not just nation-wide, but internationally. Knowledge points the way to a better diagnosis with epilepsy and what questions this book doesn’t address, it guides you to sources that will answer the rest.

$9.93 from http://www.amazon.com/

Epilepsy: Patient and Family Guide, 3rd Edition

By Orrin Devinsky, MD

The new edition of a best-selling book covers a wide range of medical, social and legal issues. Topics include explanation of seizures and epilepsy, information about medication, side effects and risks, and how to get good medical care.

Epilepsy expert Dr. Orrin Devinsky, provides an easy-to-read and comprehensive  resource for people with epilepsy and their families. Ideal for adults with epilepsy or for parents of children with the disorder, the reader will learn about: The nature and diversity of seizures. The factors that can cause seizures or help to prevent them. The risks and benefits of selected anticonvulsants. Medical and surgical therapies for seizures. Various ways diet affects seizures.

This book will educate recently diagnosed patients, as well as those who have been living with epilepsy for years. Filled with reliable and factual knowledge about epilepsy, to dispel uncertainties and fears, build independence, and help patients become their own advocates.

$11.30 from http://www.amazon.com/

Women with Epilepsy: A Handbook of Health and Treatment Issues

Edited by Martha J. Morrell, MD and Kerry Flynn, MA

This handbook assembles a team of experts to review the special problems faced by women with epilepsy. Epilepsy treatments affect fertility and can cause pregnancy complications and birth defects, but most of the available drugs have been tested on men. Moreover, hormone effects on seizures are of particular concern to women at puberty, at menopause, and over the menstrual cycle. Many health-care providers are not informed about the unique issues facing women with epilepsy. This book, published in association with the Epilepsy Foundation of America, fills that gap and provides women with epilepsy with the information they need to be effective self-advocates.

$23.00 from http://www.amazon.com/

Seizures and Epilepsy in Childhood: A Guide for Parents, 3rd Edition

By John M. Freeman, MD, Eileen P.G. Vining MD, and Diana J. Pillas

A comprehensive guide reflecting the latest approaches to the diagnosis and treatment of epilepsy in childhood, this book encourages parents to help their children get involved, be active, and live normal lives despite their seizures.

$15.64 from http://www.amazon.com/

Epilepsy a New Approach

By Adrienne Richard & Joel Reiter

Richard, who has controlled her seizures without drugs for 15 years, and Reiter, a neurologist, combine the most recent medical updates with information on self-help alternatives, and discuss diagnosis, treatment options, behavioral methodologies, and more. Included are sections on biofeedback, psychotherapy, nutrition, relaxation, exercise, stress reduction, and journal keeping.

$19.95 from http://www.amazon.com/

With thanks to the EFA, it’s many different chapters and the wise people on epilepsy forums.

Another new guide: Resources: Free Patient Guidebook and DVD on Epilepsy  http://journals.lww.com/neurologynow/Fulltext/2013/09030/Resources__Free_Patient_Guidebook_and_DVD_on.7.aspx

 


34 Comments »

  1. I am very appreciative to have a list of books such as this. When the major work of finding the best books has been done for me, it makes it so much easier to find the one(s) I need.

    Comment by Star Anthony — May 1, 2011 @ 4:10 AM

    • Hi Sweetie,

      It’s good to hear from you.

      As I said, it was a labor of love, trolling through all those “maybes”. Took months, but I spent a bunch of money for a bunch of dud on my bookshelf!

      Hope this helps.

      Love to Larry, the boys and YOU!

      Comment by Phylis Feiner Johnson — May 1, 2011 @ 2:29 PM

  2. Thank you for putting this list together, Phylis.
    I reccomend the local library, if you don’t have the money for these excellent book’s. I’ve read some of them during my surgery recovery and got them there.

    Comment by Charlie — May 1, 2011 @ 11:35 AM

  3. None of the epilepsy books are available for free on the site that you list.Thanks!

    Comment by iris caruso — May 6, 2011 @ 12:25 PM

  4. Actually, if you go to http://www.wowio.com/users/searchresults.asp?txtSearch=epilepsy you’ll see a box for “Digital Editions” next to the ebook format.

    Click on that box and you’ll find what electronic formats that publisher is offering in terms of downloads.

    You can then download the edition as a PDF file.

    Comment by Phylis Feiner Johnson — May 6, 2011 @ 3:09 PM

  5. Hi, Phylis,
    I wonder whether you might be interested in taking a look at my newly-published book, BROKEN CONSCIOUSNESS: Reflections of an Epileptic. An 80-page paperback, it contains 52 poems I wrote about the 54 years I’ve lived with epilepsy. It is also available as an e-book. My state epilepsy foundation has reserved a book table for me for this November’s annual conference. While my book is poetry, it does speak to aura, seizure, and recovery, and my emotions about having the disorder. It is available online on Amazon, Barnes and Noble, and Borders. I hope it would not fall into your category of “duds.” Please contact me at my blog: maggiemendus.wordpress.com. Thank you so much.

    Comment by Maggie — May 10, 2011 @ 10:33 PM

  6. Thanks a lot, Maggie. I just ordered it at Amazon. They’re only a few copies left!!! Now that’s good news! :-)

    Comment by Phylis Feiner Johnson — May 11, 2011 @ 2:59 PM

  7. Thank you, Phylis. I hope it might be of comfort and help to others. I greatly appreciate your interest.

    Comment by Maggie — May 11, 2011 @ 7:35 PM

    • Well Maggie, I just finished your book and have a bundle of favorites: War, Tonic-Clonic Seizure, Decrescendo, Seizure, Resting, Brain Storm, Looking Ahead, Tension (one of my favorites)and A Note to You.

      Thank you, for your talent and for sharing it with us.

      Comment by Phylis Feiner Johnson — May 19, 2011 @ 9:41 PM

      • Thank you so much, Phylis. My book has accomplished its purpose. You’re the second person to particularly note “Tension” as a favorite. Thank you for so willingly buying my book and for your specific feedback.

        Comment by Maggie — May 19, 2011 @ 10:05 PM

    • Phylis, I am going to comment on your name — the “Feiner” part. But I want to spell it differently, if you don’t mind: FINER.
      What you have done feels like a real gift. Thank you, thank you, thank you. And oh, did I say thank you?
      When I read your email I sat here staring at my computer screen saying, “Wow. Wow…Wow.”
      I’m complimented that you would put your remarks out there so widely. By your action of bringing my book to an epilepsy audience, you are promoting it to the very people I am hoping to help.
      Bless you.

      Comment by Maggie — May 20, 2011 @ 2:45 AM

  8. Phylis, would you by any chance be willing to review my book on Amazon? If so, I would be appreciative. Good press can only help. If you’d rather not, that’s fine, too.

    Comment by Maggie — May 20, 2011 @ 4:14 AM

    • I don’t know what I did wrong, but they said “Your review was not accepted because we only allow each customer to write one review of each product set. An example of a product set is the collection of all editions of a book: hardcover, paperback, and audiobook. If you’d like, you can edit your existing review.” :-(

      Comment by Phylis Feiner Johnson — May 20, 2011 @ 2:50 PM

      • ??? Hmmm…still not sure what this means. But thank you so much for trying. Would Borders or Barnes and Noble, perhaps, be easier? I know you have to have an account in order to review for BN, but the same is not true of Borders. Thanks again. You’re really an advocate.

        Comment by Maggie — May 20, 2011 @ 3:10 PM

  9. It’s there, it’s there! You are one FINE (FEIN) person, Phylis, and tears came into my eyes when I read your carefully-worded review. It humbled me, and I can’t thank you enough for your kind words. Thank you for all you do to advocate for all of us. I’m so glad I found your blog.
    Maggie

    Comment by Maggie — May 20, 2011 @ 5:45 PM

  10. This is for Jenn, who said she went to Border’s to get my book, BROKEN CONSCIOUSNESS, but they didn’t have it. I’m sorry you made the trip out, Jenn. My book is only available online, and you can order it through the publisher, iuniverse, or through Amazon, Barnes and Noble, or Borders (online). I hope you will try again. Thank you for being interested.
    I couldn’t reply to her on her own blog, so hope she’ll see this.
    Today I am feeling very seizure-prone and about to go back to bed. I don’t like this feeling. It’s been almost 5 1/2 years, and I don’t want another seizure.
    Have a good day, everyone.

    Comment by Maggie — May 22, 2011 @ 3:37 PM

  11. You can always send a message to her Facebook page, AFTER you go back to bed and get some rest.

    Take good care of yourself and stave off that seizure!!!

    Comment by Phylis Feiner Johnson — May 22, 2011 @ 6:13 PM

  12. I rested, am still tired, but don’t feel as bad. Staving, staving, as my mom would have said!

    Comment by Maggie — May 22, 2011 @ 7:09 PM

  13. I am the Librarian of the Epilepsy Foundation Victoria, Australia. Yes indeed you have listed 25 of the best books, all of which we have in our Library.
    I have a number of other books which you could add to your list- particularly for children. If you have a look at our Website

    http://www.epinet.org.au/articles/library

    you will find near the bottom of the page a link to recent additions to the Library- which includes a number of children’s books and titles for non-professionals and another link to the Library Catalog. I hope to have a list of recommended reading for children added very soon- we are currently redesigning our website.

    We sell a few of the books through the Shop link at the top of the Foundation’s Home Page.
    regards to all,

    Pauline Brockett

    Comment by Pauline Brockett — October 25, 2011 @ 12:23 PM

  14. Thanks a zillion Pauline! Are there any books in particular you would recommend?

    Comment by Phylis Feiner Johnson — October 25, 2011 @ 12:53 PM

  15. Phylis, greetings from down under! I have recently published a book on lulu.com, written by my father Tom Kennaway (1936-2011) called “My Shadow”. Tom spent over sixty years successfully living with his tonic-clonic epilepsy. It’s an entertaining story based on Tom’s experiences as an Australian cowboy. Dad wrote this tale especially for me when I was 7 to explain his philosophy for coping with epilepsy and life – that “…you must always get straight back up on to your horse after it throws you.” Through dogged persistence and a “never give up” attitude the cowboy faces several setbacks on his way to breaking in and taming his beautiful mare – “Shadow”. Tom’s “shadow” was his epilepsy which he also eventually tamed. The accompanying black and white illustrations were done by me. “My Shadow” is the perfect story for a parent, guardian or teacher to share with a 6 to 8 year old. I’d be delighted if you could have a look at it Phylis. It’s available as a Paperback or EBook (PDF) at: http://www.lulu.com/
    Best Wishes, Tim.

    Comment by timothykennaway — February 7, 2012 @ 12:05 PM

    • Sounds like it’s both an entertaining AND inspiring story. Tonic-clonic seizures certainly didn’t keep your dad down!

      Thanks so much for telling us about his book. It’s so tough to find the right book for kids, I’m sure it will be an asset!

      Comment by Phylis Feiner Johnson — February 7, 2012 @ 3:46 PM

  16. I downloaded the books, too which were great and take them everywhere! Thank you Phylis!

    Comment by Toni Robison — April 30, 2012 @ 11:18 PM

  17. Super! Glad you found something helpful from this article.

    Comment by Phylis Feiner Johnson — April 30, 2012 @ 11:21 PM

  18. Hi, it’s good to have such a list … and I particularly agree with including Steven Schachter’s Brainstorm series. Can I modestly suggest my own book (which Dr Schachter has called “a terrific resource”)? Epilepsy in the Family (2010) is my second book, easy to read but with lots of medical/health information approved by doctors, and lots of “real-life” stories, including my own experience of surgery. It’s available through amazon.com, and now also as an ebook.
    Best wishes, Suzanne Yanko

    Comment by skyankoSuzanne Yanko — July 25, 2012 @ 9:29 PM

    • Hi Suzanne, Your book IS on the list, right under “Personal Accounts”.

      But thanks for confirming to make sure your book was listed.

      Comment by Phylis Feiner Johnson — April 18, 2013 @ 11:56 AM

  19. If your in British Columbia, Canada we have a lovely little book called Violet’s Special Day. This book is a remarkable literary achievement created by a child for a child! Email me direct and I can send you a copy epilepsy.client@telus.net

    Comment by Nola Crocker — April 17, 2013 @ 4:44 PM

    • Hi Nola, The book sounds wonderful!

      Is there a link where I can look at the book and readers can buy it?

      Comment by Phylis Feiner Johnson — April 18, 2013 @ 11:58 AM

  20. We are all just cars; some of us have faulty electrical systems. In Detour: A 40-Year Epilepsy Memoir, Don Miller rolls over the conventional approach to an Epilepsy book with an automotive slant. Written simply to be understandable to all grade levels, it combines humor, the serious, and painful honesty in three sections–Personal, Reference, and E People Can Be Creative that will rev your engine, but won’t cause your sparkplugs to misfire. $9.55 paperback, $2.99 Kindle @ http://www.amazon.com Currently, it is discounted

    Comment by wordsmith1963 — May 19, 2014 @ 4:58 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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