Epilepsy Talk
Gratitude is the Attitude! | July 29, 2010
Sometimes, I get into a funk so bad that it’s like a black hole. Until I remember the safety ladder that I always carry in my pocket.
I think of at least five things I’m grateful for. Or if I’m down there awhile, I stretch it to ten.
Here are the top five on my gratitude list:
1. My life. After going to 12 schools in 12 years and a war zone home, I have a home of my own where I’ve lived for more than 20 years, peacefully and secure.
2. My husband. He’s the one who makes me feel secured, loved, important. He respects me and to him, I am valuable.
3. My cat. I never knew I’d end up having to save her life but the rewards have been immense. Lots of laughs, comfort and cuddles.
4. My friends. They are my sanity check whom I can run to with my troubles and triumphs. They applaud me some times and at other, tell me I’m out of my mind.
5. My job. I live to write. Always have. It’s my reason for getting up in the morning. And what could be better than writing to help people with epilepsy. It’s a win-win!
I only hope others are as fortunate as me…
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Thank you Phylis, we need to be thankful for what is positive in our lives. That is a good idea to write down some things that each one of us has to be grateful for. I will think of some and then put them in here.
Comment by Ruth Brown — July 30, 2010 @ 9:15 AMJul -04:00Jul
I am thankful for
1. My reason for living. I have raised 4 children and I have 3 grandchildren. I taught my children to read after they came home to school. The schools in California were not required to teach reading. I was a teacher and a housewife at home.
2. My husband and 1 of my sons live with me and give me the support that I need. They support me when I am down.
3. The Bible builds me up. It helps me to have a life that keeps me sane and learn from the people in the past. It teaches me what is right and wrong.
4. Your website helps me with topics that I can learn from and put into practice with my seizures.
5. I appreciate your research that you do for all of us. Your friendship and kindness are very important to me.
Ruth
Comment by Ruth Brown — August 1, 2010 @ 9:15 AMAug -04:00Aug
Today’s gratitude list:
1. The kindness and caring of friends…
2. Sharing together time with those I like most
3. Laughter
4. The freedom of my every day
5. A day off to sleep in…
Comment by Phylis Feiner Johnson — August 1, 2010 @ 9:15 PMAug -04:00Aug
My gratitude list today:
1. I did sleep in, now I hope I can sleep tonight.
2. Laughter is the best medicine
3. My husband supporting me.
4. The fires are almost out!!
Comment by Ruth Brown — August 2, 2010 @ 9:15 AMAug -04:00Aug
Today’s gratitude list:
1. My mother’s brilliant care manager
2. My husband’s dedication
3. The safe return of my walking partner
4. Sharing a nice bottle of champagne
5. Another sunny, beautiful day!
P.S. I’m glad the fires are almost out!
Comment by Phylis Feiner Johnson — August 2, 2010 @ 9:15 PMAug -04:00Aug
My gratitude list for today.
1. Starting to exercise
2. Happy doing housework
3. Hubby glad I am going housework.
4. For once, I am supporting hubby
5. I am having few seizures today.
Comment by Ruth Brown — August 4, 2010 @ 9:15 AMAug -04:00Aug
Today’s List:
1. Feeling better
2. Seeing an old friend
3. A lovely dinner (made by Arthur)
4. Trust
5. Faith
Comment by Phylis Feiner Johnson — August 5, 2010 @ 9:15 PMAug -04:00Aug
Today’s list:
1. My cousin’s generous loan of her beach house
2. Our first vacation in 3 years
3. Sun and sea
4. Watching Joshua getting married
5. Seeing all of my dear friends at a joyous event!
Comment by Phylis Feiner Johnson — August 8, 2010 @ 9:15 AMAug -04:00Aug
Congratulations on the wedding. I love weddings. Do you have photo’s yet?
You deserved a vacation. That was really great that your cousin loaned you a house.
Comment by Ruth Brown — August 9, 2010 @ 9:15 PMAug -04:00Aug
No wedding photos yet…but AJ did take some on his iPhone, which he hasn’t yet downloaded.
We’re soooooo happy to be here. Especially Lucy!
Today’s Gratitude List:
1. The blue bay and green marshes outside this window…
2. The ocean across the street and a great view, too…
3. Blue, blue beautiful sky…
4. A break from cooking…
5. Time out just to veg!
Comment by Phylis Feiner Johnson — August 10, 2010 @ 9:15 PMAug -04:00Aug
Today’s Gratitude List:
Today’s list:
1. Forum friends with something positive to contribute
2. My mother-in-law who is a truly generous and wonderful person
3. My husband who is generous enough to support my mother, although she has never been kind to him
4. Another day at my cousin’s beach house which is pure bliss
5. A good night’s sleep!
Comment by Phylis Feiner Johnson — August 11, 2010 @ 9:15 PMAug -04:00Aug
Phylis, I wanted to put this under Seizure Triggers. I am going to take a vacation. I am under to much stress again.
Comment by Ruth Brown — August 12, 2010 @ 9:15 AMAug -04:00Aug
I think that’s a good idea…especially after that Scotland debacle. That was just awful. I think a break would be a good way to recover, collect yourself, and shed the negativity.
Comment by Phylis Feiner Johnson — August 12, 2010 @ 9:15 PMAug -04:00Aug
My Gratitude List:
1. Ethan is home from the hospital
2. I am calm
3. The weather was just right today
4. It is quiet in the house
5. My hubby finally got the kitchen faucet and the sprinklers fixed. That was great of him
Comment by Ruth Brown — August 12, 2010 @ 9:15 PMAug -04:00Aug
Great news that Ethan is home from the hospital AND that you are feeling more calm.
Today’s List:
1. Having friends who trust me
2. Reading a good book
3. Last night’s yummy lobster tail dinner
4. Excellent iced coffee
5. Much needed rain.
Comment by Phylis Feiner Johnson — August 12, 2010 @ 9:15 PMAug -04:00Aug
Today’s list:
1. Having good friends
2. I am going to exercize today when it is daylight, before it gets hot.
3. I am going to keep from losing my temper. Think before I speak.
4. A beautiful day
5. I can watch the golf game on TV today.
Comment by Ruth Brown — August 14, 2010 @ 9:15 PMAug -04:00Aug
Today’s List:
1. The opportunity to have dinner with an old friend before his untimely death…
2. Survivors…
3. Bravery…
4. Faith…
5. Love
Comment by Phylis Feiner Johnson — August 14, 2010 @ 9:15 PMAug -04:00Aug
An updated list for today:
1. Went for a walk when the sun came up.
2. I could see the mountains
3. Good air quality
4. I plan on going for early morning walks everday that I can.
5. I am on less medications and have more energy.
Comment by Ruth Brown — August 14, 2010 @ 9:15 PMAug -04:00Aug
Thankful that I have such positive friends.
Grateful to wake up to a good day.
Thankful for a kind & caring Hubby.
Grateful for awesome dogs that are more family then pets.
Thankful for Support Groups & the knowledge/experiences they share w/ those who ‘listen’.
Love Candi
Comment by Candi — August 20, 2010 @ 9:15 AMAug -04:00Aug
I need to take out my list today.
1. My son doing some of the housework to give me a break
2. The fire, that has caused bad air quality, is out.
3. Hubby cleaned the electronic air cleaner to keep my asthma from getting bad.
4. Having such good friends
Comment by Ruth Brown — August 20, 2010 @ 9:15 AMAug -04:00Aug
Today’s List:
1. Greatful to have Candi aboard with all of her vast knowledge and experience
2. Happy that Ruth is participating, even when she doesn’t feel too terrific
3. Thankful to have wise and caring friends
4. Forever indebted to those who so selflessly share
5. Grateful that I was able to have a wonderful dinner with our friend Frank, a few weeks before he died this Saturday.
Comment by Phylis Feiner Johnson — August 20, 2010 @ 9:15 AMAug -04:00Aug
1. It is great to have Candi here
2. I appreciate everything that everyone here does to support me.
3. My goal is to get over my depression and to work at it.
4. Thankful that hubby fixed lunch
Comment by Ruth Brown — August 20, 2010 @ 9:15 AMAug -04:00Aug
You 2 are soooo good to me.
I don’t know what I did in this life to deserve you guys as ‘true’ friends. I’m just plain Happy that we are! Love Candi
Comment by Candi — August 20, 2010 @ 9:15 AMAug -04:00Aug
Candi, were are so very happy too. And you can always count on us as friends!
Comment by Phylis Feiner Johnson — August 21, 2010 @ 9:15 PMAug -04:00Aug
My list today:
1. Great that Candi, Phylis and I are good friends.
2. I am going to be upbeat today.
3. I am going to try not to wake up my son. He sleeps later than we do and he has sharp hearing.
4. I loved the latest FWD that Candi sent me. I sent it to eight other people.
5. I will be doing housework today, because it is going to be too hot today.
Comment by Ruth Brown — August 20, 2010 @ 9:15 PMAug -04:00Aug
My list today
1. Grateful that Arthur was so understanding when I took off the garage frame with my car
2. Thankful that Arthur was so good natured when I “gave him” my poison ivy
3. Happy to have had dinner with upbeat friends last night
4. Glad that the poison ivy is only on my skin, not in my eyes
5. Grateful to be somewhat functional, even though I feel and look like a horror!
Comment by Phylis Feiner Johnson — August 21, 2010 @ 9:15 PMAug -04:00Aug
Phylis, can you give your poison ivy to your cat. Are you okay after you hit the garage door?
1. Happy to do the dishes when my son woke up dizzy this morning.
2. Happy that my husband steam cleaned the carpet.
3. I will watch another golf game today.
4. Thankful that I woke up to see another day.
5. I cannot think of another one to put on my list today.
(((HUGS))) Phylis,I hope you get better soon. You can cry on my shoulder anytime.
Comment by Ruth Brown — August 22, 2010 @ 9:15 AMAug -04:00Aug
So far, the only one I gave poison ivy to was Arthur. And he looks worse than me.
My car is due at the body shop Monday, so this will just be one more thing to add to the list…
And I’ve stopped crying, because the tears really make my poison ivy burn!
Thanks for the hugs, but don’t get too close. Last night we were blowing kisses to our friends! (Hugging can be hazardous to your health?) xoxoxoxoxo
Comment by Phylis Feiner Johnson — August 22, 2010 @ 9:15 AMAug -04:00Aug
Tell Arthur I hope he gets well soon. What are you treating the poison ivy with?
I am glad that your car will be back Monday, but what about the garage door.
I am thankful that no one can get poison ivy through the internet. So, I can still give you hugs. With all that is going on, I am surprised that you are still on the internet.
Just to make sure, I will hug you from afar.
Comment by Ruth Brown — August 22, 2010 @ 9:15 AMAug -04:00Aug
Gratitude is the Attitide
1. At least I have a “notch” in the driveway where I can park my car
2. I’m grateful to Concord Auto Body — my home away from home
3. I’m also glad I can’t give anyone poison ivy on the net
4. It feels terrific to be hugged
5. It also feels great to hug back, even if it is a virtual hug!
Comment by Phylis Feiner Johnson — August 22, 2010 @ 9:15 PMAug -04:00Aug
My list for today:
1. I am thankful for the hearts and hugs.
2. I am greatful for Calamine Lotion to use to ease your poison ivy.
3. I feel pretty good today
4. I even feel like getting out of the house
5. I hope to make it to my meeting at the Kingdom Hall of Jehovah’s Witnesses. When I am too sick, I get to listen to the meeting by telephone.
Comment by Ruth Brown — August 23, 2010 @ 9:15 AMAug -04:00Aug
Hi, im thankful:
1. I can live on my own “considering I have dailly seiz.”
2. my supporting boyfriend
3. my sweet dog and 2 cats
4. my seiz. arent worse than they are
5. my supporting parents
6. my dr.
7. my many hobbies I enjoy…..and many other things im thankfull for
Comment by Jennifer Schnegg — August 23, 2010 @ 9:15 AMAug -04:00Aug
WELCOME JENNIFER! WE’RE GRATEFUL THAT YOU JOINED US!!!
Comment by Phylis Feiner Johnson — August 23, 2010 @ 9:15 PMAug -04:00Aug
DITTO! Stick around. Keep ‘talking’ w/ us.
Love Candi
Comment by Candi — August 24, 2010 @ 9:15 PMAug -04:00Aug
Grateful I awoke this morn. (I’m gettin used to 3 hrs sleep at nite.)
Thankful that everyone will let me take naps. (I manage 4-5 hrs for my nap.)
Thankful for Hubby understanding why I wouldn’t get out of bed at 10PM last nite, to go grocery shopping w/ him.
Thankful that Phylis & car is on the mend. (Poor Arthur! Baking Soda bath?)
Thankful that my daughter finally seems to be on the rite meds/doses. No seizures after 6 weeks. Side effects diminished/disappeared. Now over 2 mths.
Love Candi
Comment by Candi — August 23, 2010 @ 9:15 PMAug -04:00Aug
1.Thankful that Candi’s daughter has not had seizures in 6 weeks.
2. Thankful that I made it to my meeting yesterday and got to visit with friends.
3. No seizures until after the meeting. Thankful that it was just staggering and not t/c’s.
4. Thankful that I was up all night to get peace and quiet.
5. Thankful that I have a new day to look forward too. I feel great!!
Comment by Ruth Brown — August 23, 2010 @ 9:15 PMAug -04:00Aug
Today’s list:
1. Poison ivy slowly going down
2. Spirits slowly going up
3. Gardener coming to survery the acres of poison ivy. (Better him than me!)
4. Lovely late Sunday lunch
5. Delicious nap… Mmmmmmm.
Ruth, why were you UP all night….why was that a GOOD thing…and is that the only way you get peace and quiet???
Comment by Phylis Feiner Johnson — August 23, 2010 @ 9:15 PMAug -04:00Aug
I felt good all night and not yucky like I usually do. I was and am able to do housework. When I feel yucky, I cannot do housework.
It is not my family. It is the fact that I can rest. It is quiet. Great for seizures!! No triggers.
When everyone is awake and I try to do housework, they get in my way. This way, no one is in my way.
I am cleaning out the refrig. Usually, everyone is always in the refrig getting something. Plus my son tells me that I am keeping the refrig open too long.
They are greatful when I do it at night.
Comment by Ruth Brown — August 23, 2010 @ 9:15 PMAug -04:00Aug
Peace and quiet are a GOOD thing…so are no triggers. I’m especially grateful that you’re feeling so GOOD!!!!
Comment by Phylis Feiner Johnson — August 23, 2010 @ 9:15 PMAug -04:00Aug
Things im thankfull today:
1. got some cleaning done, which I hate doing, even thought I felt lousy.
2. got to sleep in am extra 2 1/2 hrs this morning
3. No seiz today, even though I didnt sleep well
4. I went grocery shoping yesterday
5. made a nice chicken sandwitch for lunch
Comment by Jennifer Schnegg — August 24, 2010 @ 9:15 AMAug -04:00Aug
Another very important greatfullnes:
1. for my friend Reem that she recovered from her virus. I was so worried for her.
2. greatfull to be talking to her again.
3. greatfull to hear from her a few minutes ago., after many many days not knowing how sick she was
4. still no seiz today
5. got alot of cleaning done in my house.
Comment by Jennifer Schnegg — August 24, 2010 @ 9:15 AMAug -04:00Aug
GREAT news about your friend Reem! Hope she continues to feel better and you stay on your no seizure trend!
Comment by Phylis Feiner Johnson — August 24, 2010 @ 9:15 PMAug -04:00Aug
1.I did a lot of housework and I feel better.
2. Took a nap this afternoon
3. I think I will sleep all night tonight
4. Just some tremors, no other seizures
5. I was not a couch potato in fromt of the computer or TV today.
6. When I needed it, my family helped me.
Comment by Ruth Brown — August 24, 2010 @ 9:15 AMAug -04:00Aug
Today’s list:
1. Good advice from my shrink for my panic attacks. A workbook of “pre-panic” exercises.
2. Crying jags slowing down…
3. Correction in my meds that I was taking. I was only taking half the dose of prescribed Lamictal. Oy. That memory of mine!
4. Agreement with Arthur about outside garden maintenance. I’m worn down.
5. A cool mustang convertible car rental while mine is in the shop!
Things are looking better…
Comment by Phylis Feiner Johnson — August 24, 2010 @ 9:15 PMAug -04:00Aug
Hi Phylis, I just noticed your date is off at the bottom of these posts. No way is it 8:46pm, Aug 24. Just a small ‘glitch’ I noticed.
My List for the Day.
Grateful for my kids. ( I am the ‘Neighborhood Mom’.)
(My fault. I forgot to put him in his pullups. 
)
)
Grateful to have spent time w/ my ‘adopted’ grandson, all day. Even if he did wet the bed after nap.
Grateful for a fun ‘potluck Taco nite’ at friends house. (Whooohooo, no mess in My kitchen.
Grateful to have a block of good neighbors.
Grateful for waking up this morn.
Love Candi
Comment by Candi — August 24, 2010 @ 9:15 PMAug -04:00Aug
The website seems to be administrated in a different time zone???
Comment by Phylis Feiner Johnson — August 25, 2010 @ 9:15 AMAug -04:00Aug
Hi, things to be greatfull today:
1. no seiz today
2. my mother is going to come over today and help paint my bedroom
3. the weather is cooler
4. got some cleaning done, but not done yet
5.greatfull I have wonderfull people with great support and information
Comment by Jennifer Schnegg — August 25, 2010 @ 9:15 AMAug -04:00Aug
Jennifer, WE are grateful to have YOU!
Comment by Phylis Feiner Johnson — August 25, 2010 @ 9:15 AMAug -04:00Aug
My list today:
1. Jennifer and Bobby are great to have as friends. I would like to see Bobby’s list.
2. I feel better after taking a break from the internet. I might do it more often.
3. No seizures during my break from the internet.
4. It is to early to decide what I am going to do today. My zone time is 6:10 am., Pacific Time.
5. I am greatful that I feel good enough to exercise.
Comment by Ruth Brown — August 27, 2010 @ 9:15 PMAug -04:00Aug
hi
my greatfull list is
1. mother came over 4 hrs to help my clean
2. she bought me some shells for my bedroom, and 2 ocean posters
3. my boyfriend gave me a beautifull heart
necklace
4. since after being changed back to my meds, i have no seiz today, but had a terrible migrain yesterday
5.mother gave me a ride to go shopping and visit friend that worked at 1 of the stores, i enjoy going out shopping on my own with nobody going with me, it makes me feel like i can do it, being free
Comment by Jennifer Schnegg — August 28, 2010 @ 9:15 AMAug -04:00Aug
Today’s list:
1. Seeingy cousin Colleen
2. Nice lunch and visit to the Museum of Modern Art yesterday
3. Lots of laughs
4. The opportunity to talk about Bruce who we both miss mightily
5. Gossip!
Comment by Phylis Feiner Johnson — August 28, 2010 @ 9:15 PMAug -04:00Aug
My list,
1. I am on less medicine and am having fewer seizures
2. I do not sleep as much during the day
3. I wake up at 2 a.m every morning
4. I am still friends with Bruce but I have not heard from him lately
5. I am greatful for being alive
Comment by Ruth Brown — August 28, 2010 @ 9:15 PMAug -04:00Aug
hi
gratefull for
1. a peicefull day besides having a complex partial at 2:30pm
2. got some cleaning done
3. learning to cook and eating better
4. now taking vitamins
5.a beautifull day
Comment by Jennifer Schnegg — August 29, 2010 @ 9:15 AMAug -04:00Aug
hi
today was rough for me, many seiz…. but
1. am greatfull its not a big one, they are just short but many
2. my music which I love to play,, my guitar
3. my friend and I talked nice today
4. it was a beautiful day
5. greatfull for decafinated coffee
Comment by Jennifer Schnegg — August 30, 2010 @ 9:15 AMAug -04:00Aug
Hi Jennifer, I am sorry that you are having so many seizures. I was having a lot every day, until I stopped using the computer as much. The computer and TV were a trigger for me.
My list for today
1. I am going to have to lose weight
2. I am going to buy new clothes
3. The temps are in the 80′s, spring, fall weather
4. Jennifer, I love guitar music
5. It is a beautiful day
Comment by Ruth Brown — August 30, 2010 @ 9:15 AMAug -04:00Aug
Ruth, Ill try and not go on computer or tv as much and see what will happen. Maybe its also a trigger for me. Who knows.
Comment by Jennifer Schnegg — September 2, 2010 @ 9:15 PMSep -04:00Sep
My list for today…
1. Waking up to read the accounts of caring people like you
2. A wonderful visit with my cousin
3. The chance to get away for 2 days and take time out
4. Coming home to a welcoming husband
5. A mellow Sunday of “together time”
Comment by Phylis Feiner Johnson — August 30, 2010 @ 9:15 PMAug -04:00Aug
thankfull,
1. i got laundary, sweeping, and mopping done
2. only 1 seiz instead of many
3. didnt overeat
4. i talked to reem today
5. got to sleep in 1 hr
Comment by Jennifer Schnegg — August 31, 2010 @ 9:15 AMAug -04:00Aug
1. Did exercizing (sp?) Hubby did to, great!!
2. I am going to eat better. I had got off my diabetes meal plan.
3. It is great weather today. I plan on going for a walk this afternoon.
4. My son has gotten over his fear of dogs. The neighbors are happy, so am I
5. I ate my breakfast on my meal plan.
I put these 5 in my pocket for today
Comment by Ruth Brown — September 1, 2010 @ 9:15 AMSep -04:00Sep
Today’s list:
1. The skin care assignment came through. So, hopefully, I’ll be able to donate the copy fee directly to my local EFA.
2. Nailed down a dinner date with Allie. (Our new local EFA Ex. Director.)
3. Wrote the brochure and the letter for the skin care package.
4. Might even have some breathing space today.
5. Grateful that Arthur made dinner last night.
Comment by Phylis Feiner Johnson — September 1, 2010 @ 9:15 PMSep -04:00Sep
My List
1. Hubby did exercises today and i did not. I am glad he did and shame on me!!
2. I am washing a lot of clothes.
3. I pick up my winter clothes at the Dry Cleaners today.
4. Great weather today.
5. Neighbor cut down huge tree. I am greatful because it was so huge it could fall on our roof this winter.
Comment by Ruth Brown — September 2, 2010 @ 9:15 AMSep -04:00Sep
The dry cleaners is absolutely the one thing I hate to do the most…
Comment by Phylis Feiner Johnson — September 2, 2010 @ 9:15 AMSep -04:00Sep
That is what makes this interesting. We are all grateful for different things.
Comment by Ruth Brown — September 2, 2010 @ 9:15 AMSep -04:00Sep
1. cleaned almost the whole kitchen, even the fridge
2. cooked a nice meal
3. washed my dog’s hair
4. swept the whole house
5. i saw my mother tuesday
6. music lesson went very good
Comment by Jennifer Schnegg — September 2, 2010 @ 9:15 PMSep -04:00Sep
Today’s List:
1. I’m having lunch with my “niece” (she’s actually a cousin, but we’re very close) today.
2. I was able to put money in my savings account.
3. I finished the first draft of the skin care promo package.
4. 6:00 was a perfect time to walk today. It was lovely and I got some new copy ideas.
5. I finished all my errands already!
Comment by Phylis Feiner Johnson — September 3, 2010 @ 9:15 AMSep -04:00Sep
1. Our electronic air cleaner is working. It helps get rid of bad air quality in the house.
2. Our Ionic Pro’s air cleaners, scattered all over the house are working
3. Thankful for naps, I need one this afternoon
4. Greatful that Jennifer took the time to clean her house. I need to clean mine.
5. Glad that my husband got rid of our GP.
Comment by Ruth Brown — September 3, 2010 @ 9:15 AMSep -04:00Sep
greatfull:
1. so much support here, and encouragement
2. feel good with lots of energy
3. i love to stick my hands in the dirt and grow flowers
4. my dog was patient and let me wash his hair
5. for my boyfriend, I love him very much
Comment by Jennifer Schnegg — September 3, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, did you go on the TV and computer less? How did it work out?
Comment by Ruth Brown — September 4, 2010 @ 9:15 AMSep -04:00Sep
no Ruth i havent yet tried not going on computer or watching tv. I get so bored not doing it. But i’ll try today and let you know what happens tomorow.
Comment by Jennifer Schnegg — September 4, 2010 @ 9:15 PMSep -04:00Sep
Today’s List
1. The most beautiful day you can imagine
2. A bright red manicure!
3. Dinner at a favorite place with a favorite friend
4. A good book
5. Some time to write (I hope)
Comment by Phylis Feiner Johnson — September 4, 2010 @ 9:15 PMSep -04:00Sep
im not sure I have many good things because I have alot to complain about today. Only because I cant go anywhere I want to. I cant drive.
1. vacumed
2. mother says she will take me tomorow
3. no seiz today so far
4. slept ok last night
5. saw my friend william a few minutes yesterday
6. I practiced music
7. cooked a nice meal with left overs for today (I love left overs)
8. its not raining today
9. dog is behaving
10. 1 more…. but dont know yet but, im sure there are many other things to be greatfull of…
Well, I had to make the list longer because I wanted myself to see all I DO have to be GREATFULL of.
Comment by Jennifer Schnegg — September 4, 2010 @ 9:15 PMSep -04:00Sep
Hey Jennifer, you sure did change around your attitude from before your list to after your list. Good for you. YOU ROCK!
Comment by Phylis Feiner Johnson — September 5, 2010 @ 9:15 AMSep -04:00Sep
Jennifer your list is great. Phylis said we could write 10 or more things that we are greatful for. You are greatful for many things.
1. Jennifer asked me to write a poem
2. Phylis sent me a great Hallmark Card. Thank you!!
3. I read some articles in a magazine that I am greatful for.
4. I love poetry
5. I feel a lot better
Jennifer, did you like my poem? You are one of my unique friends.
Comment by Ruth Brown — September 5, 2010 @ 9:15 AMSep -04:00Sep
You’re pretty unique yourself, Ruth!
Comment by Phylis Feiner Johnson — September 5, 2010 @ 9:15 PMSep -04:00Sep
greatfull to:
1. my pets
2. my appartment
3. my parents
4. enouph money for food, and meds. and essentials
5. my music
6. having no kids
Comment by Jennifer Schnegg — September 5, 2010 @ 9:15 PMSep -04:00Sep
My list today:
1. I was off of the e-mails all day
2. I got to watch the golf tournament on the internet instead.
3. Thank you for the compliment
4. I listened to my meeting by phone today.
5. It is easier to find more things that are positive in our lives.
Comment by Ruth Brown — September 6, 2010 @ 9:15 AMSep -04:00Sep
My list today:
1. We are still #1 on Google and AOL
2. I had a nice afternoon with Arthur
3. It’s another georgeous day
4. I’m almost done with the weeding
5. Fall is just around the corner
Comment by Phylis Feiner Johnson — September 6, 2010 @ 9:15 PMSep -04:00Sep
Hi y’all,
It is so great to see a place where positive people talk about the good things they see in tough times. I’m a fan of Rick Warren’s “Purpose Driven Life”. the one thing that sticks with me is when he say’s [Life is not always ups and downs, but more like a Railroad track. On one rail we have Good positive things happening, and on the other rail we have not so positive/ negative things happening] I like to keep on the positive track as much as I can. On my list of the many positive things going on, one of them is that I might be able to drive in October after 9 years off the Road. PTL. It sounds like you all are trying to be on that rail too.keep it up!
Comment by Charlie — September 7, 2010 @ 9:15 AMSep -04:00Sep
Welcome Charlie!
What happens if you take the middle rail?
Thanks so much for the great insight and quote. I’m going to look up Rick Warren on Amazon.
And congratulations on driving. That must be like getting a new lease on life! Be careful…and tell us how you do!
Comment by Phylis Feiner Johnson — September 7, 2010 @ 9:15 PMSep -04:00Sep
had 1 seiz today coz I didnt sleep well last night but greatfull for:
1. I didnt have more, just 1
2. get cleaning done vacumn, mop, laundary,
3. practiced music
4. didnt eat too much, ate nice lunch
5. didnt have to cook, someone else did
6. got to spend the day out at bookstore
7. watered flowers
8. talked to boyfriend, mother because father upset me
9. they listened to my frustrations
10. Ruth and Phylis
Comment by Jennifer Schnegg — September 7, 2010 @ 9:15 AMSep -04:00Sep
Today’s list:
1. Good to feel trusted so someone can talk. (What did your father do Jennifer?)
2. Happy to have such a fun cookout with friends (even though I hate entertaining)
3. Glad I could include Jeeper
4. Grateful for my friend Deb
5. Thankful that Arthur offer to clean up!
Comment by Phylis Feiner Johnson — September 7, 2010 @ 9:15 PMSep -04:00Sep
Well, At the bookstore, when I was waiting for my father or mother to pick me up. It was my father. He told me he tapped on the bookstore window to let me know he was there. When I didnt hear or respond to him, he came in to let me know. It startled me. Dont know if I went out right away. I just remembered being in the car and my father saying to me, why did you not come. I dont really know, maybe I had a seiz. He had asked me do you know where you are? It made me more upset. I was already upset I had a seiz. It was all a blur what really happened. He had said I never had a seiz where I didnt respond. I told him Its nothing new. I have them too. I dont like it when people say that. Its best when they dont make a big deal about it. To act like nothing happened.
Comment by Jennifer Schnegg — September 7, 2010 @ 9:15 PMSep -04:00Sep
Sigh. Oh Jennifer, I would have been in torrents of tears. My heart goes out to you…
Comment by Phylis Feiner Johnson — September 7, 2010 @ 9:15 PMSep -04:00Sep
Hi Charlie, glad to have you with us. I know what you meant by the third rail. In CA, we have BART (Bay Area Rapid Transit.) When they first started making it, they made it clear that a person would get an electric shock and possibly die from stepping or falling on the middle rail.
It is the same with Amtrak, I think. Charlie which one are you talking about? I hope you get your driver’s license back.
Comment by Ruth Brown — September 8, 2010 @ 9:15 AMSep -04:00Sep
1. My husband and I came to important decisions and we are going to act on them.
2. I am glad Jennifer stayed off of the internet for a day. We all need that. Think of the positive things that happened that day.
3. Thankful that Charlie has joined us to give us more positive things in his/her life.
4. Housework is easier to do than working in a factory or in front of a computer. It has a lot of variety that makes feel good about accomplishing something important.
Comment by Ruth Brown — September 8, 2010 @ 9:15 AMSep -04:00Sep
What decisions did you and your husband make? If I’m too nosy, ignore my question!
Comment by Phylis Feiner Johnson — September 8, 2010 @ 9:15 AMSep -04:00Sep
well, today I felt miserable, not really sure if it was from being still emotionally drained or physically drained.
1. didnt have to clean since I cleaned when I got home from being out
2. doing alot of physical work, gets my mind off of the frustrations from being emotionally upset
3. I have you all for listening to me
4. I have music tomorow, excited and am looking forward to it
5. my phone is working again
6. my parents that help me all they can
7. well, did have 1 simple partial, at least it wasnt many or a complex partial
well ruth, im not sure if there isnt any change in seiz number yet, im going to have to do it for more than 1 day.
Comment by Jennifer Schnegg — September 8, 2010 @ 9:15 AMSep -04:00Sep
Diversions are always a good way to take your mind off your troubles. I walk…and walk…and walk.
Sometimes I shoot some film…other times I read.
Whatever it takes!
Comment by Phylis Feiner Johnson — September 8, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, have you tried keeping a daily seizure diary noting your sleep patterns, what you eat, your activities, emotional events…how you feel before a seizure (auras?), during a seizure and afterwards…plus the duration of the seizure.
That might help you identify your triggers in a positive way and help you gain more control.
Also, see “How to Stop a Seizure” http://epilepsytalk.com/2010/04/23/seizure-interruptions/
Comment by Phylis Feiner Johnson — September 8, 2010 @ 9:15 AMSep -04:00Sep
Hi phylis, No I have not done it in a very long time. But, I will now. I have now already written what I ate and did and time of each. Im going to lay down now and see if I can sleep. Im tired. I know its only 9 pm.
Comment by Jennifer Schnegg — September 8, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, Get some sleep and try to start today anew.
I know you’re still emotionally exhausted and that takes it’s toll…in every way.
But remember, you’re a terrific person and you’re loved. (Just in case you wondered!)
Comment by Phylis Feiner Johnson — September 8, 2010 @ 9:15 PMSep -04:00Sep
1. Thank you for the card Phylis!! You cheered me up!!
2. I no longer feel quilty
3. I put a poem in my poetry group
4. I put a story in my poetry group
5. For the first time this year I got inspired to write a poem.
6. All of these things added up, ends the day with me feeling great!!
Comment by Ruth Brown — September 8, 2010 @ 9:15 AMSep -04:00Sep
Ok…so where’s the poem?
Comment by Phylis Feiner Johnson — September 8, 2010 @ 9:15 PMSep -04:00Sep
Hi
its me and its been a good day
1. got cleaning done
2. fell asleep fast yesterday
3. music went good
4. caught my cat after he got loose
5. my mother had a great idea what color would look good in my computer room
6. wrote in my book today what I did and ate
talk to everyone tomorow
Comment by Jennifer Schnegg — September 9, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, what color did your mother suggest for your computer room?
1. I saw my podiatrist and my feet are great.
2. I no longer feel quilty or apologitic.
3. Dinner is ready so I have to go now, yummy
Comment by Ruth Brown — September 9, 2010 @ 9:15 AMSep -04:00Sep
Good for you Ruth. DUMP THAT GUILT!
Comment by Phylis Feiner Johnson — September 9, 2010 @ 9:15 PMSep -04:00Sep
hi Ruth,
well she suggested 3 colors, three shades of a warm orange.
I have a request:please pray for Reem, my friend. She is having some problems in the home. Thanks
Comment by Jennifer Schnegg — September 9, 2010 @ 9:15 AMSep -04:00Sep
I hope you don’t mind a little poem I wrote a couple months ago. It’s titled “40″ because that’s how many years I’ve lived with Epilepsy. My Sister said it should really be “50″ cause I really didn’t count the years they were trying to figure out what was ‘wrong’ with me.
40
by Charlie
40 days doesn’t seem that long,
40 years, really does
When your life is a struggle,
One day, is enough.
40 years Moses wandered,
The hot desert sand,
Hoping to find,
The Lords ‘Promised Land’
40 days seems quite different,
Or so it would seem.
Unless you were Noah,
who wandered the Sea’s.
Such is the way,
We travel through life.
One day at a time,
filled with ease, or with strife.
We welcome the good days,
That we’re happy to see.
We claw through the bad ones,
Much worse, they could be.
40 days, or 40 years,
All start with an hour.
Apart, we might seem weak,
But with God,we have power.
So when we’re feeling alone,
And it’s so hard to see,
There are plenty of others,
Just like You,and like Me.
Comment by Charlie — September 9, 2010 @ 9:15 AMSep -04:00Sep
OMG Charlie, that’s so wonderful..and true.
You have such insight and talent. WE WANT MORE!!!
Comment by Phylis Feiner Johnson — September 9, 2010 @ 9:15 PMSep -04:00Sep
Hi Charlie, I love your poem. I write some poetry as well. Poetry is something we have to be cheerful about.
Comment by Ruth Brown — September 9, 2010 @ 9:15 AMSep -04:00Sep
OK Ruth, Bring it on!!!
Comment by Phylis Feiner Johnson — September 9, 2010 @ 9:15 PMSep -04:00Sep
im thankfull
1.I finally finished sweeping, I really didnt want to do it this morning
2. a beautifull day
3. music
4. my cat didnt try to escape today
5. naps
Comment by Jennifer Schnegg — September 10, 2010 @ 9:15 AMSep -04:00Sep
I am thankful for:
1. My husband is finally going to hire someone to get rid of the spiders in the house.
2. My husband changed doctors
3. It is beautiful weather today.
4. I am going to do housework today.
5. I hope Charlie will put more poems in here.
Comment by Ruth Brown — September 10, 2010 @ 9:15 AMSep -04:00Sep
im greatfull:
1. my mother came over for 2 hrs today
2.quincey my dog is clean now
3. he was patient again while I washed his hair
4. for this website
5. it is a good day all the way around, im happy
Comment by Jennifer Schnegg — September 10, 2010 @ 9:15 AMSep -04:00Sep
LONELINESS
Lonelienss is different than depression
It is caused by iisolation
How do you isolate yourself?
One way is by staying away from people
Computers, TV, cell phones and text messaging
These technologies keep us from talking to people
We need eye to eye contact with other people
Actually talking to our neighbors, families and friends
Instead of doing this by e-mail, actually visiting friends
If we do not, we can have depression and loneliness
Is actually loneliness caused by isolation away from other people?
Do not allow this to happen to you!!
Talk to family at dinner, instead of watching TV
Smile and laugh with your family and friends
Comment by Ruth Brown — September 10, 2010 @ 9:15 AMSep -04:00Sep
That’s so lovely Ruth. And, unfortunately, so true…
Comment by Phylis Feiner Johnson — September 10, 2010 @ 9:15 PMSep -04:00Sep
Hi y’all,
Thanks for the nice comments on my little poem, the other day. Until I feel creative again, why don’t one of you throw something out there?
BTW That was an Excellent piece on loneliness, Ruth.
One of the many things I’m thankful for is my faith. Believing in God helps pull me out of those lonely times and lets me know I’m never truly alone. Today was a good day and I’m expecting tommorrow to be also.
Comment by Charlie — September 12, 2010 @ 9:15 AMSep -04:00Sep
Epilepsy was my dirty secret,
Carefully hidden in my back pocket…
Until I realized I was mistaken.
It is what I have, but it’s not who I am,
And so I proclaim to the world,
“bring it on” if you want to…
I’m no stranger to pain.
Comment by Phylis Feiner Johnson — September 12, 2010 @ 9:15 PMSep -04:00Sep
My list:
1. I have a positive attitude today
2. I feel good
3. In a minute, I will have to eat breakfast
4. I am doing research on guilt
5. I have a lot to do today
Comment by Ruth Brown — September 10, 2010 @ 9:15 PMSep -04:00Sep
Go get that guilt and shake it off!!!
Comment by Phylis Feiner Johnson — September 10, 2010 @ 9:15 PMSep -04:00Sep
Hi,
1. gone out for the day, it makes me feel free to go out shop by myself.
2. mother came for 1/2hr today
3. only 1 small seiz.
4. stayed off computer except to write this
5. talked to boyfriend on phone
6. feel good and lots of energy
7. put new strings on my guitar, it took 1hr or more, maybe coz I didnt really know how to do it till I figured out, and coz I didnt have a string winder and it takes longer without
Comment by Jennifer Schnegg — September 11, 2010 @ 9:15 AMSep -04:00Sep
Wow Jennifer, you had a productive day!
Comment by Phylis Feiner Johnson — September 11, 2010 @ 9:15 PMSep -04:00Sep
Today’s List:
1. We’re going to dinner tonight with the new Executive Director of our local Epilepsy Foundation.
2. She’s offered to put an ad about our website into a dinner-dance program.
3. I was able to trade in my American Express Rewards Points into a $1,000 donation to my local Epilepsy Foundation.
4. It’s a beautiful day!
5. I’m only going to work 1/2 of the day!
Comment by Phylis Feiner Johnson — September 11, 2010 @ 9:15 PMSep -04:00Sep
hi
I had the most awfull migrain earlier after a complex partial. thankfully its over after 2hr rest. I have not had one like this before in a long long time.
1. thankfull its over
2. naps
3. i’ll c raymond tomorow, my boyfriend
4. i cleaned this morning
5. this website
5.
Comment by Jennifer Schnegg — September 12, 2010 @ 9:15 AMSep -04:00Sep
I had the most awfull migrain after a complex seiz..I had to lay down and sleep it off. I didnt even think to take anything for it. I havent had one of these in a long long time ago. I hope I wont have another.
I cleaned this morning but now after my nap I feel I havent done anything. Naps will do that to me.
thankfull:
1. its over
2. for naps
3. I cleaned this morning
4. this website
5. phylis and ruth, for all their support
Comment by Jennifer Schnegg — September 12, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, Migraines and seizures are not mutually exclusive:
People with epilepsy are more than twice as likely to develop migraine headaches as those without the disorder. Research showed that more than 20 percent of people with epilepsy have migraines, compared to 11 percent of the general population.
Evidence supports the coexistence of migraines with the following conditions:
* In migraine sufferers, 6% are epileptic, more than ten times than the general population.
* In one study, people and their relatives who are diagnosed with epilepsy were found to be approximately 2.4 times more likely to have migraines than the control group.
* In another epilepsy study, about 16% of those people who had migraines also experienced epileptic seizures before, during or after a migraine.
* While most migraine sufferers do not have epilepsy and most epileptics do not suffer from migraines, these findings still indicate a significant “overlap” of both of these conditions.
Epilepsy and migraines share common features, including the fact that both are episodic. Also, they share many common triggers and symptoms. A person may have a seizure on one occasion and a classic attack of migraine on another.
Both share common treatment options as well. The goal is to eliminate the events and prevent side effects, too. So, when a person has both epilepsy and migraines, it is logical to try to “consolidate” treatments and use one medication for both conditions.
Research shows that Depacon (Valproate) and Topamax (Topiramate) are effective in treating migraines and epilepsy. And each has FDA approval for treating them together. Depakote (Divalproex Sodium) also works for both, creating a therapeutic “two-fer.”
There are also several other antiepileptic drugs that have also been shown to lessen migraine headaches – such as Neurontin (Gabapentin), Keppra ( Levetiracetam) and Zonegran (Zonisamide). However, the dose of AEDs in the treatment of migraines is usually lower than that used for epilepsy.
Hope you don’t have another migraine any time soon…
Comment by Phylis Feiner Johnson — September 12, 2010 @ 9:15 AMSep -04:00Sep
I think im in need of reassurement today. I had2 atonic seiz and mayb a few simple partial seiz. I feel misurable. I feel like screaming. Today I hate having epilepsy. What is it good for, anyway. I also hate fleas, they are making my poor dog scratch his hair out, even though I put some stuff on him.
Comment by Jennifer Schnegg — September 13, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, you are loved, epilepsy or not. Some days are totally lousy and some are better.
Yesterday, I erased a complete document and had to spend the rest of the day recreating it and putting it together. I was NOT a happy camper.
But I was happy that:
1. I had a great dinner with the Executive Director of our local Epilepsy Foundation
2. We brainstormed and had some terric ideas
3. Arthur was able to give her some wonderful wines for the golf outing silent auction
4. I was able to give her her first “grown up” briefcase (she’s only 28, but full of fire) which she loved
5. We’re developing a good relationship which I hope will lead to more events, more participation, better education, awareness and fund-raising for research.
Comment by Phylis Feiner Johnson — September 13, 2010 @ 9:15 PMSep -04:00Sep
hi, well i can say im greatfull:
1. i didnt hurt myself when falling
2. I have you guys to help me during my rough days
ill finish this later
Comment by Jennifer Schnegg — September 13, 2010 @ 9:15 PMSep -04:00Sep
Feel BETTER!
Comment by Phylis Feiner Johnson — September 14, 2010 @ 9:15 AMSep -04:00Sep
yes phylis, I do feel better
Im greatfull
1. my dog had not scratched all of his hair out (yet)
2. the epilepsy support group was successfull, I even got to play some of the guitar peices I had learned
3. I dont have a migrain today like I did last night again
4. I got alot of cleaning done, vacumn, mop, laundary, bath quincey(my dog)
5. I got time warner cable company to see why my phone wasnt working and fix it
Comment by Jennifer Schnegg — September 14, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, I’m glad you’ve had a good day!Many more I hope.
My Thankful list.
1-My friend Charlene who almost drowned and was on life support, is off the respirator and things are looking good for total recovery.
2 My Brother-in-laws cancer surgery went well and they believe they got it all.
3 I’m alive another day
4- I live in a great country.
5- The small things in life
Comment by Charlie — September 14, 2010 @ 9:15 PMSep -04:00Sep
Fingers crossed for both Charlene and your brother-in-law…
Comment by Phylis Feiner Johnson — September 14, 2010 @ 9:15 PMSep -04:00Sep
Jennifer, GOOD for you for joining a support group. Where is it and how did it get started? We sure need more of those.
Comment by Phylis Feiner Johnson — September 14, 2010 @ 9:15 PMSep -04:00Sep
I dont know how I found about it, i’ve been going for many years. Its not big, but good enouph for us. Im in NC. We try to get the word out about it. Most people that are looking to go to it are 1/2 hr away and dont want to make the trip. We have about 12 people. I think the epilepsy foundation here told us about it. I guess you could advertise about having a group, when you provide information about epilepsy. Maybe you might even start a group. Best of luck.
Comment by Jennifer Schnegg — September 14, 2010 @ 9:15 PMSep -04:00Sep
Half an hour here is nothing! EVERYTHING is at least 1/2 an hour away. But GOOD for you for being so resourceful!
Comment by Phylis Feiner Johnson — September 14, 2010 @ 9:15 PMSep -04:00Sep
Today’s list:
1. Grateful that we have a wonderful new Ex Director of our local Epilepsy Foundation
2. Had a wonderful, productive dinner with her Saturday night
3. She and I brainstorm wonderfully together
4. She wants to come out here to collaborate more and talk about ideas
5. Thrilled that I can help!
Comment by Phylis Feiner Johnson — September 14, 2010 @ 9:15 PMSep -04:00Sep
well, im greatfull:
1. today is a good day
2. I cooked a good meal, the GARD diet way
3. I cleaned a bit
4. pulled some weeds
5. The GARD diet isnt so hard after all, Just got to start with fresh food instead of packaged, and as far as seasoning food, salt, pepper, and herbs does the trick
And as dessert, just have to do research, and youl find something new to try that is allowed in the diet
I have already found some interesting foods to try
Comment by Jennifer Schnegg — September 15, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, you have my undying admiration and respect. I don’t think I could do the G.A.R.D. if someone had a gun to my head.
(Keep in mind that I’m allergic to all mammals, so I’m already very limited in what I can eat!)
Comment by Phylis Feiner Johnson — September 15, 2010 @ 9:15 AMSep -04:00Sep
phylis, I just hate giving up yogurt.
but im greatfull for
1. ricemilk icecream I can buy or make
2. all the wonderfull foods I can try that havent yet explored yet
3. my mother came over 2 hrs today
4. we had a good time
5. I have music tomorow
Comment by Jennifer Schnegg — September 15, 2010 @ 9:15 AMSep -04:00Sep
you say your allergic to all mammels, what happens if you do eat it?
I get terrible colitis and basically, my colon starts to lose its lining.
Comment by Jennifer Schnegg — September 18, 2010 @ 9:15 AMSep -04:00Sep
You all are my Hero’s, I applaud each of you and your positive mind set. We all face adversity in different ways, my way is through my faith. I don’t know your all’s faith, but I’d like to share a verse that means so much to me.
I am the LORD your God. I am holding your hand, so don’t be afraid.
Isaiah 41:13 (NIV)
Keep on truckin’.
Comment by Charlie — September 15, 2010 @ 9:15 PMSep -04:00Sep
Thanks so very much Charlie…both for the prayers and the sentiments!
Comment by Phylis Feiner Johnson — September 15, 2010 @ 9:15 PMSep -04:00Sep
Charlie, that is a beautiful verse from the Bible.
I am thankful for:
1. I am through with research for my daughter and grand daughter.
2. I can think of more positive things.
3. I slept in and did not have time for coffee.
4. I am thankful for Gratitude is the Attitude.
5. I am looking forward to another day.
Comment by Ruth Brown — September 16, 2010 @ 9:15 AMSep -04:00Sep
Doesn’t sound like “Gratitude was the Attitude” with your daughter. I’m sorry.
Comment by Phylis Feiner Johnson — September 16, 2010 @ 9:15 AMSep -04:00Sep
Surprisingly, it is Gratitude is the Attitude. I was writing down 7 generations of family for them and then I was going to mail it off. I was almost finished.
Everything I said about my husband’s side of the family will be denied by the rest of the family. She still needs the dates. I told her which family member to call up about the dates. I do not have them either. I could not get them. I could if I did more research. I promised my father-in-law that I would not do the research and I have not. The same with my mother-in-laws family, on my husband’s side.
So, the information that I have is very sketchy. My daughter will find no information on that side of the family, exept the present generation. Since Brown is a common name, she will not find out anything. She will be told that I have the wrong information, which is very possible. I just took them at their word. No dates!!
The rest of my family history, I gave her the links and she can get the dates. I all ready have the dates. She will not get them from me, now.
Less work for me!! She did not like something I said yesterday. It is true. It is surprising what facts you find out that you do not like when doing a family tree. You have to take it with a grain of salt.
I can go on with my life and let her do the work. It is a school project for my grand daughter.
Comment by Ruth Brown — September 16, 2010 @ 9:15 AMSep -04:00Sep
With all the “families” I was part of, it would be more like a family VINE!
I surely would NOT want to go there. Even to one branch.
Comment by Phylis Feiner Johnson — September 16, 2010 @ 9:15 AMSep -04:00Sep
well,
Im upset with my boyfriend. but:
1. tomorrow is a new day
2. im going to invite a friend over this week I hope
3. my mother and I will start to paint my computer room next week
4. my music teacher is sick today so instead of 1/2 hr lesson we will do 1hr lesson
5. I have my music to comfort me
6. I talked to reem today
7. I have you ruth and phylis that offer an ear to listen
8. my dog, quincey
9. my 2 loving cats, 1 that thinks he is everything, a lover boy, loves to be panpered
10. my own appartment
11. am not worst than I am
12. loving parents where my mother will do anything to help me
13. I have learned to relate to my mother better, I used to be a pest , it took deaths of relatives that passed away from cancer for me to realize, what if my mother were to go too. Would I regret it? I dont like to think how bad I was. up till 3 yrs ago I rebelled everything my mother said. Im ashamed to think about it.
14. have changed and am not the same as then
Comment by Jennifer Schnegg — September 16, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, you do not have to be ashamed of the past. Just go forward with the present and future. You have learned your lesson. You can be grateful for that.
We all change, hopefully for the better.
I am grateful to have you as a friend.
Comment by Ruth Brown — September 16, 2010 @ 9:15 PMSep -04:00Sep
My List:
1. Finally finished the copy for the annual EFEPA Silent Auction
2. Helping
3. Feeling productive
4. The insights of Ruth, Jennifer and Charlie
5. Arthur’s generosity
Comment by Phylis Feiner Johnson — September 16, 2010 @ 9:15 PMSep -04:00Sep
hi everyone
today has been
im greatfull for:
1. a seiz free day
2. friend of mine Retta is coming to visit today
3. got cleaning done
4. im happy
5. excited for the new adventure in cooking my new GARD diet
6. ill tell everyone how it goes
Comment by Jennifer Schnegg — September 17, 2010 @ 9:15 AMSep -04:00Sep
You go girl!
Comment by Phylis Feiner Johnson — September 17, 2010 @ 9:15 AMSep -04:00Sep
L am grateful for:
1. No seizures today
2. My daughter gets to do all of the work on the family tree.
3. I am going for a walk to get my medicine
4. I did some housework
Comment by Ruth Brown — September 17, 2010 @ 9:15 AMSep -04:00Sep
Hi,
im frustrated today because I have places to go and want to be able to go without anyone having to take me.
If I go with my father to aldies food grocery store, I almost always have a seiz. Dont know why. Maybe coz I have had them with 3 friends of mine at separate occasions, I may have this anxiety of” oh my, am I going to have a seiz again?”
I also want to go to Target department store.
I hate it. Its frustrating, the transportation issue.
I also have some foods I want to try. Just anxious about getting it and how much its going to cost, and which to get first. Also I cant get it all at the same time.
I find I have anxieties about alot of things. Like “what if this …. is going to happen, what if I cant handle it” about a lot of situations. What do you do phylis. I read you have anxieties, or panic attacks?
im greatfull,
1. I had a great time with my friend yesterday
2. my seiz this morning was not a complex partial
3. I accidently ate a forbitten food yesterday
4. I find, untill I find out exactly what foods dont have the forbitten foods in my list, it will take a process of learning it all
5. im still fully commited in this
Comment by Jennifer Schnegg — September 17, 2010 @ 9:15 PMSep -04:00Sep
You probably get so anxious about going out with your dad because he’s so impatient and not terribly understanding.
As for anxiety, Lamictal is an anti-anxiety and anti-seizure drug. So is Klonopin. And when I’m really going over the edge, I take 0.56 MG of Xanax.
Plus I walk and walk and walk. And write to try to divert myself.
Comment by Phylis Feiner Johnson — September 18, 2010 @ 9:15 AMSep -04:00Sep
im greatfull to :
1. phylis’s knowledgeand help
2. made homemade lemonade, and no artifitial flavor, just a little added sugar
3. made homemade ricemilk, I found several different recipies
4. I did get to go to aldies grocery store without problems, father even took me
5. didnt do much cleaning, took it easy, relaxed
Comment by Jennifer Schnegg — September 18, 2010 @ 9:15 AMSep -04:00Sep
Heartfelt thanks.
Comment by Phylis Feiner Johnson — September 18, 2010 @ 9:15 AMSep -04:00Sep
I had a great day.
I went for a walk
I relaxed and forgot about problems
I am going to change doctors, I am tired of her nagging me.
I am looking forward to buying fall clothes next monoth.
Comment by Ruth Brown — September 18, 2010 @ 9:15 PMSep -04:00Sep
Changing doctors is long overdie. Is it an insurance requirement? Anyway, I’m happy you’re finally able do it…
Comment by Phylis Feiner Johnson — September 18, 2010 @ 9:15 PMSep -04:00Sep
Hi all,
Today’s short list of Thankful stuff.
1) had a great time with friend’s at dinner last night,
2) For my Dr’s. They’re the best.
3) That I have food and clean drinking water.
4) that eventhough some days might be a challenge, I muster up the strength and push on.
5) That I’m able to work.
6) for you all
Oop’s my short list is becoming my long list, so I’ll quit there.
Comment by Charlie — September 18, 2010 @ 9:15 PMSep -04:00Sep
Hey Charlie, you’re “allowed” to go to 10,or however many things you feel gtateful for.
I’m really happy you’ve got good docs, as Ruth can tell you, thery’re few and far between…
Comment by Phylis Feiner Johnson — September 18, 2010 @ 9:15 PMSep -04:00Sep
Maybe I should have said…”I have Good Dr’s. NOW.
I’ve been the same route like some of you all, I’m sure. I’ve been through years and years of “Practitianor’s” where they actually “Practiced”on me.
The good one’s are out there,but like Ruth said [they're just hard to find sometimes].
I’m so Thankful to see that the Surgeon that operated was near the top of Phylis’s list of Good one’s.
Never Give Up!
Today’s other Thankful thing..
I live in a Free Country where I can go to church today and not be persecuted and or imprisioned.
Comment by Charlie — September 19, 2010 @ 9:15 PMSep -04:00Sep
Charlie, sometimes you have to kiss a lot of frogs before you find your doc!
Comment by Phylis Feiner Johnson — September 20, 2010 @ 9:15 AMSep -04:00Sep
hi,
im thankfull for:
1. I only have to pay 2,800$ (which is alot) but at least its not 14,000-15,000$ for my vagus nerve surgery replacement
2. im still having simple partial seiz, but im still hopefull the diet will work (I just started it)
3. raymond came over yesterday
4. and we are toing to see a guitar concert today, bluegrass and jazz music
5. I slept good last night
Comment by Jennifer Schnegg — September 19, 2010 @ 9:15 PMSep -04:00Sep
1. I awoke alive
2. I am debating on whether on changing doctors. Bob changed doctors. Will that be a conflict of interests if I stay with my same doctor? She is the best in town. Bob and I can have different doctors.
3. It is going to be a beautiful day, in the high 80′s.
4. I had a good breakfast. I had oatmeal, milk and an apple.
5. I am eating better.
6. I am getting into the swing of exercising.
Comment by Ruth Brown — September 19, 2010 @ 9:15 PMSep -04:00Sep
Hi ruth, I personally would keep your old dr, since you like her and she know’s your history. Since you and other dr. dont like each other, I would not go to him. Im sure your husband will understand.
Comment by Jennifer Schnegg — September 19, 2010 @ 9:15 PMSep -04:00Sep
hi,
im frustrated coz my boyfriend knows im doing this way of eating, and keeps thinking im doing this to loose weight. What frustrated me was today he got a cherry dessert after his lunch today. I of coarse got a salad with roast chicken on it. It really frustrated me. I wanted to get one too. He normally wouldnt do it. I dont think he did it to make me frustrated. I just think he shouldnt have done it. What do you think? Should I have said something?
Comment by Jennifer Schnegg — September 19, 2010 @ 9:15 PMSep -04:00Sep
Jennifer, I have diabetes and I have to eat a special diet. There are foods that I cannot have, like choclate cake and a lot of other things that I cannot have. He feels that he does not have to be on my diet.
Your husband is not doing it to wreck your diet. Are you on the GARD diet? Whichever diet you are on, maybe he does not want to be on it. Maybe he feels that you can use self-control. I know that a lot of times I give into the temptations.
I recommend that you sit down and talk nicely to him to find out what he is thinking and how he feels about the whole thing.
Comment by Ruth Brown — September 20, 2010 @ 9:15 AMSep -04:00Sep
I talked with him and he told me, if I wanted to eat something sweet then I could have gotten 1 too. He said I chose to eat this way. He chooses not to.
Comment by Jennifer Schnegg — September 20, 2010 @ 9:15 AMSep -04:00Sep
Frankly, I don’t think he gets it. I think you should sit down with him and explain WHAT the GARD diet does, WHY you’re on it and what you HOPE to achieve.
Until he understands the reason and importance of it, he’ll continue to misinterpret your intentensions (and keep on tormenting you with the offer of sweets!)
Of course HE doesn’t have to be on it, but he should respect your dedication and the purpose.
End of lecture.
Comment by Phylis Feiner Johnson — September 20, 2010 @ 9:15 PMSep -04:00Sep
yes ruth, im tryin the GARD diet. He seems to think im doing it to loose weight. Im just starting out with it. It isnt easy to not give in to tempation, since I also like sweet stuff too.
Comment by Jennifer Schnegg — September 20, 2010 @ 9:15 AMSep -04:00Sep
Today’s List:
1. I finally finished researching and writing the article about “FREE Legal Resources” and had time to post it on the forums
2. I got tons of stuff done yesterday
3. We had yummy Thai dinner with a favorite friend
4.There were 110 visits to Epilepsy Talk yesterday!
5. I think (or hope) that I’m helping other people. But I’d like to do more…
Comment by Phylis Feiner Johnson — September 20, 2010 @ 9:15 AMSep -04:00Sep
im greatfull for:
1. my parents
2. have no kids
3. I enjoyed the guitar concert we listened to
4. tomorow being monday
I had many sinple partials today around 3:30pm but
5. am glad it wasnt a complex partial or worse
6. raymond and I talked about my frustrations
Comment by Jennifer Schnegg — September 20, 2010 @ 9:15 AMSep -04:00Sep
GREAT! Is Raymond on board with the GARD diet now? (See previous suggestions above…)
Comment by Phylis Feiner Johnson — September 20, 2010 @ 9:15 PMSep -04:00Sep
we talked and aggreed that I didnt care what he ate as long it wasnt desserts till I have some homemade the guard way.
I think he gets it now.
Comment by Jennifer Schnegg — September 20, 2010 @ 9:15 PMSep -04:00Sep
you’re doing a fantastic job Phylis! If you even help ONE person (I know it’s a lot more than that) you’ve done more than most people can imagine!
Keep it up!
Just read the long list of thankful things it boggle’s my mind.
Comment by Charlie — September 20, 2010 @ 9:15 AMSep -04:00Sep
Thanks!
Comment by Phylis Feiner Johnson — September 20, 2010 @ 9:15 PMSep -04:00Sep
Charlie, you too have strong encouraging words. thanks
Comment by Jennifer Schnegg — September 20, 2010 @ 9:15 AMSep -04:00Sep
Hi Jennifer, my husband said it was up to me as to what doctor I decided on. I called her and she did not call me back. She has threatened to put me in a retirement home in the past. I know she will do it this time.
1. I feel better changing doctors. The change takes place October 1.
2. She did not want me to exercise. As a diabetic, I have to or I will get neuropathy real bad. She seems to have Alzhiemers or demetia.
3. I have started exercising 3 days in a row now at the same time.
4. Charlie, your words are encouraging me. You are helping me.
5. Exercise turns flab into muscle.
Comment by Ruth Brown — September 21, 2010 @ 9:15 AMSep -04:00Sep
Good for you Ruth. Stick to your guns! I’m real proud of you!
Comment by Phylis Feiner Johnson — September 21, 2010 @ 9:15 AMSep -04:00Sep
oh ruth, I didnt know it was THAT bad between you and your dr. Well then, I would change dr. too.
Comment by Jennifer Schnegg — September 21, 2010 @ 9:15 AMSep -04:00Sep
im greatfull
1. ruth came to a wise decision
2. raymond understands now
3. I vacumned, moped, still need to dust
4. im often greatfull I dont have kids, I dont think my body will be able to handle the stress of raising them
5. quincey my dog is enouph, can always get another pup if I feel I want another. but not till both my cats pass away
6. beautifull day
7. raymond and I went to a nice quitar concert yesterday
8. got laundary done
9. fixed me a nice salad with spinach, salad greens, carrots, cauliflower, hot pepper, salt and pepper
10. also fixed brown rice
11. will fix ground turkey meat with tomatoes and left over rice
12. oh yea, I fixed an omlett with egg and broccoli
raymond told me gluten free food tasts nasty, is it true?
Also,
Comment by Jennifer Schnegg — September 21, 2010 @ 9:15 AMSep -04:00Sep
I don’t know anything about gluten-free food (nor maybe does Raymond), but I’m proud of you for your enthusiasm, your progress and your perseverence!
Comment by Phylis Feiner Johnson — September 21, 2010 @ 9:15 AMSep -04:00Sep
Im greatfull for
1. my dog quincey
2. my cats ellie and charley
3. I have my own home
4. got some cleaning done, but not all of it
5. I have a strong family support
6. I still have tomorow to finish cleaning
7. I have music tomorow
8. today’s a beautifull day
9. I have support from ruth, phylis, and charlie
10. I have all the food and everything I need
11. Raymond and I love each other very much
12. and many other things
Yes im writing a long list because im trying not to cry.
Comment by Jennifer Schnegg — September 22, 2010 @ 9:15 AMSep -04:00Sep
Im crying because of my friend reem’s struggles and I cant help her.
Comment by Jennifer Schnegg — September 22, 2010 @ 9:15 AMSep -04:00Sep
See my comments in “Where.” Call me on my cell (610) 517-7576 or email me direct at pfj@pfjohnson.com.
We’ll get through this and see Reem emerges on the other side.
Comment by Phylis Feiner Johnson — September 22, 2010 @ 9:15 AMSep -04:00Sep
Thanks so much. I dont know why it affects me so much. I guess because I know how she feels. We have experianced many of the same things. I talk with her online. I met her on the other epilepsy site where I met you. I talk with her daily. she is 7 hr difference between us. Thanks so much for your help.
Comment by Jennifer Schnegg — September 22, 2010 @ 9:15 AMSep -04:00Sep
What can I do to help you?
Comment by Phylis Feiner Johnson — September 22, 2010 @ 9:15 PMSep -04:00Sep
phylis, I talked with reem today. I asked her what she does when she tries to hurt herself. She says scratch herself. She also says she wants to stop but doesnt know how to.
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 AMSep -04:00Sep
Yes you can! See the email I sent to you this AM.
Comment by Phylis Feiner Johnson — September 23, 2010 @ 9:15 PMSep -04:00Sep
Thankful list for today…
1 I have a friend named Lora in Fl. that is coming to the end of her life and is Graduating to Heaven. I know the frustration of not being “There” and feeling helpless, but I found a really cheap flight, that I’m Thankful for, and If I get there in time, I’ll see her again. I owe her a lot for all the miles she used getting me from Dr to Dr, shopping, Church, you name it.
I’m thankful for her life and I know God has a special place in Heaven for her.
I’m also thankful that I will be able to renew my License while I’m there, in anticipation of my future day behind the wheel.
I’m thankful that I’ll get to see my Brother-in-law who had sucessful cancer Surgery 2 weeks ago.
Just this AM, I was thinking that none of these things could happen.
Sometimes when we think all the doors are shutting in our face, we find a door that was left unlocked for us, so we could do the things we thought ‘impossible’.
Bless you all!
Comment by Charlie — September 22, 2010 @ 9:15 AMSep -04:00Sep
My grandmother said: “When God closes one door, he opens another.” I hope that is true for all of you and all of those you love.
Comment by Phylis Feiner Johnson — September 22, 2010 @ 9:15 PMSep -04:00Sep
im greatfull for:
1. music went good today
2. talked to reem today
3. I get to play music at the coffee shop saterday
4. no seiz today or yesterday
5. raymond took me to get my meds today
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 AMSep -04:00Sep
How did things go with Reem? What kind of music are you playing at the coffee house? Congratulations on your music gig. It must be very exciting!
Comment by Phylis Feiner Johnson — September 23, 2010 @ 9:15 PMSep -04:00Sep
It went ok with reem. I didnt press the issue what she should do, at the present moment.
I and other students at the studio I take lessons from, play 1x mo. at a local coffee shop. Most players are much younger than I. There are some electric guitar players and accoustic guitar players. Im the only one that plays the classical guitar and classical music. it has nylon strings and do finger picking. Thats without playing with a pick and using the fingers instead. The others use a pick. If you know what I mean. If I knew how to post a picture of me holding the guitar, I would.
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 PMSep -04:00Sep
phylis, is there anything that I can suggest to reem that may be easier to stop this hurting herself. I truely think she wants to stop, but doesnt know what to do. She told me she wants to. Any suggestions will help.
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 AMSep -04:00Sep
I think you need to get her counseling, whether it’s through the Epilesy Foundation (do the have an Epilepsy Foundation in Egypt?) You’ve got to get her out of that house. And you have to explore her options. Because, frankly, I think she’s too paralized with depression and fear to move on any type of action.
Comment by Phylis Feiner Johnson — September 23, 2010 @ 9:15 PMSep -04:00Sep
Jennifer, I recommend that you suggest to her that she sees a psychiatrist. That would be a big help to her. In the meantime, she should wear a helmet, so she does not get a concussion or really hurt herself.
Does she have headaches before she bangs her head? Has she talked to her doctor? She has too.
Comment by Ruth Brown — September 23, 2010 @ 9:15 AMSep -04:00Sep
Phylis,
when I said that she hurts herself, I meant she scratches herself with her hands. Yes she see’s a neurologist. She had a vagus nerve stimulator which had helped but, it made it hard for her to breath, even at a low setting.
She said she doesnt want to see a psyciatrist, her mother even had one come to their house, but she still didnt want to talk.
She has all the the things padded up so she wont hurt herself. She even has a bed with railing so she wont fall out.
Do you have any suggestions how I can convince her to speak with a psyciatrist? I will suggest her this site, and then she has others to talk with too.
I tryed to get through your email direct but it wont let me.
I had a few complex partials 3-4 maybe. Raymond said they are right now around 3:15pm. and usually that many. Short but many, which is usually the case.
I dont know if I should stay off from computer and tv if it would make a difference.
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 AMSep -04:00Sep
Are you keeping a daily seizure diary of: your sleep patterns, what you eat, any physical or emotion changes…what happens before a seizure (auras”?), during a seizure, how you feel after a seizure and the duration of the seizure.
This could help you better understand and control your seizures, plus give your doc some idea of what you’re going through.
See: http://epilepsytalk.com/2010/04/23/seizure-interruptions/
Comment by Phylis Feiner Johnson — September 23, 2010 @ 9:15 PMSep -04:00Sep
im greatfull:
1. my music lesson went good yesterday
2. reem is still talking to me
3. I have ruth and phylis to help
4. I have the thought to suggest telling reem about this site, it will help her more
5. freedom
6. no longer depressed like I was 10 yrs ago
7. a beautiful day
8. have everything I need
9. I will get rid of some of my other fears, non-seiz related
10. I have my creative hobbies, that I love to spend time doing
Comment by Jennifer Schnegg — September 23, 2010 @ 9:15 PMSep -04:00Sep
GOOD girl. And it’s a brilliant idea to direct Reem here, where she’ll be among friends….
Comment by Phylis Feiner Johnson — September 24, 2010 @ 9:15 AMSep -04:00Sep
My list today:
1. It would be great to have Reem here!!
2. Did everyone see the autumn happening in the sky last night? I hope so!! It only happens once every 19 years when the Harvest moon is on the same night that autumn starts. It was beautiful.
3. When I cannot sleep at night, I love watching the stars and moon as they move about.
4. My son and I love reading the Bible every night.
5. A thought: “Energy and persistence conquers all things.” – Benjamin Franklin
Comment by Ruth Brown — September 24, 2010 @ 9:15 AMSep -04:00Sep
Oh dear, I didn’t even know it was autumn.
I LOVE your quote…maybe we should do a “thought for the day” thread!
Hey Charlie, where did you go???
Comment by Phylis Feiner Johnson — September 24, 2010 @ 9:15 PMSep -04:00Sep
im greatfull:
1. walked 1/2 hr yesterday and today with my dog
2. I made something good to eat
3. father frustrated me again
4. I didnt let it cause me a seiz
5. but I did have a complex at 7pm
after I walked outside, it was hot outside
Comment by Jennifer Schnegg — September 24, 2010 @ 9:15 AMSep -04:00Sep
GOOD girl! You overcame your fear of walking alone. I’m proud of you.
Don’t let your Dad get to you. Just let his words wash over you like a waterfall.
Comment by Phylis Feiner Johnson — September 24, 2010 @ 9:15 PMSep -04:00Sep
Today’s grateful list:
1. I posted a new article on the forums
2. I finished the new skin care package…now I just have to edit it
3. I was asked to represent my EFEPA at a company barbeque in October
4. I’ll be making $2,500 for the EFEPA.
5. A fun EFEPA dinner is coming up this Tuesday
(Note: EFEPA is Epilepsy Foundation Eastern PA)
Comment by Phylis Feiner Johnson — September 24, 2010 @ 9:15 PMSep -04:00Sep
It brings tears to my eyes reading about all you perserverer’s winning small battles, and pushing on. We don’t fight a huge war all at once it’s these little battles that make us who we are. Congratulations Phylis and all of you. When we walk in ‘victory’ we don’t let negative people or situations beat us down.
My Thankful list…
My friend who was suffering has gone on to an ‘awesome’ place. I used to say ” a better place”, but I believe it’s gotta be awesome not just better.
2-A great wife
3 Another Day to experience
4)And all of you.
Gotta go my ride is calling.
God Bless you all
Comment by Charlie — September 24, 2010 @ 9:15 PMSep -04:00Sep
God bless you and your friend. We’ve missed you!
Comment by Phylis Feiner Johnson — September 24, 2010 @ 9:15 PMSep -04:00Sep
hi
im greatfull:
1. know how to make rice milk
2. found almond milk and will try it
3. went out for the day
4. music is tomorow at coffe shop (wish me luck I dont mess up)
5. only 1 complex seiz, not many
6. still very enthusiastic about my new eating habits
7. beautiful day
8. got to have 1 day without cleaning
5. I also found a healthy cereal made with outs, rice flour, raisons(excuse my spelling, its gone down hill a bit)
6.
6.
Comment by Jennifer Schnegg — September 25, 2010 @ 9:15 AMSep -04:00Sep
Jennifer, you know Almond Milk comes in sugar-free and regular. Plus you can get vanilla and chocolate, aside from the original.
Good luck tonight!
Comment by Phylis Feiner Johnson — September 25, 2010 @ 9:15 PMSep -04:00Sep
im not supposed to eat anything with artificial sweetener.
Comment by Jennifer Schnegg — September 26, 2010 @ 9:15 AMSep -04:00Sep
Good luck at the shop today,don’t worry about if you “mess up”. I’m sure you’ll do great. do you have to shop at a specialty store or ‘organic’ store to find the foods you need or do regular stores carry that? Keep up the good work.
Some of my Thankful list
I’m thankful that I got to meet my wife’s friends at her reunion last night.
That I was able to stay awake that late.
That I’ve learned more this past year about Epilepsy than the past 40 years. I learned a lot from Phylis.Thanks.
Have a blessed day
Comment by Charlie — September 25, 2010 @ 9:15 PMSep -04:00Sep
Guess what Charlie, I’ve had epilepsy for more than 40 years!!!
Comment by Phylis Feiner Johnson — September 25, 2010 @ 9:15 PMSep -04:00Sep
well, most grocery stores dont care many foods that dont contain any type of corn product(even corn syrup), wheat, milk, or beans. In other words, most processed foods contain that, and I cant eat it. I can eat all other foods, meaning fresh food you have to cook yourself. Too bad I cant eat my favorite homemade yogurt. Even if it doesnt help reduce seiz, I will be healthier all around. I find it exiting because I get to experiment with woods i’ve never eaten before.
Comment by Jennifer Schnegg — September 25, 2010 @ 9:15 PMSep -04:00Sep
I mean foods, not woods. I havent looked in health food stores yet. im sure they may have more of a selection of foods I can try.
Comment by Jennifer Schnegg — September 25, 2010 @ 9:15 PMSep -04:00Sep
well
the gig was canceled and noone told me.. I was a bit pissed at first coz I was looking forward to playing with them.
but, I was greatfull they at the shop let me play anyways by myself.
Comment by Jennifer Schnegg — September 26, 2010 @ 9:15 AMSep -04:00Sep
How did you do????
Comment by Phylis Feiner Johnson — September 26, 2010 @ 9:15 AMSep -04:00Sep
I did ok
there were only 6 customers, and
1. am greatfull to get to play anyway,
2. to be able to get out for 45 min..
I did mess up but not to were anyone to notice.
3. Im greatfull to have had the courage to play anyway
Comment by Jennifer Schnegg — September 26, 2010 @ 9:15 AMSep -04:00Sep
Good for you…next time there will be more!
Comment by Phylis Feiner Johnson — September 26, 2010 @ 9:15 PMSep -04:00Sep
Hi Jennifer, it will probably take you time to get use to your new diet. I am like you when it comes to yogurt. It is a healthy food and I have it for dessert almost everyday. I am not trying to discourage you. Keep up the good work!!
Charlie, I have had epilepsy for 61 years.
1. I am feeling better
2. I am glad that it is autumn
3. I am grateful for another day of life. It is important not to take life for granted.
4. I am glad that I will be changing doctors on the 1st of October.
5. My seizures are under control, today anyway.
Comment by Ruth Brown — September 26, 2010 @ 9:15 PMSep -04:00Sep
1. I was grateful that I was able to be there for my friend MJ at her mother’s funeral. (She is not talking to her brothers and sisters.)
2. I was happy to hear friends who have been living together for 20 YEARS are finally getting married!
3. Had a lovely, romantic dinner with Arthur last night. Ate like a trooper and still lost 2 pounds!
4. Helped 2 people on epilepsy.com who were really having a bad time
5. Grateful that I am able to help others in need.
Comment by Phylis Feiner Johnson — September 26, 2010 @ 9:15 PMSep -04:00Sep
I just got my bill for the surgery to get my VNS replacement.
You will not beleive how muvh the hospital charges
77,000 $
I mean people is that not a bit outragous!!
I only have to pay $2,700. Im greatfull of that.
Comment by Jennifer Schnegg — September 26, 2010 @ 9:15 PMSep -04:00Sep
Thank heavens for small favors!
Comment by Phylis Feiner Johnson — September 26, 2010 @ 9:15 PMSep -04:00Sep
my boyfriend bought some sandwhich meat and cheese and bread. I tell him that it wont stay at my house when he leaves for work in the morning. He told me just to tell myself not to eat it. I said its not that easy. I only see him 2 x wk. and the foodf will have to stay at my house 1 wk till saterday or sunday. I wont be able to stay away from it. He said then he will just have to go home after he eats it. If he goes home then he wont be back. Its a 20 min. ride. I told him to eat it for lunch. He eats at 11:30am. Tell me, does sandwhich meat spoil in the car from 8am till then if kept in a insulated lunch box. I dont think so. If it has an ice pack it should be ok. Tell me im not wrong
Comment by Jennifer Schnegg — September 27, 2010 @ 9:15 AMSep -04:00Sep
My guess is, it wil be fine. When I was in rehab, I used to pack my sandwich in an insulated bag and leave it in the car until lunch. (But I don’t eat meat…)
Comment by Phylis Feiner Johnson — September 27, 2010 @ 9:15 PMSep -04:00Sep
I got a cooler with ice packs, and my lunch stays fine. If you live in an extremely hot place that might not apply though, because even the ice pack melts.
About med bills…I’m blessed that my $125,000 brain surgery (2 a week apart) was mostly covered and the Dr, wrote off the $30,000 that wasnt! PTL!! I’d ask the Dr.or Hosp if they’d help you with that $2,700. It couldn’t hurt.
Thankful list.
Thankful that I have Sunday and Monday off. Sunday for Church and family, Monday for Dr.s, rest and chores.
Thankful for clean drinking water.
Thankful I’m able to see family and friends this weekend in Fl.
Thankful for the people, family and Angels God has put in my life to get me through tough situations.
Thankful for this high-tech gizmo I’m on to interact with you all.
Thankful I have a job.
Thankful I rode my bike ten+ miles to Church yesterday.
Thankful I have a can-do attitude.
I heard a quote to think on, you all might like.
“If you say you ‘can’ or you say you ‘can’t’..
YOU”RE RIGHT.
Comment by Charlie — September 27, 2010 @ 9:15 PMSep -04:00Sep
Oh Charlie, you’re the best! Why not post on “Thought for the day? I’m sure we could ALL benefit from your positive attitudes!
Comment by Phylis Feiner Johnson — September 27, 2010 @ 9:15 PMSep -04:00Sep
Hi,
im greatfull
1. “NO SEIZURES!!” in 2 days since adjusting the time of day I take 1 of my meds. instead of taking lamictal 2x a day, I take it 4 x
in between the hrs I take lyrica. so now is the pain in the but. Taking pills every 2 hrs. lyrica, then lamictal, then lyrica… etc.
2. It appears to work. We will see. I will let you know. I hope it works.
What I dont like is now im a bit more shaky. Im though not sure if it could also be the diet in addition to the time change.
Maybe both. It sure is hard to stay away from food I should not eat if its in the house. I told him to come after work to please take it home.
If its not here in my presence, then I could care less about if I dont have it. After a while it will get easier to stay away from food I shouldnt have if it is in my house.
3. My father did tell me of some gluten free grains. Im excited to try them.
4. He said that when they(my parents) go back to get some more, they will bring me some.
5. the weather was cooler and I didnt have to worry about having to water my poor plants dieing from thirst.
6. bathed quincey today and he behaved.
7. mother should come over tomorow morning.
Comment by Jennifer Schnegg — September 28, 2010 @ 9:15 AMSep -04:00Sep
As for remembering the timing to take your meds, you could set an alarm on your cell phone to remind you. That’s what I did.
I WONDER WHY THEY TOOK AWAY THE “THUMBS UP”???
Comment by Phylis Feiner Johnson — September 28, 2010 @ 9:15 PMSep -04:00Sep
oh, when I said I adjusted meds. I still take the same amount. I just split the pill in halve. Just to make it clear. Im not taking more meds, just split it.
Comment by Jennifer Schnegg — September 28, 2010 @ 9:15 AMSep -04:00Sep
Today’s Gratitude List
1. I wrote and posted a new article yesterday (Hospital Rights)
2. I am going to my local EF fundraising dinner tonight, as a guest, because I rewote the silent auction copy
3. It’s beautiful and breezy (and I hope it won’t rain on the EF golfers!)
4. I saw an amazing movie last night about Temple Grandin (a very gifted autic woman)
5. I’ve got a whole new day to look forward to
Comment by Phylis Feiner Johnson — September 28, 2010 @ 9:15 PMSep -04:00Sep
I have some very good news!
its about reem, she decided to go outside down to the beach and take a nice run and walk
Im very greatfull for that! I was worried about her for a while.
She did go without telling her mom because she would not have let her go out.
I think her mother sheilds her too much. I should think it ok to go outside, but its also good to tell someone where you go. But what can you do if her mother wont let her go outside.
Comment by Jennifer Schnegg — September 29, 2010 @ 9:15 AMSep -04:00Sep
YAY Reem!
Comment by Phylis Feiner Johnson — September 29, 2010 @ 9:15 AMSep -04:00Sep
Hi Jennifer,
That is something I am grateful for: Reem going oustide and walking and running.
Her mother does shield her to much, I agree. Is Reem an adult?
If she is encourage her to go outside more. All of us need to. It is healthy for body and mind.
My son has health problems but he goes for walks every day. He does not have to tell us where he is going. He tells us anyway. We tell him to have a good time. I do not shield him at all. I never have. I am grateful to have him. He helps with the housework, too. He is 30 years old.
I am sure Reem is grateful to have you as a friend.
Comment by Ruth Brown — September 29, 2010 @ 9:15 AMSep -04:00Sep
yes, Ruth. I told her about contacting the epilepsy foundation about helping her find where she can go.
She came up with that idea on her own that she needs to get out of the house and start a new life.
The one she has now isnt working for her. Not the study she wants to do.
Yes she is an adult, 22 or 23 I think.
If I may ask, what type of health problems does your son have? Is it epilepsy too?
Comment by Jennifer Schnegg — September 29, 2010 @ 9:15 AMSep -04:00Sep
Thankful list for today
Eventhough i don’t drive yet, God has put People in my life that get me everywhere I need be.
That God loves me
That my Daughter is dropping me off for morning prayer at church.
That my Pastor will then get me to work.
That people are praying for me and us.
That if I do get my license back, I’ll be able to help people that are in my situation now.
That I have a place to live and food.So many people in the world have neither.
For the Drs. and Hospitals around the world.
That there’s good people in the world like you all, that care about other people.
Bless you all.
Comment by Charlie — September 29, 2010 @ 9:15 PMSep -04:00Sep
Oops, my long list of Thankful things went away when I accidentally hit ‘submit’ twice. let’s just say I’m thankful for a lot.
Bless you all
Comment by Charlie — September 29, 2010 @ 9:15 PMSep -04:00Sep
Nope. Thankfully, we got it all
Comment by Phylis Feiner Johnson — September 29, 2010 @ 9:15 PMSep -04:00Sep
hi
Im kind of frustrated. I have alot to do and think about. but,
1. im greatfull for my parents
2. they help me all I can with transportation, painting my room
3. im still interested in my new diet, though I must say I have cheated, but only coz it was in my house, the food
4. cant wait to try new foods
5. am now eating better, and feel better
6. music went good yesterday.
7. have no children, quincey bugs me enouph, imagine kids, i’d be pulling my hair out
8. I still love him
music teacher gave me new information to learn
9. some is hard but its going to get done in 1 week
Well good night…
Comment by Jennifer Schnegg — September 30, 2010 @ 9:15 AMSep -04:00Sep
Today’s list:
1. The skin care copy review went well, so it looks like I may have a continuing job. (They didn’t like the other person’s copy too much.)
2. There will be quite a few products to write — over time.
3. I will be able to donate all of these paychecks to my local EFA.
4. That I can help support them in a fun and productive way.
5. It’s nice to be working on frivolous stuff sometimes. This work is a very heavy load. (Although I chose to do it and I’m not complaining!)
Comment by Phylis Feiner Johnson — September 30, 2010 @ 9:15 PMSep -04:00Sep
im greatfull:
1. made some good ricemilk
2. got a little cleaning done
3. made some baked chicken and brown rice. I now love being in the kitchen and cooking up something
4. I didnt cheat with food im not supposed to eat
5. my friend Retta called me
hope everyone is ok.
Comment by Jennifer Schnegg — October 1, 2010 @ 9:15 AMOct -04:00Oct
Congrats on the skin care copy.Phylis
Congrats on sticking to the meal plan, Jennifer.
I’m glad you are taking on this heavy load, Phylis. It makes a difference.
Just take care of yourself.
People that can carry a heavy load when times are good, won’t crumble when things get tough.
Thankul for…
I’m thankful to be alive,
Thankful for an easy day at work (unusual)
thankful for the support I’m getting from you all.
Comment by Charlie — October 1, 2010 @ 9:15 AMOct -04:00Oct
Charlie, you’re so kind, you made me teary. Things WERE very tough when I began this endeavor. I had almost died in September ’08 and I couldn’t even find the keyboard until January ’09. At that point, it took me 20 minutes to write a two line email. So I decided to turn lemons into lemonade and help others who were in bad shape like I had been.
And yes, SUPPORT is what it’s all about!
Comment by Phylis Feiner Johnson — October 1, 2010 @ 9:15 PMOct -04:00Oct
Today’s List
1. Thankful for last night’s birthday dinner for a friend who’s in a funk and needs happy support.
2. Thankful that I can financially afford to do such things. (It wasn’t always so…)
3. Thankful that Arthur is so wise and generous and understanding
4. Thankful to be spending the day with a best friend doing something fun
5. Thankful for a day (almost!) off
Comment by Phylis Feiner Johnson — October 1, 2010 @ 9:15 PMOct -04:00Oct
I have lots to be thankful for:
1. I have changed doctors!!
2. I can treat my diabetes the way it is suppose to be treated.
3. Jennifer, that is great that your diet is going so well for you.
4. My computer is working again
5. Phylis, be careful, you can get sick carrying to heavy a load.
Comment by Ruth Brown — October 1, 2010 @ 9:15 PMOct -04:00Oct
YAY Ruth! That’s great news! (I’m also glad your computer is up and running again, I missed you.) And don’t worry about me getting sick. I started this when I was sick, remember?
Comment by Phylis Feiner Johnson — October 1, 2010 @ 9:15 PMOct -04:00Oct
im greatfull
1. its beautifull day
2. father came to fix crack in wall
3. got alot of cleaning done
4. talked to reem today
5. took a walk with quincey
6. bathed him and he behaved
7. im learning to cook and enjoying it,
8. did have simple partial, but at least im still hopefull
9. it may take a while to see some results, I remember I used to do a diet that was similar, and it took a while to see some results
Comment by Jennifer Schnegg — October 2, 2010 @ 9:15 AMOct -04:00Oct
Jennifer, stick with it. I have faith in you!
Comment by Phylis Feiner Johnson — October 2, 2010 @ 9:15 AMOct -04:00Oct
Hi all,
It is so refreshing to come home from work and read e-mail’s from all you real trooper’s that never say ‘quit’, instead of the usual garbage Fwd’s that just clog up the comp.
When I see that “New Comment, Gratitude is the attitude” on my email, it makes me smile before I even open it.
I’ll be around half of tommorow, but probably be scarce next week cause I’m going away and don’t know if I’ll have comp acess where I go. I’ll catch up when I can.
God willing, I’ll have a Driver’s License when I get home.
Thankful?
You better believe it.
About what?
EVERYTHING !!
God Bless you.
Comment by Charlie — October 2, 2010 @ 9:15 AMOct -04:00Oct
A driver’s license? YAY!
Comment by Phylis Feiner Johnson — October 2, 2010 @ 9:15 PMOct -04:00Oct
Today’s List
1. A fun outing in Philadelphia with one of my best friends
2. Wonderful gifts I was able to buy her for her birthday and Christmas (I know, I’m a little early. But it was there and we were there, so…)
3. Yummy roast chicken
4. Just a small amount of water in my basement (some areas had 2 feet and were almost under water)
5. A new article I started writing at 7:00 AM!
Comment by Phylis Feiner Johnson — October 2, 2010 @ 9:15 PMOct -04:00Oct
greatfull for 1. friends
2. got alot of things done, im happy and feel good
3. talked to reem today, she seemed ok and happy
4. went to epilepsy group, and told them about this site
5. made some good sweet potato, asparegus, and wild rice. tasted good
6.am going to an epilepsy advocate meeting out of town saterday with a friend
Comment by Jennifer Schnegg — October 5, 2010 @ 9:15 AMOct -04:00Oct
Is the support group different from the advocacy group?
Glad things are improving with Reem!
Comment by Phylis Feiner Johnson — October 5, 2010 @ 9:15 PMOct -04:00Oct
I have never been. They have it 1 x yr I think. Its just a like the support group I go to thats 1 x a mo. This other advocacy group is much much larger and we will have some speakers talking about improving ways of treating and controling seiz. The head of the epilepsy foundation will be speaking as well as some Drs. I suppose.
Comment by Jennifer Schnegg — October 5, 2010 @ 9:15 PMOct -04:00Oct
Praise The Lord!
I am holding my first Drivers License in 9 years!
Thanks for the encouragement all. Now the trick is gonna be ‘driving’. I’m gonna need lots of lessons (not to mention something to drive) and lotsa prayer that I remain SF.
More thankful things,
I Got to visit the family of my deceased friend.
I Got to visit with my bro-in-law after his cancer surgery. doing well
Got to tell people about how good God has been to me.
Got to tell people and family with Epilepsy about this site. (Thank You Phylis)
Bless you all
Comment by Charlie — October 5, 2010 @ 9:15 PMOct -04:00Oct
CONGRATULATIONS Charlie! Can you lease a car with an automatic shift? Does your school district have driving lessons as part of their Adult Programs?
Comment by Phylis Feiner Johnson — October 5, 2010 @ 9:15 PMOct -04:00Oct
Hi Everyone,
Glad you all have good news!!
I have some good news. I changed doctors this morning. He is a great doctor. He is going to have my neurologist handle my seizure medications.
I am free of my old doctor.
Comment by Ruth Brown — October 6, 2010 @ 9:15 AMOct -04:00Oct
YAY Ruth! Pro-active again!
Comment by Phylis Feiner Johnson — October 6, 2010 @ 9:15 AMOct -04:00Oct
I believe it was Phylis who said back in September (or near then) “Sometimes you have to kiss a lot of frogs before you find your doc!”
thankful list…
Thankful for an awesome visit to Fl.
Thankful for a good wife waiting on me at home.
Thankful we have the technology to transport us in hours and not days or weeks to visit dear friends and family.
God Bless you all
Comment by Charlie — October 6, 2010 @ 9:15 PMOct -04:00Oct
A good wife is a great thing! You ARE truly blessed. (Me too.)
Comment by Phylis Feiner Johnson — October 6, 2010 @ 9:15 PMOct -04:00Oct
Today’s list:
1. I had a fight with Arthur last night, but we kissed and made up.
2. My colitis is gone.
3. I have a cute red mini as a rental car
4. My paycheck will be going to the EFEPA probably in November.
5. I told Arthur that all I want for Christmas is a generous donation to the EFEPA…skip the jewelry and other stuff!
Comment by Phylis Feiner Johnson — October 6, 2010 @ 9:15 PMOct -04:00Oct
Hi everyone … I am new to the site , I am reem, jennifer’s friend, i am thankful for :
1-Jennifer is my true friend and she let me know this site
2-I can contact new friends like you all.
3-I have a caring mother, caring brothers and a great boyfriend.
4-I go to my classes in college.
5-I am thankful we are all here for each other.
Comment by Reem — October 7, 2010 @ 9:15 AMOct -04:00Oct
YAY REEM! WELCOME! I was so hoping you’d join us after all the wonderful things Jennifer said about you. She certainly IS a devoted friend and cares about you very much!
So Reem, welcome to the “community of caring?”
Comment by Phylis Feiner Johnson — October 7, 2010 @ 9:15 AMOct -04:00Oct
im greatfull for:
1. reem feeling better
2. music went good
3. mother finally came to paint 1 wall
4. mother is taking me out shopping friday, so I can be out on my own
5. freedom
Comment by Jennifer Schnegg — October 7, 2010 @ 9:15 AMOct -04:00Oct
Welcome Reem,Glad you decided to join the support network. I’m happy you also have support at home and recognize what a good friend you have in Jennifer. Welcome
Comment by Charlie — October 7, 2010 @ 9:15 AMOct -04:00Oct
Thank You , jennifer, phylis and charlie for your support,
Comment by Reem — October 8, 2010 @ 9:15 AMOct -04:00Oct
We’re here for you…whether you want to ask questions, give answers, need support, want to complain, laugh or cry!
Comment by Phylis Feiner Johnson — October 8, 2010 @ 9:15 AMOct -04:00Oct
am greatfull for
1. mother, helped me with painting
2. reem gave me some support today, I was upset
3. I have a great music teacher, he really knows how to teach his students
4. I slept good last night
5. weekends
Comment by Jennifer Schnegg — October 8, 2010 @ 9:15 AMOct -04:00Oct
I’m really glad that Reem and you are there for each other!
Comment by Phylis Feiner Johnson — October 8, 2010 @ 9:15 PMOct -04:00Oct
Well gang,
Thankful !!!!
I’m OTRA…PTL
On The Road Again…Praise The Lord
After 9 years off the road and one year Seizure Free, it sure is wierd. I’m taking baby steps though (5-10 mins at a time) and I’m gonna ease into this. Pray for me, please.
I owe people lots and lots of rides for all the rides I’ve gotten over the course of my life and now I hope to help and bless others.
bless you all
Comment by Charlie — October 9, 2010 @ 9:15 AMOct -04:00Oct
Bless you Charlie…and drive safely!
Comment by Phylis Feiner Johnson — October 9, 2010 @ 9:15 PMOct -04:00Oct
WE’RE MOVING ON!
After 262 posts (Yours was the last Charlie, thank you!) we’re moving on to GRATITUDE IS THE ATTITUDE –PART 2
Ruth’s computer crashes when she tries to access this site…and frankly, mine seems to be having a slow heart attack, just trying to load the page.
So let’s hear more, in Part 2…
And thank you all so much. From the bottom of my heart.
Comment by Phylis Feiner Johnson — October 9, 2010 @ 9:15 PMOct -04:00Oct