Thank you for quick and comprehensive reply.
We are hoping for video EEG in November.
And after MRI in December we will have more information about son’s condition.
Will keep you informed.
Thank you for now.

http://epilepsytalk.com/2010/09/13/beyond-eegs%e2%80%a6diagnostic-tools-for-epilepsy-2/

to know what your testing options are. If it was me — which it isn’t — I would recommend a Continuous Video EEG Monitoring where a patient stays in a special unit for at least 24 hours. Antiepileptic medication is stopped for the duration of this test, since the objective is for seizures to occur so the abnormal brain waves they produce can be recorded.

A video camera connected to the EEG provides constant monitoring, enabling the medical team to pinpoint the area where a seizure occurs and track the patient’s physiological response to the seizure. Continuous monitoring can also help distinguish between epilepsy and other conditions. It can characterize the seizure type for more precise medication adjustments and locate the originating area of seizures within the brain.

Also http://www.epilepsy.com has a wealth of information in the orange bars to the left. But be careful. Don’t try to play doctor. Just try to keep a diary of the seizures (if any more occur), what precipitates them (triggers? auras?) and how long they last, plus your son’s reaction/behavior afterwards.

The best of luck. And please let me know what happens.

I found my 7 year old son last friday morning in his bed face down sleeping and snoring. I tried waking him up but with no success. I checked his pulse and breathing and laid him on the side. I ran to my wife (in meantime he urinated) and we tried waking him up together – shouting, slapping but still with no result. After 3 minutes we called 911. We stayed by his side and left him asleep untill they came. They checked blood sugar, talked loudly but stil with no success. They carried him into medic van to take him to ER. Before they started the engine he woke up by himself and not as a result of any action (about 30 minutes after I found him). He was immediatelly fully aware of sorroundings, not confused, could introduce himself. In ER nothing special occured. He was still completely aware of all that was going on and communicating with everyone. He said that he very much enjoyed the ride in medic van. After check he was tired and had a 30 minutes nap. On the same day EEG and CT tests were made. He stayed in hospital. Next evening we were introduced with diagnosys of epilepsy, generalised epileptiform activity. The doctor said it is a severe case and prescribed Depakine chrono. He is scheduled for MRI on Dec. 2nd.
It is not good news but since we cannot turn back time I am facing new future and trying to get as much information as possible in order to understand it.
MY QUESTION: I want the accuratest possible diagnosys so we can apply right steps in order to provide the best treatment. But I fear that maybe there is some other issue which doctors did not look for and remains unindentified. What do you recommed as further steps and what is your comment based on information provided?
You are the first person I am contacting via internet and I am kindly asking you to help me or put me into contact with people who can.
Best regards from beautiful Slovenia!

How old is your son? Could it be FEBRILE SEIZURES?

Usually these are caused by high fevers, and happen most commonly in infants and young children — between 6 months and 5 years old, but they most often occur during the toddler years. They may recur during childhood but are usually outgrown.

The chances of having another febrile seizure are 25% to 30%. How many seizures has your son had and in what space of time?

Also, HIGH FEVERS in children can commonly incite a seizure. Vomiting, diarrhea, and fever are all triggers.

As for EEG’s — an abnormal EEG does not necessarily diagnose epilepsy nor does a normal EEG reading exclude it.

I know a man who had 5 EEGs before he was properly diagnosed with Video EEG Monitoring.

The MRI is meant to go one step further in the diagnosis of your son. (As I said, I think EEGs are pretty worthless but that’s where they start with testing.)

MRI (Magnetic Resonance Imaging) – is a safe and non-invasive scanning technique that uses a magnetic field, radio waves and a computer to produce two or three-dimensional images of the brain.

This detailed picture of brain structures helps physicians locate possible causes of seizures and identify areas that may generate seizures.

No X-rays or radioactive materials are used, therefore this procedure is not known to be harmful.

An MRI offers doctors the best chance of finding the source of seizures. Because seizures can arise from scar tissue in the brain, an MRI can show scar tissue and allow doctors to determine the nature of it.

The images produced from the MRI are extremely precise. The information provided by MRI is valuable in the diagnosis and treatment of individuals with epilepsy and will probably help them determine an exact diagnosis for your son.

So, even though it sounds bad, this is actually a GOOD thing…because the docs are taking care to find the root of your son’s and properly diagnosis and treat his condition.

Best of luck. Let me know how things turn out.

What you could do is keep a daily seizure dairy where you note your sleep patterns, what you ate, activities, drug dosages and when taken…how you feel after taking the drugs prescribed…how you feel before, during and after a seizure (if you can remember), plus the duration.

That could help him figure out whether the seizure meds are indeed acting as a trigger for you.

And please, don’t go “straight” into a tree!

Phylis