Epilepsy Talk

Conditions Commonly Misdiagnosed as Epilepsy | February 17, 2010

A moment of unresponsiveness — the inability to recall what just happened…convulsions or jerking movements…sudden stiffness of the body.  These are classic symptoms of an epilepsy seizure — triggered by abnormal electrical impulses in the brain.

And while these symptoms may indicate epilepsy, other brain abnormalities or injuries could also lead to seizures.

Having a seizure doesn’t automatically mean you have epilepsy.  And without testing, the diagnosis – or misdiagnosis – can be pretty scary.  There are loads of conditions that have symptoms similar to epilepsy.  Here are the most common…

First Seizures

A first seizure is just what it sounds like — the first seizure a person has. The underlying cause may be determined to be epilepsy, but often the cause can’t be determined.

These isolated seizures are not rare events — up to 5 percent of people in the United States may experience a first seizure that isn’t due to fever or epilepsy. A first seizure typically occurs before age 25, with most taking place in those younger than 15. First seizures seem to strike males a little more often than females, and they may not have a specific or detectable cause. However, a first seizure can affect part of or the entire brain.

Febrile Seizures

These seizures are caused by high fevers, and occur most commonly in infants and young children. Febrile seizures are quite common, affecting 1 in 25 children. The chances of having another febrile seizure are 25% to 30%. While frightening, these seizures don’t cause brain damage or otherwise harm children.

During the seizure, the child may be unconscious, shake, and convulse. Febrile seizures can last longer than 15 minutes or less than a few seconds, but most commonly last one to two minutes.

Febrile seizures typically strike when a child is between 6 months and 5 years old, but they most often occur during the toddler years. These types of seizures may recur during childhood but are usually outgrown.

Nonepileptic Seizure Disorder (NESD)

Nonepileptic events look like seizures, but actually are not. Conditions that may cause nonepileptic events include narcolepsy  (a sleep disorder which causes reoccurring need of sleep during the day), Tourette’s syndrome (a neurological condition characterized by vocal and body tics), abnormal heart rhythms (arrhythmias) and other medical conditions with symptoms that resemble seizures.

Because symptoms of these disorders can look very much like epileptic seizures, they are often mistaken for epilepsy. Distinguishing between true epileptic seizures and nonepileptic events can be very difficult and requires a thorough medical assessment, careful monitoring, and knowledgeable health professionals. Improvements in brain scanning and monitoring technology will hopefully improve diagnosis of nonepileptic events in the future.

When someone appears to have seizures, even though their brains show no seizure activity, they are diagnosed as having pseudo seizures which basically means they look like a seizure but aren’t one.

Seizures that are psychological in origin are often called psychogenic seizures. These seizures are most likely triggered by emotional stress or trauma. Some people with epilepsy have psychogenic seizures in addition to their epileptic seizures. It’s a legitimate seizure and should be treated that way, but it is not caused by a problem in the brain.

Then there are physiologic nonepileptic seizures which can be triggered by some sort of change in the brain — typically a change in the supply of blood or oxygen rather than electrical activity.

It’s important to differentiate a seizure from that of a behavioral disorder, but it’s difficult.

Mental Health

Epilepsy can be misdiagnosed as schizophrenia.  Some patients suffer hallucinations and other similar symptoms, or even severe psychotic symptoms, making a misdiagnosis of schizophrenia possible. Mood changes and behavioral symptoms also make a misdiagnosis of bipolar disorder possible.

Some of the other possible misdiagnoses include depression, borderline personality disorder, multiple personality disorder, hypochondria, sexuality disorders, and hysteria.


Eclampsia is a dangerous condition suffered by pregnant women. The symptoms include seizures and a sudden rise in blood pressure. A pregnant woman who has an unexpected seizure should be taken to the hospital immediately. Eclampsia occurs in about 1 out of every 2,000 to 3,000 expectant women. The seizures cause convulsions or changes in personality such as agitation.  After the eclampsia is treated and after the woman has the baby, she usually won’t have any more seizures or develop epilepsy.


Meningitis is an infection that causes swelling of the membranes of the brain and spinal cord, most often caused by a virus or bacteria. Viral infections usually clear up without treatment, but bacterial infections are extremely dangerous and can lead to brain damage and even death. Symptoms of meningitis include fever and chills, severe headache, vomiting, and stiff neck.


Encephalitis is an inflammation of the brain and is usually caused by a viral infection. Symptoms include fever, headache, vomiting, confusion, and stiff neck.


Migraine is a type of headache thought to be caused, in part, by a narrowing of blood vessels in the head and neck, which reduces the flow of blood to the brain. People who have migraines may also have auras and other symptoms, including dizziness, nausea, and vomiting. Certain conditions may bring about a migraine, including allergies, menstrual periods, and muscle tension. Some foods, including red wine, chocolate, nuts, caffeine, and peanut butter, can also cause a migraine.

Sleep Disorders

According to the Cleveland Clinic, about 75% of the adult population in the United States suffers from some type of sleep disorder. These include sleep apnea…insomnia…restless legs syndrome…narcolepsy… sleepwalking…talking in one’s sleep…sleep paralysis…mild and chronic muscle spasms that occur during sleep…and night terrors, to name just a few.

Brain Injury

Although the symptoms of severe brain injury are hard to miss, it is less clear for milder injuries, or even those causing a mild concussion. The condition goes by the name of “mild traumatic brain injury” (MTBI). Symptoms can be mild, and can continue for days or weeks after the injury.

Post-concussive brain injury is also often misdiagnosed.  A study found that soldiers who had suffered a concussive injury in battle often were misdiagnosed on their return. A variety of symptoms can occur in post-concussion syndrome and these were not being correctly attributed to their concussion injury.

In addition, a brain tumor or an infection in the brain, can be mistaken for epilepsy.

Cardiac Disorders

EEGs alone may not clearly distinguish epilepsy from cardiac disorders. Numerous studies point to a connection between SUDEP, Unexplained Death in Epilepsy and cardiac problems. More extensive evaluation by a cardiologist can help identify cardiac disorders which may be an underlying cause of an individual’s seizures.


Transient Ischemia Attacks are caused by a sudden diminished blood flow in some areas of the brain that may be stroke related. Seizure-like symptoms may include changes in consciousness, speech or vision problems.

Failed Drug Therapy

If trials of different anti-seizure medications fail, it could be because the cause of the seizures is not epilepsy.


EEGs alone are not sufficient to make a definite diagnosis of epilepsy. It is not a sensitive enough diagnostic tool to distinguish many disorders which cause epileptic seizures. When anticonvulsants don’t control seizures or there is a question about the diagnosis of epilepsy, the neurologist, patient, or care giver must seek further evaluation to find the underlying cause of the seizures.

Simple Mistakes

And then, of course, there is the element of human error.  Changes in metabolism – such as low blood sugar — from health conditions like kidney and liver problems can present as a seizure.  Drug use or withdrawal from alcohol can be construed as epilepsy.  A congenital health problem, like down’s syndrome, stroke or alzheimer’s disease may be misdiagnosed.

The bottom line?  Make sure you have a good neurologist or epileptologist…get thorough testing…keep a seizure diary…and be pro-active.

Additional articles of interest:

2014-2015 Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors   http://epilepsytalk.com/2014/08/06/2014-2015-comprehensive-list-of-good-neurologistsepileptologistsneurosurgeonsand-pediatric-doctors-3/

2014-2015 Top Ranked Neurology and Neurosurgery Hospitals  http://epilepsytalk.com/2014/07/27/2014-2015-top-ranked-neurology-and-neurosurgery-hospitals-3/

2014-2015 Top-Ranked Pediatric Hospitals for Neurology and Neurosurgery  http://epilepsytalk.com/2014/08/09/2014-2015-top-ranked-pediatric-hospitals-for-neurology-neurosurgery-2/

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  1. Hi Phylis,

    Thank you for doing your research. I did not know all of these reasons for seizures.

    I noticed on febrile seizures that one can last 15 minutes or less than a few seconds. If a febrible seizure last 15 minutes, wouldn’t that cause brain damage?


    Comment by Ruth Brown — February 17, 2010 @ 5:54 AM

  2. Here’s what the Mayo Clinic says at http://www.mayoclinic.com/health/febrile-seizure/DS00346/DSECTION=complications

    “Although febrile seizures may cause great fear and concern for parents, most febrile seizures produce no lasting effects. Simple febrile seizures don’t cause brain damage, mental retardation or learning disabilities, and they don’t mean your child has a more serious underlying disorder.

    Febrile seizures also aren’t an indication of epilepsy, a tendency to have recurrent seizures caused by abnormal electrical signals in the brain. The odds that your child will develop epilepsy after a febrile seizure are small. Only a small percentage of children who have a febrile seizure go on to develop epilepsy, but not because of the febrile seizures.

    Recurrent febrile seizures
    The most common complication of febrile seizures is the possibility of more febrile seizures. About a third of children who have a febrile seizure will have another one with a subsequent fever.”


    Comment by Phylis Feiner Johnson — February 17, 2010 @ 9:42 PM

  3. Looking over different conditions still unclear of what my 13yr old daughter has. Seizures started last fall,1 per mo. Then EEG,slight abnormalities. MRI-showed nothing substantial.
    Placed on Kepra, seizures became more violent. increase in Kepra, more seizures..Changed to Trileptal-2wks no seizure then 1 per week. increase Trileptal. seizures 2x per wk added zonisamide.Seizures continued @ 2x but much worse. Taken off all meds & hospitalized for video eeg 6days. then 2days w/portable unit bk to school.no seizures for 3wks 2days on no meds.Just had one May 3rd. Full body. Dr.s suggest child psyc? Seizures seem to happen only @ skl & a few @ youth grp. I am very puzzeled trying to figure out my next step. I would appreciate any suggestions.
    Thank you, Chris


    Comment by Chris Gonzales — May 5, 2010 @ 10:19 AM

  4. First of all Chris, let’s remember that she’s a teenager and her hormones are probably out of whack.

    For many women, certain hormones seem to trigger seizures at particular times in their menstrual cycle. It can be during ovulation or menstruation and it’s known as “catamenial epilepsy.” So that MAY be a contributing factor

    Although psychological(psychogenic)seizures are most likely triggered by emotional stress or trauma, some people with epilepsy have psychogenic seizures in addition to their epileptic seizures. It’s a legitimate seizure and should be treated that way, but it is not caused by a problem in the brain.

    If it were me, I’d start a daily diary, noting activities, behaviors, sleeping and eating patterns, as well as when the seizures happen, how long they last and what happens afterwards. Then I’d take it back to the neuro and see if he/she can get a clue of what’s going on.

    Talk therapy certainly has helped me. Plus my shrink is a psychiatrist, so he can change my meds based upon depression. (Research shows that 80% of patients with epilepsy also have some kind of a depressive disorder. Upwards of 60% have a history of significant episodes of depression. And 10-32% experience symptoms of anxiety.)

    As for meds: I’m on Lamictal which at its lowest level is for anti-anxiety, the next level acts as an anti-seizure med and the top level is for bi-polar people. (I take it in the AM because it got me too hyper at night, but it’s different for each person.) That’s supplemented at night with Klonopin which is an anti-seizure, anti-anxiety drug.

    So talk therapy and that magic mix of meds are what works for me at this point. And I’ve had epilepsy for 40 years!

    Good luck. Let us know how things progress…


    Comment by Phylis Feiner Johnson — May 5, 2010 @ 7:59 PM

  5. Hi Chris, I am sorry that you are on the medicine merry-go-round. That is miserable trying to find out what medicines work and which ones do not. Any time their is an increase of seizures with a medicine, report it to her doctor.

    The EEG did show up seizure activity, so she does have epilepsy.

    Since the V-EEG did not show up anything, that means that she has the same thing I do. I have both epilepsy and NEST (non epileptic seizure disorder), psychcogenic.

    I do not have therapy but most people do. It is more common than you think. Most people do not want it out in the open. That is why most people do not know about it. Be open and educate other people.

    I am on Lamictal, Neurontin, Mysoline, Keppra and clonazepam. They work for me. Everyone is different. I have had epilepsy for 61 years, now.

    Let us know if we can help you, in any way.


    Comment by Ruth Brown — May 5, 2010 @ 10:31 PM

  6. Dear Troubled,

    Here are some links which will help you better understand psychogenic seizures:


    Hope this helps!


    Comment by Phylis Feiner Johnson — May 13, 2010 @ 6:04 AM

  7. Hi Troubled,

    I have both epilepsy and NEST (non-epileptic-seizure-disorder.) I also have diabetes which has seizures as well:


    Do not be troubled about it. I have had seizures for 61 years now. I have learned to have a positive attitude toward it. I take it as it comes.

    My friends accept me as I am. Since I was 6 years old, I told everyone that I had epilepsy. I still do. My neighbors accept me as I am and so do my friends.

    Phylis has a subject on triggers in her website here. You might want to see what they are to help stop seizures.

    Remember, Laughter is the best medicine.


    Comment by Ruth Brown — May 15, 2010 @ 5:14 AM

  8. I was insulted today. I was told that someone was faking their NEAD seizures. I have been accused of the same thing at the ER room. They have even taken the fact that I have epilepsy off of my hospital charts.

    I have both epilepsy and NEAD. They are real, not fake. I am going to have a V-EEG to prove that I have both.


    Comment by Ruth Brown — July 21, 2010 @ 5:06 AM

  9. Ruth, as you know, some people with epilepsy have psychogenic seizures in addition to their epileptic seizures. That doesn’t mean they’re not real.

    And if they just did an EEG to evaluate you, it’s pretty useless because the EEG is mostly superficial and doesn’t go very deep into the brain.

    An EEG can help identify the location, severity, and type of seizure disorder. But an abnormal EEG does not diagnose epilepsy nor does a normal EEG reading exclude it.

    I think a V-EEG is a good idea. It’s much more precise because seeing EEG and video data at the same time permits precise correlation between seizure activity in the brain and the patient’s behavior during seizures.

    Video-EEG can also be vital in the diagnosis of epilepsy and epileptic seizures because it allows the doctor to determine:

    Whether events with unusual features are epileptic seizures…

    The type of epileptic seizure, and…

    The region of the brain from which the seizures arise.


    Comment by Phylis Feiner Johnson — July 21, 2010 @ 7:43 PM

    • At 17yo,had beer,pot,cocaine, then had first two seizures. Diagnosed in ’74 to have complex parial epilepsy, all Anti Epileptic Medicines (25+) were untheraputic. ’96 L.temp.Lobectomy was totally unsuccessful. No EEG ever saw a seizure. I hope my seizures were nonepileptic, and I never needed any before and won’t need any more medicine in future.


      Comment by Tim B — September 13, 2010 @ 10:48 PM

      • Hi Tim,

        Welcome. This is a tough one. Although the beer, pot and coke are definitely triggers, you didn’t start having seizures until 7 years later. I assume you were one of the 30% of people with epilepsy who was “drug-resistant.” (Possibly from your former recreational drugs.)

        And the surgery was not succesful. Did you have any other testing than the EEG? Because EEGs are definitely not the be all and end all of diagnostic testing. (Was this neurosurgeon a little bit Knife Happy”?)

        Anyway, you probably should have some more diagnostic testing to see where you stand at this point.Go to http://epilepsytalk.com/2010/09/13/beyond-eegs%e2%80%a6diagnostic-tools-for-epilepsy-2/ and see if that helps.

        You definitely sound like you’re in limbo and need to know more. Denial won’t make it go away. :-(


        Comment by Phylis Feiner Johnson — September 14, 2010 @ 12:30 AM

      • Everybody,
        As I said before “At 17yo,had beer,pot,cocaine, then had two seizures. Diagnosed in ’74” Was still 17yo, that isn’t 7 yrs later, so it’s likely that these seizures were possibly due to withdrawal from either alcohol or drugs. My use of over 25 different Anti Epilepsy Drugs is possibly due to my not having epilepsy in the first place. It took many tests for a doctor to find what he determined to be seizure focus. But the operation he designed didn’t work. Tim B


        Comment by Tim Baldwin — October 4, 2013 @ 11:04 PM

  10. I do have both epilepsy and NEAD. It was an EEG that the doctor went by. At that time, I did not have a seizure so nothing showed up. So, it showed that I was not having seizures at the time of the EEG.

    I should have had an EEG done before the colonoscopy while I was having seizures.

    I am going to tell my GP and neurologist that they have taken off the fact that I have epilepsy. Both of them know that I have epilepsy. I will ask for a V-EEG.


    Comment by Ruth Brown — July 22, 2010 @ 9:52 AM

  11. I agree. A V-EEG would be much more accurate…


    Comment by Phylis Feiner Johnson — July 22, 2010 @ 7:18 PM

  12. I see my neurologist in August. I will ask for one then.


    Comment by Ruth Brown — July 24, 2010 @ 9:46 AM

  13. Phylis Feiner Johnson,

    Thank You for having seen that the beer, pot & cocaine are triggers. The first seizure was began when 17 y.o. in ’74, then around 45 days I had a second seizure and was diagopsed. Use of drugs, the first two seizures and was diagnosed were in two months of 1974.
    Timothy Baldwin


    Comment by Tim B — September 14, 2010 @ 1:52 AM

  14. Phylis Feiner Johnson,
    Yes, for at least thirty years I haven’t even drank an oz. of alcohol or any drugs other that those prescribed to stop seizures. I think my continued seizures are possibly caused by intake of those medicines that work to prevent too many electonic messages from nueron to nueron. Can the
    constant prevention of seizures cause there to be a number of mild/quick/unknown seizures to take place for 1/2-10 seconds. Then you have no idea of them and only notice one every 5 weeks. Could it be that you’d then loose awareness when driving and maybe go straight, instead of following the roads left hand turn? Tim Baldwin


    Comment by Tim B — September 14, 2010 @ 3:50 AM

    • yes you could Tim , loose awareness, while driving .. stay safe ..


      Comment by cathy — August 11, 2014 @ 1:36 AM

  15. Hi Tim, I think what you’re experiencing is “absence seizures” and, if so, you should tell your neuro.

    What you could do is keep a daily seizure dairy where you note your sleep patterns, what you ate, activities, drug dosages and when taken…how you feel after taking the drugs prescribed…how you feel before, during and after a seizure (if you can remember), plus the duration.

    That could help him figure out whether the seizure meds are indeed acting as a trigger for you.

    And please, don’t go “straight” into a tree! ;-)



    Comment by Phylis Feiner Johnson — September 14, 2010 @ 6:23 AM

  16. My son have had 6 seizure all seizures always cos by fever and seizure cos early morning only. we did eeg 2 times its show normal and the third time its show abnormal. now doctor want my son to do mri to diagonise so i really dont know whether my son have epiliapsy problem. pls help to reply.


    Comment by laxmi thongmakmai — April 25, 2011 @ 9:29 AM

  17. Hi Laxmi,

    How old is your son? Could it be FEBRILE SEIZURES?

    Usually these are caused by high fevers, and happen most commonly in infants and young children — between 6 months and 5 years old, but they most often occur during the toddler years. They may recur during childhood but are usually outgrown.

    The chances of having another febrile seizure are 25% to 30%. How many seizures has your son had and in what space of time?

    Also, HIGH FEVERS in children can commonly incite a seizure. Vomiting, diarrhea, and fever are all triggers.

    As for EEG’s — an abnormal EEG does not necessarily diagnose epilepsy nor does a normal EEG reading exclude it.

    I know a man who had 5 EEGs before he was properly diagnosed with Video EEG Monitoring.

    The MRI is meant to go one step further in the diagnosis of your son. (As I said, I think EEGs are pretty worthless but that’s where they start with testing.)

    MRI (Magnetic Resonance Imaging) – is a safe and non-invasive scanning technique that uses a magnetic field, radio waves and a computer to produce two or three-dimensional images of the brain.

    This detailed picture of brain structures helps physicians locate possible causes of seizures and identify areas that may generate seizures.

    No X-rays or radioactive materials are used, therefore this procedure is not known to be harmful.

    An MRI offers doctors the best chance of finding the source of seizures. Because seizures can arise from scar tissue in the brain, an MRI can show scar tissue and allow doctors to determine the nature of it.

    The images produced from the MRI are extremely precise. The information provided by MRI is valuable in the diagnosis and treatment of individuals with epilepsy and will probably help them determine an exact diagnosis for your son.

    So, even though it sounds bad, this is actually a GOOD thing…because the docs are taking care to find the root of your son’s and properly diagnosis and treat his condition.

    Best of luck. Let me know how things turn out.


    Comment by Phylis Feiner Johnson — April 25, 2011 @ 10:09 PM

  18. There’s also a rare frequently misdiagnosed form of epilepsy called Transient Epileptic Amnesia T. E. A.
    Transient Epileptic Amnesia involves recurrent episodes of transient amnesia. The attacks often occur upon waking, do not affect other cognitive abilities such as perception, language or judgment, and typically last about half an hour. The attacks are sometimes associated with olfactory hallucinations. Between amnestic episodes, the patient notices a gradual deterioration in his recall/her of remote events, despite normal performance on standard memory tests.


    Comment by Sue — September 25, 2011 @ 10:54 PM

  19. Oh Sue, that sounds AWFUL. Do you have this?


    Comment by Phylis Feiner Johnson — September 26, 2011 @ 2:32 PM

  20. Dear Phylis,

    I found my 7 year old son last friday morning in his bed face down sleeping and snoring. I tried waking him up but with no success. I checked his pulse and breathing and laid him on the side. I ran to my wife (in meantime he urinated) and we tried waking him up together – shouting, slapping but still with no result. After 3 minutes we called 911. We stayed by his side and left him asleep untill they came. They checked blood sugar, talked loudly but stil with no success. They carried him into medic van to take him to ER. Before they started the engine he woke up by himself and not as a result of any action (about 30 minutes after I found him). He was immediatelly fully aware of sorroundings, not confused, could introduce himself. In ER nothing special occured. He was still completely aware of all that was going on and communicating with everyone. He said that he very much enjoyed the ride in medic van. After check he was tired and had a 30 minutes nap. On the same day EEG and CT tests were made. He stayed in hospital. Next evening we were introduced with diagnosys of epilepsy, generalised epileptiform activity. The doctor said it is a severe case and prescribed Depakine chrono. He is scheduled for MRI on Dec. 2nd.
    It is not good news but since we cannot turn back time I am facing new future and trying to get as much information as possible in order to understand it.
    MY QUESTION: I want the accuratest possible diagnosys so we can apply right steps in order to provide the best treatment. But I fear that maybe there is some other issue which doctors did not look for and remains unindentified. What do you recommed as further steps and what is your comment based on information provided?
    You are the first person I am contacting via internet and I am kindly asking you to help me or put me into contact with people who can.
    Best regards from beautiful Slovenia!


    Comment by Sebastjan Gračner — October 20, 2011 @ 9:25 PM

    • I’m not a doc, but at least you can look at “Beyond EEGs…Diagnostic Tools for Epilepsy”


      to know what your testing options are. If it was me — which it isn’t — I would recommend a Continuous Video EEG Monitoring where a patient stays in a special unit for at least 24 hours. Antiepileptic medication is stopped for the duration of this test, since the objective is for seizures to occur so the abnormal brain waves they produce can be recorded.

      A video camera connected to the EEG provides constant monitoring, enabling the medical team to pinpoint the area where a seizure occurs and track the patient’s physiological response to the seizure. Continuous monitoring can also help distinguish between epilepsy and other conditions. It can characterize the seizure type for more precise medication adjustments and locate the originating area of seizures within the brain.

      Also http://www.epilepsy.com has a wealth of information in the orange bars to the left. But be careful. Don’t try to play doctor. Just try to keep a diary of the seizures (if any more occur), what precipitates them (triggers? auras?) and how long they last, plus your son’s reaction/behavior afterwards.

      The best of luck. And please let me know what happens.


      Comment by Phylis Feiner Johnson — October 20, 2011 @ 11:40 PM

      • Dear Phylis,

        Thank you for quick and comprehensive reply.
        We are hoping for video EEG in November.
        And after MRI in December we will have more information about son’s condition.
        Will keep you informed.
        Thank you for now.


        Comment by Sebastjan Gračner — October 22, 2011 @ 11:50 AM

      • Fingers crossed. Glad to hear about the video EEG.


        Comment by Phylis Feiner Johnson — October 22, 2011 @ 1:29 PM

  21. […] a previous article titled “Conditions Commonly Misdiagnosed as Epilepsy” http://epilepsytalk.com/2010/02/17/conditions-commonly-misdiagnosed-as-epilepsy/ I thought I had it all […]


    Pingback by If You DON’T Have Epilepsy, Then WHAT Is It??? « Epilepsy Talk — January 31, 2012 @ 11:20 PM

  22. I feel your annoyance. I never had any luck whatsoever with this kind of thing,
    either. So happy to know I am not all by my


    Comment by Bipin Sekhon — September 2, 2012 @ 5:06 AM

  23. Sigh. Well Bipin…I guess many people share the same problems. That’s why we’re all here for one another…


    Comment by Phylis Feiner Johnson — September 2, 2012 @ 12:39 PM

  24. Just found your site. I’ve had 2 seizures. Both during sleep. My husband said that both times I was stiff, made a distinct humming sound and eyes rolled back. No movement. EEG was normal and no cause known. I’m not convinced they were seizures. On lamotrigene, and no seizures since. Is this like anything you’ve heard described before? Trying to understand more about what’s happening and whether it is or is not a seizure. Thanks.


    Comment by Beth — January 25, 2013 @ 2:02 PM

  25. Welcome Beth!

    First of all, an EEG is not the be all and end all of diagnostic testing.

    I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…

    Beyond EEGs…Diagnostic Tools for Epilepsy


    It sounds to me as if you’re having Nocturnal Seizures.

    Nocturnal epilepsy is a seizure disorder in which seizures occur only while sleeping.

    Several common forms of epilepsy, including frontal lobe epilepsy, can manifest in a nocturnal state.

    Epilepsy can be nocturnal if one only has seizures while you are asleep, or if you normally have seizures that occur at the same time.

    In the latter example, if you stay awake at a time when you are usually asleep, you can have the seizure while awake.

    The condition may be difficult to diagnose. You may be unaware that you are having a seizure disorder.

    To others, the involuntary movements made during sleep may appear no different than those typical to normal sleep.

    One who suffers a nocturnal seizure may notice some unusual differences upon awakening in the morning, such as a headache, having wet your bed, having bitten your tongue, a bone or joint injury, or lightheadedness.

    Others may notice unusual mental behaviors, consistent with the aftermath of a seizure.

    There may also be objects in the vicinity of the bed knocked on the floor, or you may be surprised to find yourself on the floor.

    Another thing to be considered is Sleep Apnea.

    Studies have shown that 10-45% of people with epilepsy have seizures that occur predominantly or exclusively during sleep, whereas 34% have seizures upon awakening and 21% have diffuse seizures (while both awake and asleep).

    Here are some specific epilepsy disorders that are closely related to sleep seizures…

    Frontal Lobe Epilepsy
    Temporal Lobe Epilepsy
    Juvenile Myoclonic Epilepsy
    Epilepsy with Generalized Tonic-Clonic seizures on awakening
    Rolandic Childhood Epilepsy with centrotemporal spikes

    Sleep apnea is when breathing stops briefly during sleep. It affects at least 2% of the general population. But it’s about twice as common for those with poorly controlled epilepsy than in the general population.

    It’s especially important to recognize and treat sleep apnea if you have epilepsy. Not only can the lack of sleep make your seizures worse, so can the lack of oxygen getting to your brain during sleep.

    Here are the full details…

    Seizures and Sleep Disorders


    My suggestion is to get Video EEG Monitoring which allows prolonged simultaneous recording of the your behavior and the EEG.

    Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and your behavior during seizures.

    Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: Whether events with unusual features are epileptic seizures, the type of epileptic seizure, and the region of the brain from which the seizures arise.

    You also may want to consider a sleep study.

    I hope this helps rather than confuses you!!!


    Comment by Phylis Feiner Johnson — January 26, 2013 @ 11:13 AM

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  29. Thank you…and welcome!

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    If you want to subscribe to Epilepsytalk.com and get the latest articles, just go to the bottom box of the right column and click on “Sign me up!”


    Comment by Phylis Feiner Johnson — February 24, 2013 @ 6:11 PM

  30. You really make it appear really easy with your presentation however I find this matter to be really one thing which I think I would never understand.
    It sort of feels too complicated and extremely large for me.
    I am taking a look forward on your subsequent submit, I will attempt to get the hang of it!


    Comment by rental trash dumpsters — February 27, 2013 @ 3:35 PM

    • 39 years of non therapeutic medicines and a unsuccessful removal of my l. temporal lobe. I wonder if
      I really have epilepsy or are my seizures mostly caused by medicines. Seizure frequency has improved ever since I changed from three to just using two meds. I wonder if I doctor will ever have me on just one? I’ll be getting my fourth 72hr. ambulatory EEG next week.


      Comment by Tim Baldwin — February 27, 2013 @ 9:15 PM

      • Tim, unfortunately seizures are a by product of brain surgery. So, if you don’t have epilepsy (which I think is doubtful), you do have seizures.

        I don’t know what kind of seizures you have, but I do know that finding the right mix of AEDs is a real crap shoot, since there are so many out there.

        Not that many people are on monotherapy. Many have a supplemental med to enhance or support or address what their other med does or doesn’t accomplish.

        I think an Ambulatory EEG is a great idea. Hopefully it will show you and your doc where you stand.

        And perhaps from there, you can discuss monotherapy.

        Good luck with your testing and let us know how everything works out.


        Comment by Phylis Feiner Johnson — February 28, 2013 @ 10:55 AM

  31. You’re right. It IS confusing, because there are so many “ifs.”

    Is there any specific question I can help you with?

    These links MIGHT be a little more helpful:

    Glossary of Epilepsy Terms


    Epilepsy-Misdiagnosis is Common


    Common Misdiagnoses and Epilepsy



    Comment by Phylis Feiner Johnson — February 27, 2013 @ 4:07 PM

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    Comment by Visas for Overseas government employees — March 5, 2013 @ 8:05 PM

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    Comment by Sylvia — March 6, 2013 @ 7:30 PM

  34. Sylvia, that’s what we’re here for…to share and care..and help each other out.

    If you have a problem, a question, a gripe…or just need to talk, feel free to sing out.


    Comment by Phylis Feiner Johnson — March 6, 2013 @ 9:32 PM

  35. During my journey it took over 10 years to find out what was wrong with me. I had epilepsy, but was mis-diagnosed with a panic disorder, then stress disorder, and prescribed anti-anxiety and anti-depressants.

    Finally, I started seeing a psychiatrist. When I described one of my spells the psychiatrist told me it sounded more like a seizure. She referred me to an internist, and he had an EEG and an MRI done. The EEG showed “slight abnormalities”, but the MRI showed temporal mesial sclerosis (Scarring). This was the result of a concussion I had suffered about 2 or 3 years before the spells started happening. I had had an EEG done back then too, but it showed no abnormalities.

    Over the course of my journey, I have had 3 “Short term” EEGs and none have shown anything definitive. I had the 24 hour video and EEG monitoring and that did catch some seizures. However, for my type of epilepsy, the best diagnostic tool was the MRI as it found the scarring.

    Moral of the story, get second opinions, and don’t be satisified with a doctor labeling your spell as panic or stress if you think it is more. The best advocate for you, is yourself.


    Comment by David — March 19, 2013 @ 10:17 AM

    • What a long haul…

      But the way:

      This information comes from the brain injury website: a medical, legal and informational resource for people dealing with traumatic head injury…and subsequent seizures.

      “Seizures may develop immediately after an injury to the brain or may develop in delayed fashion, showing up months or years after the initial trauma. Generally speaking, the risk of post traumatic seizures is related to the severity of the injury — the greater the injury, the higher the risk of developing seizures. Even mild to moderate injuries can result in seizures.

      There are many kinds of seizures and seizures are not an uncommon condition among persons without head injuries. It is thought that a head injury disrupts the pathways of the brain and that an epileptic seizure can be viewed as a sort of short-circuit of the brain’s electrical functioning. During the seizure the electrical fields in the brain are overloaded, resulting in seizures.”


      Comment by Phylis Feiner Johnson — March 19, 2013 @ 10:30 AM

      • After using anti-epileptic drugs for 22 years before having my left temporal lobe removed unsuccessfully in ’96 w/o any reduction to meds. I’m worried that some of my seizures may non-epileptic. Maybe this is why AEDs or surgery have never worked totally. Can I get help by getting rechecked out with a new doctor w/o identifying any past doctor and leave it just to me where he won’t look at my diagnoses in ’74? The MRI will show the doctor that I’d had past surgery. Timothy Baldwin


        Comment by Tim Baldwin — March 19, 2013 @ 8:39 PM

  36. Tim, I’m ALWAYS in favor of a second opinion!

    This article may help you:

    2013 Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors


    It’s a compilation by website forum members who have had positive personal experiences with docs over the years.

    I think you SHOULD take all of your records with you. And screw the previous doctor. It could have been messed up brain surgery as so many people — like Charlie — have had.

    After 53 years of active epilepsy, he had brain surgery at NYU with Orrin Devinsky’s group (my hero) and he’s been seizure-free ever since.

    Yes, he goes for check-ups 4 times a year (the responsible thing to do) and he takes prophylactic meds for safety’s sake, but he’s got a new lease on life.

    You might too. IF you find the right doc.

    Also, an article you might be interested in:

    Beyond EEGs…Diagnostic Tools for Epilepsy


    PLEASE don’t feel it’s “your fault.” It’s the fault of whoever screwed up.


    Comment by Phylis Feiner Johnson — March 19, 2013 @ 10:49 PM

  37. Quality articles is the crucial to attract
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    Comment by Immigration Advice in Ashford — March 21, 2013 @ 6:41 AM

  38. anyone who wants to join, i just created a fb online support group for ppl to discuss epilepsy issues. its called Seizure Survivors……


    Comment by Christine Aalders — March 28, 2013 @ 11:23 PM

  39. I’m 26 years old and 6 months agoo I had my first seizure. I don’t drink, do drugs or have or had a brain injury. 2 months later I had another seizure waking up from a nap wasn’t a bad one I was able to get down on the floor and my girlfriend was there. 2 or 3 months later I had another one while I was sleeping and fell off my bed and smashed my eye off my night table and bit both sides of my tounge. My neroologist put me on caromoxapine. This was a week ago so here’s to hoping no more but the doctor did a ct test, and mri and an eeg. Couldn’t find anything at all.


    Comment by matt — April 7, 2013 @ 6:30 AM

  40. First of all, I don’t really have a lot of faith in EEGs, because they only measure activity on the surface of your brain.

    I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. (Not on your menu, it seems.)

    Here’s a little primer on seizure testing which might help…

    Beyond EEGs…Diagnostic Tools for Epilepsy


    Also, have you been through a lot of stress lately?

    If so, there a chance you might be experiencing “pseudo seizures”. (I have both.)

    Epilepsy Versus “Pseudo-Seizures”


    Getting the correct diagnosis is a tough ball to unravel.

    And finding the right med mix is even more of a crap shoot.

    Here’s hoping the Carbamazepine (Tegretol, Tegretol XR , Equetro, Carbatrol) works for you.

    Here’s a little info on it:



    Comment by Phylis Feiner Johnson — April 7, 2013 @ 2:13 PM

  41. Good post. I absolutely appreciate this site. Keep it up!


    Comment by nyc hobbies — April 11, 2013 @ 6:24 AM

  42. Thanks for the compliment, NYC!


    Comment by Phylis Feiner Johnson — April 11, 2013 @ 8:51 AM

  43. Top site,very well done,keep up the good work


    Comment by Naz1968 — October 3, 2013 @ 6:45 PM

  44. Tim, just because one operation didn’t work doesn’t mean that another one wouldn’t. (If you’ve got the stomach for it.)

    Charlie had a botched brain surgery, then went to NYC, was operated on by one of Orin Devinsky’s group and is now seizure free.

    Or there’s the non-invasive route — I don’t know if it’s appropriate or would work for you, but here are some options.

    From AEDs to Surgery and Beyond…Some Options Explained


    I hope something works for you. Keep us posted and good luck.


    Comment by Phylis Feiner Johnson — October 5, 2013 @ 10:02 AM

  45. Tim, another thought. If you thing your epilepsy diagnosis is questionable, read this:

    “Pseudo Seizures” AND Epilepsy – Yes You CAN have BOTH!


    Epilepsy Versus “Pseudo-Seizures”



    Comment by Phylis Feiner Johnson — October 5, 2013 @ 10:09 AM

  46. Ever heard of anything called “sub-clinical” seizures? I had some suggest something like this might be a cause of some dizziness that i have always thought was a temporary thing from tapering off a med due to side effects.

    He seemed to suggest that someone might have activity related to seizures so mild that a person might not otherwise notice it. I’d never heard of that before, especially since my auras, partials, and seizures are very distinctive in the way they make me feel.

    Just wondering if anyone else heard of this. Sounded like bunk to me, at least in my case..


    Comment by Doug — October 19, 2013 @ 12:28 AM

    • Well, according to Wikipedia, they DO exist.

      “A Subclinical seizure is a type of seizure often experienced by people with epilepsy, in which an EEG trace will show abnormal brain activity, usually for a short duration of time but which does not present any noticeable clinical signs or symptoms.

      This is often manifest as a single spike on the EEG trace or a slowing of brain activity not correlating to their level of consciousness or awareness.

      Subclinical seizures can be useful to a neurologist in the diagnosis of epilepsy.”


      Another source says: “A subclinical seizure is a epileptic seizure without symptoms.”



      Comment by Phylis Feiner Johnson — October 19, 2013 @ 1:23 AM

      • So, could these subclinical activity show up as dizziness? I assumed that was my medication. Also, can the sub-clinical activity, if you are actually having it, cause long term damage or cognitive problems if not treated?


        Comment by Doug — October 19, 2013 @ 2:24 PM

  47. Doug, I’m sorry to say, I really don’t know. :-(


    Comment by Phylis Feiner Johnson — October 19, 2013 @ 2:41 PM

  48. Hey there, I had a question and didn’t know where to post it, so I thought I’d just put it here. How can you tell the difference between neuropathy from seizure drug use and other kinds of foot numbness.

    I go jogging, and after awhile running indoors on a treadmill, I’ve gone back to running outdoors on pavement and noticed my feet get numb during the run. Afterwards, they tingle for awhile and seem to go back to normal.

    Of course, being a person that takes seizure meds this made me worry a little about neuropathy. Aside from going to a doc and having him touch my foot with a metal wand, is there a way to tell the difference between running foot numbness and early onset of neuropathy?


    Comment by Doug — October 24, 2013 @ 6:25 PM

  49. Doug, if it were me, first I’d check with my neuro, for any drug related side effects and if not, I’d go to an orthopedist.

    (Unlesss you have diabetes. That’s a whole different scenerio.)

    Neouropathy is nerve pain and it could be associated with the angle at which your foot is hitting the ground or pain from the surface you’re running on or neuropathy itself.

    The orthopedist will probably do some foot fondling (!) and maybe send you for an MRI.

    My guess is that he’ll tell you to get different running shoes (and hopfully recommend a type or brand), then make an insert for them.


    Comment by Phylis Feiner Johnson — October 25, 2013 @ 11:02 AM

    • Thanks Phylis. I also feel general weakness and feel “dead leggeded” when I go running. i take Keppra.


      Comment by Doug — October 26, 2013 @ 7:07 PM

  50. That’s why I stopped running at a certain point. :-(


    Comment by Phylis Feiner Johnson — October 27, 2013 @ 11:13 AM

  51. Hmm is anyone else encountering problems with the pictures on this blog loading?

    I’m trying to figure out if its a problem on my
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    Comment by fatersainat72oo.tumblr.com — January 21, 2014 @ 12:34 AM

  52. It could be your browser.


    Comment by Phylis Feiner Johnson — January 21, 2014 @ 8:44 AM

  53. I have had neurocardiogenic syncope for last 2 years, and a mild AR since I was 14. My EEGs 2012 & 2014 were both ‘Abnormal’. I was (mis?)diagnosed with Benign Partial Epilepsy with Occipital Paroxysms and started taking Trileptal for last 2 weeks. I have never had a seizure ! Only minor dizziness and short term memory loss. Visiting various websites, I am not sure whether I have epilepsy or is it due to syncope. I am male, 62 years old. I am regular in gym for last 5 years.
    Thanks for this very informative blog.


    Comment by Nadir Osman — May 9, 2014 @ 1:43 PM

  54. It may look like a seizure and act like a seizure — fainting, “blacking out,” — but syncope is the temporary loss of consciousness, followed by the return to full wakefulness.

    This loss of consciousness may be accompanied by loss of muscle tone that can result in falling or slumping over.

    Fainting is differentiated from seizure, during which patients may also lose consciousness.


    That being said, if your EEG was abnormal, that could definitely point to seizures.

    The Trileptal takes about six weeks to pass your brain / blood barrier.

    In the meantime, I would keep a daily seizure diary, noting dizziness and memory loss events — when they happen and how long they last.

    Do you think there’s anything that triggers them? Like blood pressure levels, physical stress, not getting enough sleep, not eating correctly, etc?

    Just to be sure if the med is having any positive effect on you, (afer you’ve been on it for about six weeks) take blood tests to see if a theraupetic amount of the Trieptal is in your bloodstream. That, hopefully, will tell you something (coupled with your daily diary).


    Comment by Phylis Feiner Johnson — May 9, 2014 @ 3:35 PM

  55. These are people who are usually faced with far too many problems
    on their plate for them eat. When you are obsessively negative, it means thst you have a tendency toward being “negative” about people, places,
    situations, and things in your life. A panic attack is
    an expected or natural reaction to threat or danger.


    Comment by Anxiety Disorder — May 13, 2014 @ 1:57 PM

  56. Although I am excessively upbeat, sometimes I keep a lot inside and then come to a boiling point and panic.

    But I wholly agree and unfortunately, I relate. Panic is my middle name.

    Here’s an article that might be of interest:

    Some Panic Attack Solutions…



    Comment by Phylis Feiner Johnson — May 13, 2014 @ 3:57 PM

  57. Encephalitis may be the cause of Epilepsy. Being that I had encephalitis, I did seize in the ER for the first time but because of the Encephalitis I do have Epilepsy now.


    Comment by Brigitte — September 9, 2014 @ 3:28 PM

  58. I guess the big question is: which came first? The chicken or the egg???


    Comment by Phylis Feiner Johnson — September 10, 2014 @ 11:44 AM

  59. I have some form of stress induced epilepsy that seems to effect me mostly upon waking up, it isn’t what I would call severe although I do from time to time end up with a smashed up face. It starts most of the time with limb jerks, that then stresses me out causes them to get worse causing me to then have a fit.
    What is this that is ruining my life, does anyone else have this type of epilepsy??? ;((


    Comment by Aaron Moore — October 17, 2014 @ 10:07 AM

  60. I think what you may experiencing is literally a sleep disorder. (DUH!)

    Studies have shown that 10-45% of people with epilepsy have seizures that occur predominantly or exclusively during sleep, whereas 34% have seizures upon awakening and 21% have diffuse seizures (while both awake and asleep).

    The way seizures spread through the brain also seems to differ depending on sleep state. Interestingly, frontal lobe seizures begin during sleep more often than temporal lobe seizures. However, temporal lobe seizures are more likely to spread and result in a convulsion when beginning during sleep, while frontal lobe seizures are not. This discovery could have implications for treatment if better understood.

    Despite this, many physicians overlook the potential for treatable causes of sleep disruption in patients with epilepsy. And the outcome is that optimal sleep may not be achieved.

    Here are some specific epilepsy disorders that are closely related to sleep seizures…
    **** Epilepsy with Generalized Tonic-Clonic seizures on awakening (This is what I think you’re referring to)
    Frontal Lobe Epilepsy
    Temporal Lobe Epilepsy
    Juvenile Myoclonic Epilepsy
    Rolandic Childhood Epilepsy with centrotemporal spikes

    On occasions, nocturnal seizures can be misdiagnosed as a sleep disorder and certain sleep disorders can be misdiagnosed as epilepsy. (Video-EEG recordings can assist with the correct diagnosis.)

    Seizures and Sleep Disorders



    Comment by Phylis Feiner Johnson — October 17, 2014 @ 10:20 AM

  61. Wow, awesome weblog layout! How long have you been running a
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    Comment by cardiovascular problems — January 26, 2015 @ 11:58 AM



    Comment by JENN — February 1, 2015 @ 9:02 AM

  63. Please take him to a Pediatric Neurologist

    Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

    2014-2015 Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors


    Dr. Kevin Chapman, Barrows Neurological Institute, Phoenix, AZ — Pediatric Epileptologist & Neurologist
    Dr. Randa Jarrar, Phoenix Children’s Hospital, Phoenix, AZ

    Dr. Kelfer, Cook’s County Children’s Medical Hospital, Los Angles, CA
    Dr. Nutik, Kaiser, Redwood City, CA
    Dr. Donald Shields, UCLA Mattel Children’s Hospital Division of Pediatric Neurology, CA
    Dr. Diane Stein, Irvine, CA
    Dr. Joyce Wu, UCLA Mattel Children’s Hospital Division of Pediatric Neurology, CA
    Dr. Mary Zupanc, Children’s Hospital, Orange County, CA — Epileptologist

    Francine Testa, Yale-New Haven Hospital, New Haven, CT
    Susan Levy, Yale-NewHavenHospital, New Haven, CT
    Dr. Laura Ment, Yale-NewHavenHospital, New Haven, CT

    Dr. Ronald Davis, Orlando, FL
    Dr. Kojik, Orlando, FL
    Dr. Naqvi, Miami Children’s Hospital, Miami, FL
    Dr. Passero, St. Petersberg, FL

    Dr. Robert Flamini, Scottish Rite Children’s Hospital, Atlanta, GA
    Dr. Sandra Helmers, Emory University, Atlanta, GA
    Dr. Roger Hudgins, Scottish Rite Children’s Hospital, Atlanta, GA

    Dr. Kelfer, Cook Children’s Medical Hospital, Cook County, IL
    Dr. Marianne Larsen, Children’s Memorial Hospital, Chicago, IL
    Dr. Douglas Nordli, Children’s Memorial Hospital, Chicago, IL — Pediatric Epileptologist
    Dr. Marvin A. Rossi, Rush University Medical Center, Chicago, IL
    Dr. Blas Zelaya, Peoria, IL

    Dr. Vicenta Salanova, Riley Hospital for Children, Indianapolis, IN

    Dr. Vinary Puri, Director of Child Neurology, Kosair Children’s Hospital and University of Louisville, Louisville, KY

    Dr. Eric Kossof, Johns Hopkins, Baltimore, MD
    Dr. William R Leahy, Greenbelt, MD
    Dr. Naidu, Kennedy Krieger Institute, Baltimore, MD

    Dr. Adjani, UMassachusetts Medical Center, MA
    Dr. Blaise Bourgeois, Children’s Hospital, Boston, MA
    Dr. Laurie Douglass, Boston, MA
    Dr. Frances E. Jensen, Children’s Hospital, Boston, MA
    Dr. Joseph Madsen, Children’s Hospital, Boston, MA
    Dr. Annapurna (Ann) Poduri, at Boston Children’s Hospital, Boston, MA
    Dr. Kenneth Sassower, Massachusetts General Hospital, Boston, MA — Children and Adults — Neurologist/Epileptologist
    Dr. Ronald Thibert, Massachusetts General Hospital, Boston, MA
    Dr. Elizabeth Thiele, Massachusetts General Hospital, Boston, MA — Pediatric Neurologist/Epileptologist

    Dr. Harry Chugani, Detroit Children’s Hospital, Detroit, MI
    Dr. Eileen McCormick, Michigan Institute for Neurological Disorders (MIND), Farmington Hills, MI

    Dr. Jason Doescher, Minnesota Epilepsy Group, St. Paul, MN
    Dr. Mary Dunn, St. Paul Children’s, St. Paul, MN
    Dr. Frost, Minnesota Epilepsy Center, St. Paul, MN

    Dr. David Callahan, St. Luke’s Hospital, Chesterfield, MO
    Dr. James Rohrbaugh, St Luke’s Hospital, Chesterfield, MO
    Dr. William Rosenfeld, Children’s Hospital, St. Louis, MO
    Dr. Micheal Symth, St. Louis Children’s Hospital, St. Louis, MO — Neurosurgeon
    Dr. Richard Torkelson, Children’s Mercy, Kansas City, MO
    Dr. Edwin Trevathan, St. Louis Children’s Hospital, St. Louis, MO
    Dr. John Zempel, St. Louis Children’s Hosptial, St. Louis, MO — Epileptologist

    Dr. Brian Kossak, Dartmouth-Hitchcock Medical Center, Concord, NH — Neurosurgeon

    Dr. Daniel Alder, New Jersey
    Dr. Steven Kugler, Robert Wood Johnson Hospital, New Brunswick, NJ
    Dr. Wollack, Robert Wood Johnson Hospital, New Brunswick, NJ

    Dr. Claudia Chiriboga, Columbia Presbyterian, New York City, NY
    William S. MacAllister, Ph.D., Pediatric Neuropsychologist, NYU Comprehensive Epilepsy Center, New York City, NY
    Dr. Gail Solomon, NYU Comprehensive Epilepsy Center, New York City, NY

    Dr. Corbier, Concord, NC
    Dr. Darrell V. Lewis, Duke Children’s, Atlanta, NC
    Dr. Gallentine, Duke Children’s, Atlanta, NC
    Dr. Michael B. Tennison, Chapel Hill, NC
    Dr. Shana Wallace, Charlotte, NC

    Dr. Kerry Crone, Children’s Hospital Medical Center, Cincinnati, OH
    Dr. Cynthia Foldvary, Cleveland Clinic, Cleveland, OH
    Dr. David Franz, Children’s Hospital Medical Center, Cincinnati & Mason, OH
    Dr. Gupta, Cleveland Clinic, Cleveland, OH
    Dr. Roger Hudgins, Akron Children’s Hospital, Akron, OH
    Dr. Kotogal, Cleveland Clinic, Cleveland, OH – Epileptologist
    Dr. Lichwanni, Cleveland Clinic, Cleveland, OH — Epileptologist
    Dr. Ingrid Tuxhorn, Rainbow’s Babies and Children’s Hospital, Cleveland, OH
    Dr. Wyllie, Cleveland Clinic, Cleveland, OH — Epileptologist

    Dr. “Boo” Pediatric Neurology of Leigh Valley, PA
    Dr. Khurana, St. Christopher’s Hospital, Philadelphia, PA
    Dr. Roger Porter, Children’s Hospital of Philadelphia, Philadelphia, PA
    Dr. Strom, Children’s Hospital of Philadelphia, Philadelphia, PA

    Dr. Stephen Fulton, LeBonheur Children’s Hospital, Memphis, TN — Epileptologist
    Dr. Paul Knowles, T.C. Thompson’s Children’s Hospital, Chattanooga, TN
    Dr. Barbara Olsen, Pediatric Neurology Associates, Nashville, TN
    Dr. James Wheless, LeBonheur Children’s Hospital, Memphis, TN

    Dr Gretchen Von Allmen, University of Texas Physicians/Memorial Hermann Hospital, Houston, TX
    Dr. Imad T. Jarjour, Houston, TX
    Dr. Howard Kelfer, Cook Children’s Medical Center, Fort Worth, TX
    Dr. Anthony Riela, Texas Child Neurology, Plano, TX
    Dr. Josh Rotenberg, Pediatric Neurologist, Texas Medical & Sleep Specialists, San Antonio and Houston, TX
    Dr. Angus Wilfong, Texas Children’s Hospital, Houston, TX

    Dr. Pearl, Fairfax, Virginia

    Dr. Pearl, Children’s National Medical Center, Washington, D.C.

    Dr. Kurt Hecox, Children’s Hospital of Wisconsin, Milwaukee, WI
    Dr. S. Anne Joseph, Children’s Hospital of Wisconsin, Milwaukee, WI
    Dr. Sean Lew, Children’s Hospital of Wisconsin, Milwaukee, WI
    Dr. Charles Marcuccilli, Milwaukee, WI — Epileptologist

    Also, here is a link to the 2014-2015 Top-Ranked Pediatric Hospitals for Neurology and Neurosurgery



    Comment by Phylis Feiner Johnson — February 1, 2015 @ 10:04 AM

  64. My 5 year old daughter has undergone two different EEGs which came back normal. There has been suspicion of absence seizures…however it was dismissed. Six weeks later today I got a call from the school nurse stating that her eyes rolled to the back of her head in class for about 5 seconds. This has never occurred…usually she just spaces out. The neurologist would like to reevaluate her. Is it possible she was misdiagnosed or are there other tests I should ask them to do? Totally new to all of this…thank you


    Comment by Sherri — February 16, 2015 @ 11:42 AM

  65. Hi Sherri, Normal EEGs are merely superficial, because they only measure the surface of the brain. And yes, there are many more effective diagnostic tests out there!

    Beyond EEGs…Diagnostic Tools for Epilepsy



    Comment by Phylis Feiner Johnson — February 16, 2015 @ 12:31 PM

  66. Hello, I am 50 years old, a caregiver to my elderly mother with one child who moved back home (teenager, who returned from college). Over the past 2 years, I have been under a tremendous amount of stress (Mom has dementia, etc.), and my passing out started happening more frequently. A recent EEG showed that I have been having seizures. Now I am waiting for the radiologist to phone with an MRI appointment, to be sure there’s not a ‘growth’ in my brain. Sure wish the Dr hadn’t said that : / I’ve just been thinking that the stress is causing me to pass out. I’m a little scared right now.


    Comment by Sue Ann Richardson — April 22, 2015 @ 1:59 PM

  67. Sue Ann, stress is #1 in the hit parade.

    Stress can trigger hyperventilation which can provoke seizures, especially absence seizures. It can increase cortisol, known as “the stress hormone” because cortisol is secreted in higher levels during the body’s “fight or flight” response to stress. And, as you may imagine, it’s responsible for several stress-related changes in the body which also may influence seizure activity.

    Negative emotions related to stress, such as anger, worry or fright, may also cause seizures. This happens because the limbic system, the portion of the brain that regulates emotion, is one of the most common places for seizures to begin. You’ll probably find that you have more seizures during or after periods of anxiety or stress.

    As for your doctor, and the MRI, I don’t think it’s cause for worry. He’s just being extra careful. Which is a GOOD thing.

    Let me know what happens…


    Comment by Phylis Feiner Johnson — April 22, 2015 @ 4:35 PM

  68. Hi. I was told by my x that I was having episodes as I slept she is an epileptic she has grand mall seizures for years now. I was having them at times. But lately they have been getting worse it took me over 3 months to get into a neurologist. They out me on topromitate 100 mg but my primary dr moved it up to 200 mg twice a day I drove to the Er on my way home from work one day I wasn’t feeling well I tried to get my meds but cvs wouldn’t sell my only a few till I got paid then I ended up having two seizures they told me I was held there for 5 days the state took my drivers license now I went for eeg monitoring for 5 days the dr first said he saw something then he changed his mind he said I need to see a Phsycoligst but mean while I had 4 seizures and they told me after the first one I was out for 5 hours then I was out for over a day and I was locked up and lost all memory and my jaw was locked up and I bit my tounge and my eyes were rolled in the back of my head I’m confused I was diagnosed before about 4-5 years ago with petite seizures so y the changes now. I no I have some new stress but I was having the same issues before but now I get nausea and a metal taste in my mouth I never did before I’m very sore after an episode and I can’t function at all for hours or a day is there a different med I can take before the topamax I used to just get a bad heads I in the back rt of my head then I would sleep for a day or two or take my x fiancées topamax or keppra I think don’t really remember. I don’t like this dr. Can any one help with this one is it me ? Or is the dr right thank u


    Comment by Bob — May 3, 2015 @ 6:38 PM

  69. First of all Bob, couldn’t you get enough meds to see you through from the ER? Secondly, it sounds like you’re having nocturnal seizures.

    This article might explain it to you better:
    The Nightmare of Nocturnal Seizures


    What do you mean when you say “They locked you up.”

    The nausea and metal taste in your mouth is an aura, warning you that a seizure is coming. (Usually.)

    And yes, I think you should demand another med plus take your records and get a second opinion.

    Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

    2015 Comprehensive List of GOOD Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors


    It all sounds crazy to me. This whole run-around stinks.

    I hope I have helped you in some way.


    Comment by Phylis Feiner Johnson — May 3, 2015 @ 7:00 PM

  70. I meant I was knock out for over a day I never had the metal taste before since they did that light test. I asked that they didn’t do it because I was playing a game with my son years ago and I woke up in the hospital from the lights I guess but they did it two times in a row. And I was still on topamax I believe they lowered me down to 100 mg at the time of the test. And I was very sore when I woke up didn’t remember anything except I knew I had an episode. I have been home a week and my neighbor has been watching me and she said it’s been getting worse I’m having them just about every night now not while I’m sleeping just at night. Last night she found me on the floor with the chair over turned and papers all over and vomit in front of my face. That’s a new thing too I get nausea now too I’m so confused


    Comment by Bob — May 3, 2015 @ 7:56 PM

  71. Sorry I got dizzy thank u for all ur help I have to cut u off I’m trying to document it I think another one is coming on again I don’t know y in having so many now since the testing and I’m not sleeping anymore it’s getting dangerous now cause I’m passing out too I was told. I will get back to u


    Comment by Bob — May 3, 2015 @ 8:21 PM

  72. Hi Phyllis. I did have another on lastnight. Not as bad. Though. The only reason I went to the Er is cause cvs wouldn’t sell me partial meds and after I found out they should of I spoke to corporate cvs But going to the Er and having a seizure the law in pa is the had to send the paper work to pen dot so my license was suspended for 6 months unless my neuro filles out the form and tells them its nocturnal But now I’m not so sure anymore. After the testing I’m all messed up I made another appt with a different dr something is not right. Thank u for all your help. I have a severe headache today. I don’t ever get them being to the topirmate I’m so confused these days Bob


    Comment by perkselectric — May 4, 2015 @ 6:11 AM

  73. You’re right. CVS should have given you enough meds as a “hold-over”.

    Since your seizures aren’t happening in your sleep, they’re not nocturnal.

    As for the license, I live in PA and the same thing happened to me.

    It’s a curse and a blessing.

    You have to depend on everyone to do anything (neighbors, friends and family helped me). But on the other hand, you wouldn’t want to endanger someone else while having a seizure at the wheel.

    As for you being reported, it’s the law. If they didn’t, they could be charged with negligence and be breaking the law.

    In this case, your doctor can’t help you. The paper have been filed and it’s a done deal.

    Here’s my tale:

    Epilepsy and Driving (A Small Rant)



    Comment by Phylis Feiner Johnson — May 4, 2015 @ 8:57 AM

    • Thank you for all your input I’m fine without driving it’s very hard where I am. I live 52 miles from work and live alone I have a great job too so it’s very hard I think I just need the right treatments or meds I do have a few different appointments with different doctors the nausea feeling have gotten to the point it’s almost all day long every day it’s horrible I don’t want to get up anymore. I keep reading everything you send me and my neighbor writes down everything she sees or finds when she does come over if she does see me in this horrible state thank you. I never smoked in my life I haven’t drank liquor in over 18 years never did drugs. I have been in a few bad car accidents. I did play ice hockey and roller hockey etc. and race motocross. I don’t know y now. Thank u. Bob


      Comment by perkselectric — May 4, 2015 @ 9:30 AM

  74. Were the sport injuries related in any way to your seizures?

    Traumatic Brain Injury and Epilepsy


    (Glad you’re going to different docs for other opinions. There is no reason you should suffer this way.)


    Comment by Phylis Feiner Johnson — May 4, 2015 @ 10:17 AM

  75. Not that I’m aware of I had two different eegs both came back ok I was told. But the last one the dr first said he saw something then he retracted his statement. I know the eeg tech s came in several times and had to reattach the leads to my head I sweat a lot I don’t see how they can get a good reading then and one lady kept yelling at me not to move how can I not move around Today was a very bad at work I kept walking into everything. Drs are not returning my phone calls I’m in fear for my life now I practically cry and worry about will I make it to the next day. I’m very scared


    Comment by perkselectric — May 4, 2015 @ 9:01 PM

  76. I was told I might have that I did make an appt to c a psychologist. I’m open to anything that will help me I am not afraid to get any help. At first he didn’t want me on the troprimate then he lowered my dose. But my pcp said no way go back to 200 mg especially if I’m falling and losing my memory and biting my tounge I just got in touch with a new dr I do have an apt with another one I also told my neighbor next time if it’s that bad just call an ambulance I can’t keep this up thank u for all you help I read everything u send my way. Bob


    Comment by perkselectric — May 5, 2015 @ 1:57 PM

  77. I have a serious situation going on here, I started having seizures during my pregnancy and I was put through the ringer with specialist. I have a history of prior brain injury and three car accidents. I’ve been diagnosed with epilepsy and pseudoseizure! But low and behold my two children at the age of 8 & 9 were discovered to have seizures duri g a sleep study ,so someone neurologist please explain how in the he** can I have pseudoseizures!!


    Comment by Faye Allen — June 15, 2015 @ 2:04 PM

  78. Sounds pretty dubious to me. But you can have both.

    See this article and see what you think:

    “Pseudo Seizures” AND Epilepsy – Yes You CAN Have BOTH!


    Researchers have discovered that the frequency of epilepsy in patients with PNES (psychogenic non-epileptic seizures) is much higher than that of previous studies, and point out the need, at least in some cases, for prolonging the evaluation of patients with PNES who have clinical histories indicating epilepsy.

    Other reports showed that 5.3 to 73% of patients with PNES also showed epileptic symptoms.

    At any rate, I would suggest you get a second and maybe even third opinion. (Bring all your test results with you.)

    If you want any doc suggestions, below is a compilation by website forum members who have had positive personal experiences with docs over the years.

    NOTE: The National Association of Epilepsy Centers (NAEC) provides a directory of specialized epilepsy centers in the U.S. along with other useful information about epilepsy. http://www.naeclocator.org/find.htm

    2015 Comprehensive List of GOOD Neurologists… Epileptologists…Neurosurgeons…and Pediatric Doctors


    I hope some of this helps.


    Comment by Phylis Feiner Johnson — June 15, 2015 @ 3:11 PM

  79. I have a niece who is 8 years old, she had and accident in the bathroom and had to have surgery. Then maybe a week or two later she started having these episodes of zoning out but staying in motion of what she was currently doing went to neuro and did test and started her on triliptal. Well she stopped having them even got off medicine for 1 year and started having them again put her on Keppra had severe mood swings changed her to triliptal and have her currently on 900mg. Now she is sleepy, dizzy,slur speach,and unbalanced not all the time but just here lately. Oh and she has vomited. Seen dr. Triliptal levels are fine . Help in any way to get her going on the right track to feeling better. Very worried


    Comment by nora — June 25, 2015 @ 11:24 PM

  80. Hello the 25 of may my wife said I had a seizure and was out of 10 min I was taken to a hospital had a ct scan blood work ekg and all was normal I went to my family doctor he ordered a MRI it was normal he sent me to a neurologist he ordered another MRI and a eeg they both came back normal now he is sending me to another neurologist for more test if I understand right it is going to be some type of eeg I wear for a few days with all the other tests that have been done what are the chances of this new test showing anything I’m 42 and this was the 1st and only time I have ever blacked out I am kind of a high strung person worry about everything


    Comment by Chad — June 30, 2015 @ 3:32 AM

  81. Chad, it sounds like it could have been a one time incident.

    Especially with all the thorough testing you’ve had.

    Could it have been triggered by stress?

    The only other thing I can think of is a “pseudo” seizure.

    Here’s an article that may help:

    Epilepsy Versus “Pseudo-Seizures”


    I hope you get to the bottom of it, soon.


    Comment by Phylis Feiner Johnson — June 30, 2015 @ 7:52 AM

    • I was rushed to the hospital yesterday for a heart attack bp was all over the chart from what I was told the ems was called and I was fighting with them I was all stress out it was after that they realized I was having a heart attack


      Comment by Chad — July 1, 2015 @ 11:07 AM

      • Chad a heart attack may imitate a seizure because of inconsistent blood pressure and heart beat.

        But it’s sad when EMTs don’t know their stuff or what to do with you. :-(


        Comment by Phylis Feiner Johnson — July 1, 2015 @ 12:24 PM



    Comment by gary — June 30, 2015 @ 5:46 PM

  83. Gary, can you get your records from the hospital?

    As for your driver’s license, this may help:




    Comment by Phylis Feiner Johnson — June 30, 2015 @ 6:14 PM

    • doctor kevin Kelly was told you are not my doctor and no I’m releasing my recordrs to your office I was there 13 minutes and walked out and if I am having seizures why did Indiana regional never tell the state or did the epilepsy unit in conemaugh hospital now on july 7 2015 at 2:15 pm I see doctor lynn remember I have a CDL LICENSES SINCE I WAS OPERATED ON JUNE 4 2014 FOR A THROAT SCULIPTURE AND 24 HOURS LATER MY GALBLATTER EXPLOTED I AM FINE I HAVE WENT 1 YEAR AND26 DAYS INDIANA WROTE THESE UP AS SEIZURE LIKE ACTIVITY the law is the law its a federal law to notify the state


      Comment by Gary Waddell — July 1, 2015 @ 2:51 PM

  84. this was to say no I am not releasing my records to you and if he did get them it was illegal do to the hipo law any can notify me by e-mail moveniron@aol.com


    Comment by Gary Waddell — July 1, 2015 @ 2:54 PM

    • But Gary, if they’re YOUR records, you’re LEGALLY allowed access to them by law.

      Do you have any documentation of this guy being your doc? Insurance payment, for example.

      And is he denying being your doc because of the major screw-up?


      Comment by Phylis Feiner Johnson — July 1, 2015 @ 3:07 PM

  85. the amount of stress will make a person have seizure like activity talk about stress about $103.000 00


    Comment by Gary Waddell — July 1, 2015 @ 2:56 PM

    • Are there some extra zeros in there???


      Comment by Phylis Feiner Johnson — July 1, 2015 @ 3:09 PM

      • no extra zeros one hundred and three thousand.and I was sent their BUY the insurance company doctor Kelly’s office called and said we need you to sign this and I said NOWAY NEVER


        Comment by Gary Waddell — July 1, 2015 @ 3:36 PM

  86. HOW CAN INDIANA REGIONAL MEDICAL LOCATED IN Indiana Pennsylvania get away with the stuff they have pulled over and over again seizure like activity and a seizure are different their is something awrong here.on tues july 7 2015 whats going to happen to me is this a waist doing this I have been denied disability 4 times and lost everything thanks to a lawyer and social security I give up on that its a joke


    Comment by Gary Waddell — July 1, 2015 @ 3:43 PM



    Comment by Gary Waddell — July 1, 2015 @ 3:45 PM

    • Can’t blame you for that. :-(


      Comment by Phylis Feiner Johnson — July 1, 2015 @ 3:57 PM

      • the epilepsy foundation in Johnstown pa can’t believe all this as many times as I went to federal court and lost EVERYTHING THE GIRL AT THE EPILESY FOUNDATION IS A GREAT AND OUTSTANDING PERSON WITHOUT HER I WOULD HAVE GIVEN UP ALL I WOULD LIKE IS TO TRUCK AGAIN RUNNING OVER THE ROAD IS GREAT BUY YOU HAVE TO LIKE IT TO DO IT I WILL TELL YOU THIS I LOST A LARGE SUM OF MONEY HELPING PEOPLE AT A RESTAURANT AND HAVE A BIG PROBLEM WITH DEALING WITH THAT AND FAMILY ‘I never saw my boys gradurate witch hurts and people tell me Gary since your out of the restaurant and away from them your a lot different person and one other thing I know this is not the best thing to be doing BUT I have bin know to drive a truck in the last 50 month and the guys say Gary your normal and like you were before I know that not wright but what am I to do


        Comment by Gary Waddell — July 1, 2015 @ 4:11 PM

      • can you talk to someone on a phone if given the number thanks you are a lot of help


        Comment by Gary Waddell — July 1, 2015 @ 4:24 PM

      • as you notice sometimes i hit the wrong keys thanks for all your help and maybe we can talk again Thanks again


        Comment by Gary — July 1, 2015 @ 4:35 PM

  88. Gary, the people at the EFA are saints. I can tell you first-hand from our own support group in Delaware County, PA.

    And no, I don’t give out my phone number. In fact, I barely pick it up. :-)

    I’m sorry you didn’t get to see your boys graduate. (Why?)

    And don’t worry about the misspelling. There for the grace of spell check, go I.


    Comment by Phylis Feiner Johnson — July 1, 2015 @ 6:44 PM

    • conemaugh memorial epilepsy unit even said when I was in their for 15 days we figured your problem out when they happen it is 30 min to 3 hours after you eat my body has never released any thing nothing and if it is seizures WHY HAS INDIANA REGIONAL MEDICAL NEVER TOLD THE STATE OR CONEMAUGH JUST ALLEGANY GENERAL AND THAT DOCTOR DID NOTHING IN 13 MINUTES NOT EVEN CHECK MY BLOOD PRESSURE NOTHING AND THEY TOLD ME when I called they had everything when I got their well we need your medical records .and I said then noway will I sign the form and rood and hound me after I left their no doctor kevin Kelly or Allegany will never see me again . Doctor Kelly answered to questions we ask what would you do if was you nephew said that different and then I said what would you do if it was your son that would be different also that’s when WE LEFT and the calls started from Tuesday to Friday I do not have to see doctor Kevin KELLY THEIR ARE OTHER DOCTORS IN THE USA


      Comment by Gary Waddell — July 2, 2015 @ 11:54 AM

      • Gary, these links may help:

        2015 Comprehensive List of GOOD Neurologists…Epileptologists… Neurosurgeons…and Pediatric Doctors


        2014-2015 Top Ranked Neurology and Neurosurgery Hospitals



        Comment by Phylis Feiner Johnson — July 2, 2015 @ 12:04 PM

      • Thanks for your help and have a great 4th of july you have bin helpful and we talk more. 3000mg of keppra a day 600mg of dillantion sinthroid and simvastati


        Comment by Gary Waddell — July 2, 2015 @ 12:25 PM

      • Have a super 4th yourself. I’ll be on the road from Friday 7/10 — Sunday 10/12 also.


        Comment by Phylis Feiner Johnson — July 2, 2015 @ 2:21 PM

      • thanks for everything and I can’t give up I made it this far thanks to doctor victor lan and his staff Kelly Kelly has bin there for me just like Chelsea from foundation they have went out of there way for me I want more than anything to be able to go haul steel again with MIKE I HAVE GOT TO DRIVE MIKE’S TRUCK AND THAT HURTS BIG TIME ITS A”PETERBILT” AND THAT RULES WITH ME I HAVE SOME OTHER PEOPLE TO THANK DETIVE BRAD SHEILDS AND CAREY AND A LOT MORE THE CALVERY CHURCH IN INDIANA PA AND REAL FRIEND SHERRY I CANT GIVE UP GOD HAS A PLAN OR I WOULD HAVE BEAT CANCER THANKS UNCLE CLYDE I WANT TO DRIVE TRUCK AGAIN AND HAVE FUN LIKE MIKE AND I DID THANKS EVERYONE I GET DEPRESSED ALOT LOVE YOU JORY AND JOSHUA


        Comment by GARY WADDELL — July 2, 2015 @ 4:43 PM

      • WHEN I GO BACK I WILL FIND SHERRY AND THATS A FACT we do talk and she’s a great girl


        Comment by Gary L Waddell — July 2, 2015 @ 4:57 PM

  89. Gary, I think I missed 2 of your posts…but I’m off to dinner (or to make my part of dinner (I’m a terrible cook).


    Hope you saved those posts. Because they’re not showing up in my “comments” administration page.



    Comment by Phylis Feiner Johnson — July 1, 2015 @ 8:34 PM

    • I am saving these now while in the conemaugh epilepsy unit and all of my seizures that I had did happen with a half to 3 hours after I ate when they were going to happen always now my uncle and mike will tell you the same thing along with other people many they say it seams like I was choking since my throat was cleared and 24 hours after that my gal blatter exploded on june 4 2014 I have no problems and the stress for were I was and the people I was helping was out of this world on top of not been paid and the fact that the more I did the more the girls expected of me at the restaurant and as far as sleep very little I helped these people for 3 years and 10 months when they went away I stayed in the back of the restaurant they went to Washington organ texas and gary run the restaurant people now sayGary your a total different person 100% since you left in December the people say I’m a happier person and fun to be around as far as family problems my first x-wife dropped my child support of 1125.00 amonth andthen reinstated it and I sat in jail for 6 mo that’s when I lost my boys to my second marrage now I was divorced from my 2nd wife but you would not know it and they fill I just up and left them because of no contact last year my daughter to my first wife got married and none of us were invited as far as my mother I lost my dad 25 years ago to Collin cancer and just was told a year in june of 2014 I had pancreatic cancer and fought it on may 18 2015 I am now cancer FREE I HAVE BIN TOLD BUY MANY DOCTORS GET YOUR TEETH PULLED AND FALSE TEETH AND NOT TO GIVE UP SOME DOCTORS SAY I AM NOT HAVING SEIZURES IN BOTH INDIANA REGIONAL AND CONEMAUGH Gary there is no sing of a seizure from the ct and mri or blood work done they have talk to me about stress and agree way to much


      Comment by Gary Waddell — July 2, 2015 @ 11:31 AM

      • What a horrible story, except the part of beating pancreatic cancer.

        Are you going to have your teeth worked on?

        Do you think you should see a therapist for stress?


        Comment by Phylis Feiner Johnson — July 2, 2015 @ 11:52 AM

  90. yes to the teeth and now that I am AWAY FROM THE RESTAURANT AND THE OWNERS people say Gary you are very different andas for Brittany she needs to know the truth my name is not on hey birth sirtifficket anywere and yes HER MOM GOT COUGHTIN ACT BY ME AND THEN AMONTH TO 5 WEEKS HER MOM SAYS I AM PREGANT THATS WHEN I LEFT


    Comment by Gary Waddell — July 2, 2015 @ 12:00 PM

    • Does Brittany know you’re her dad. Or did she grow up with someone else as her “dad”?


      Comment by Phylis Feiner Johnson — July 2, 2015 @ 2:12 PM

      • Brittany don’t know the truth her mom agreed to drop support if we did not keep her overnight on the weekends we had her and I signed the papers and as she got older wanted to know why I didn’t pay well tammy had it reinstated to 45000.00 and they picked me up


        Comment by Gary — July 2, 2015 @ 4:05 PM

  91. 1500 mg of keppra 2 times a day 300 mg of dillantion 2 times a day


    Comment by Gary Waddell — July 2, 2015 @ 12:29 PM

  92. had an eeg for 14 days 24 hours a day at conemaugh and a wada test done never heard anything on wada test doctor david gloss ask 3 times for it


    Comment by Gary — July 2, 2015 @ 4:00 PM

  93. Why?


    Comment by Phylis Feiner Johnson — July 3, 2015 @ 9:41 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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