Epilepsy Talk

Gratitude is the Attitude — Part 4

December 31, 2010
152 Comments

We have so much to be grateful for, especially me:

1. For your support, strength and caring…

2. Your smart, sensitive advice…

3. The compassion you share so generously…

4. Your kind, wise encouragement…

5. Your never-ending support, love and dedication…


Epilepsy Versus “Pseudo-Seizures”

December 27, 2010
38 Comments

Epilepsy is not a dirty word. Neither is pseudo-seizures. But they both coexist, side by side.

One of the most common complications is the misconception that people who suffer from pseudo-seizures are hypochondriacs, hysterics, or “faking it.” The name for the condition alone, “pseudo-seizures,” perpetuates that misunderstanding.


CT Scans: Reassuring or Risky?

November 30, 2010
5 Comments

Some studies have increased concern about radiation exposure and other problems from CT overuse. One recent study revealed that the risk of getting cancer from a single CT scan could be as high as 1 in 80!


The Sacred Disease. A Movie You Can Not Afford to Miss…

November 28, 2010
4 Comments

The Sacred Disease is a movie you can not afford to miss…

Motivated by lack of funding and awareness for epilepsy, this film covers the full spectrum of what it’s like to live with this neurological condition by following the lives of three individuals. The Sacred Disease displays an intimate portrayal of the complexities and daily difficulties faced by people with epilepsy.


It’s YOUR Turn!

November 28, 2010
173 Comments

Need advice? Want to vent? This is the place for you.

Got a frustration or fear? Question or complaint? We’re here.

Need a suggestion, explanation or another point of view? Just ask.

Or do you just want to talk? This is the place to do it. Comfortably, with others who care.


There IS Hope!

November 15, 2010
7 Comments

There IS Hope!

Here is an encouraging letter I received from the Department of Health & Human Services:

Thank you for your personal message regarding the training of law enforcement officers and other public safety personnel who respond to people experiencing epileptic seizures…


Epilepsy Lags in Research and Funding…Even as Stigma Abates

November 7, 2010
10 Comments

From http://www.boston.com, November 6, 2010

“While advances have been made in Parkinson’s and Alzheimer’s diseases, research into another neurological disease, epilepsy, has proceeded more slowly. And funding lags well behind.”


Gratitude is the Atitude — Part 3

November 5, 2010
177 Comments

I want to thank each and every one of you, from the bottom of my heart for:

Your positive attitude and energy…
Your never-ending faith and kindness…
Your wisdom and understanding…
Your generosity in sharing…
Your unmistakable love for one another…
This wonderful “community of caring” you have created…
That is my gratitude.


Ask Dr. Oz a Question and Make YOUR Case for EPILEPSY!

November 4, 2010
31 Comments

Dr. Oz is well-known and respected world-wide. He also has an open ear. What we need to do is all participate repeatedly in his “Ask Dr. Oz” http://www.doctoroz.com/ask

You can write about how epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.

In America, Epilepsy is as common as Breast Cancer, and takes as many lives.

Yet, epilepsy gets very little funding. If you take Autism, Parkinson’s, MS, Alzheimer’s per patient: They get $200-$400 per person in research. Epilepsy research gets about $35 per patient.


NEWS: Drug Companies Hire Troubled Doctors As Experts

October 20, 2010
14 Comments

An investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused of professional misconduct, were disciplined by state boards or lacked credentials as researchers or specialists.

Compiled from disclosures by seven companies, the database covers $257.8 million in payouts since 2009 for speaking, consulting and other duties. The companies include Lilly, Cephalon, AstraZeneca, GlaxoSmithKline, Johnson & Johnson, Merck and Pfizer.”


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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