Epilepsy Talk

IMPORTANT NEWS FROM THE AMERICAN ACADEMY OF NEUROLOGY OF NEUROLOGY | December 22, 2009

In the New York Times http://graphics8.nytimes.com/package…angenerics.pdf  http://www.nytimes.com/2009/12/19/health/19patient.html?emc=eta1
The American Academy of Neurology reports: “The AAN opposes generic substitution of anticonvulsant drugs for the treatment of epilepsy without the attending physician’s approval. The FDA has allowed for significant differences between name-brand and generic drugs. This variation can be highly problematic for patients with epilepsy. Even minor differences in the composition of generic and name-brand anticonvulsant drugs for the treatment of epilepsy can result in breakthrough seizures.”

Please read the article, it’s from those who know best and truly have OUR interests at heart!



4 Comments »

  1. Hello,
    I was not sure where to put this?
    You are always digging for “new” information so this seemed like an appropiate place.
    This is the first full page info. I have seen on this medication It was approved in the U.K. but as far as I know? it has not been in America “yet”
    I have been in this drug study for over a year now and I did not dig for information anymore after I started taking it.
    I am supposed to be taking another drug with this one pretty soon ,although I am apprehensive because every time I start a new drug of “any” kind I have a LOT of seizures .
    Frankly I am finally “tired” of having these things and those extra seizures worry me a little.
    But I thought you might like this page, although I know there is some other Info. out there AND this is from the company who made it (lol)this seems to be the most complete. Rick

    Comment by Rick — January 25, 2010 @ 11:47 pm

  2. Thanks lots Rick, but where is the page???

    Comment by Phylis Feiner Johnson — January 26, 2010 @ 3:48 am

  3. lol. lol oops.
    It is moments like these when I realize why my ssdi was approved in less than 90days when and I am only 47.
    Say again oops.!
    This link should work it is the main page for lacosimide/VIMPAT ,To be honest I have NOT read very much of this info. and I have taken this drug for over a year now.
    That does not even sound like me?
    I did not want all the information bouncing around with ALL the other side effects I had memorized from like 10 other drugs, SHEW my mind was a mess.
    Try this http://www.webmd.com/finding-seizure-control/default.htm

    Comment by Rick — January 26, 2010 @ 12:46 pm

  4. Thanks for the link Rick. I’m working on an article about AED’s…their uses…and their side effects. I’ll post it this week, as soon as I’m finished. (It’s in alphabetical order and I’m up to Topamax!)

    Comment by Phylis Feiner Johnson — January 26, 2010 @ 8:44 pm


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    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

    Important Resources

    • The Epilepsy Foundation of Eastern Pennsylvania. The EFEPA provides many important services, including a wonderful camp for kids with epilepsy…epilepsy seminars for first aid…awareness and education…and advocacy support.
    • The Epilepsy Foundation. Dedicated to improving how people with epilepsy are perceived, accepted and valued in society; and promoting research for a cure.