Epilepsy Talk

What was your first seizure like? | October 10, 2009

What was your first seizure like?

I can remember being in the shower, washing my very long hair.  It was one of those old-fashioned showers with a heavy plate glass door and a stainless steel  handle that you had to turn to get in and get out.  There were 4 water jets…three coming from the side wall…and a shower head in the ceiling.

All of a sudden, it felt like my blood was rushing out of my toes.  As all my energy drained out of me, I thought: “I’m going to drown.”  Then as I fought with the locked door handle to get out, I realized: “I’m going to die.”

With one last  push, I managed to turn the handle before I went down.  And thankfully, my head landed on the floor, outside of the shower.

I was terrified.


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2 Comments »

  1. I tell everyone that 2 dogs saved my life. I was a senior at Syracuse University and thanks to God, my roommate’s dogs heard me having a nocturnal seizure and walk her up. She thought they had to go outside, but they ran to my bedroom door and when Karen opened the door, I was on my bed having a tonic clonic seizure. I remember that when I come out of it, 2 EMS guys were in my room and those 2 dogs were at my face to make sure I was okay.

    Comment by Julie — November 4, 2009 @ 5:21 am

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  2. There are such things as canine companions for people with epilepsy. To give you an idea of what they’re like and what they do, try clicking on to this link: http://www.k94life.org/html/seizure_alert.htm

    Comment by Phylis Feiner Johnson — November 4, 2009 @ 6:13 am

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    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

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    • The Epilepsy Foundation of Eastern Pennsylvania. The EFEPA provides many important services, including a wonderful camp for kids with epilepsy…epilepsy seminars for first aid…awareness and education…and advocacy support.
    • The Epilepsy Foundation. Dedicated to improving how people with epilepsy are perceived, accepted and valued in society; and promoting research for a cure.