Epilepsy Talk

Preventing SUDEP

October 3, 2015
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Imagine a simple test to determine your risk for Sudden Unexplained Death in Epilepsy. An EKG, and if positive, a further genetic screening test to identify the family of genes that are associated with this new risk factor…

Embrace — A Beautiful Smart Watch — Designed to Save Lives

September 27, 2015

“The first medical-quality wearable to help measure your stress, epileptic seizures, activity and sleep.”

“It has been created to track your activity, stress and overall body balance, enabling people that live with epilepsy to get an alert when an unusual event happens, such as a convulsive seizure, warning them and their loved ones,” says Empatica, the watch’s creators.

New Neuroscience Reveals 4 Rituals That Will Make You Happy

September 23, 2015
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Here’s what brain research says will make you happy:

Ask “What am I grateful for?” No answers? Doesn’t matter. Just searching helps.

Label those negative emotions. Give it a name and your brain isn’t so bothered by it.

Decide. Go for “good enough” instead of “best decision ever made on Earth.”

Hugs, hugs, hugs. Don’t text — touch.

So what’s the dead simple way to start that upward spiral of happiness?

Just send someone a thank you email. If you feel awkward about it, you can send them this post to tell them why.

Gratitude is the Attitude

September 20, 2015

A wise woman once told me: “When you wake up in the morning — before you get out of bed — think of 5 (or 10!) things that you’re really grateful for.” (I think 10 is a bit of a stretch.)

That simple advice, changed my attitude. And my life.

Epileptic Synesthesia: What Is It?

September 13, 2015

Epileptic Synesthesia is pretty rare. It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure. Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement. An example is the sensation of flashing lights, a taste, a feeling of heat rising, and a high-pitched whine.

Here are three other (rather alarming) examples:

You’re a poet and you don’t know it…

September 6, 2015

Inside of you is something special waiting to break out.

Maybe you’re an artist…actor…architect…painter…poet…
philosopher…singer…or someone you just don’t know.

Autism — Who Has It?

August 29, 2015

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.

Heat and Seizures

August 24, 2015

Heat can trigger seizures for some people. For example, when you take a very hot shower. (I ended up having a seizure and bonked my head.)

An epileptologist explained that heat can sometimes trigger a seizure for some people because the hot water — as well as the warm air — is firing up the neurons in the brain which can cause a seizure.

There’s a hidden artist inside you!

August 15, 2015

Maybe you’re an artist…actor…architect…painter…poet…philosopher…singer…or someone you just don’t know.

Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.

Some types of epilepsy can spark inspiration, enhance creativity and bring out the latent artist in you.

It’s just waiting to be discovered…

In Tribute to Charlie Petersen

August 9, 2015

Charlie Peterson was a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later.

Since that time, he had risen to be an active advocate and to give back by helping all those in need.

He was my friend and a friend to the world. Starting a support group where there was none. Counseling others with epilepsy and those who had a loved one with epilepsy.

He was generous to a fault, giving back in turn for the “miracle” that had saved his life.

He was patient, kind, generous and giving. He was my #1 hero.

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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