Public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).
In total, and per patient, epilepsy research is significantly underfunded from three major sources: pharmaceutical companies, the government, and private foundations.
Drug-resistant epilepsy with uncontrolled severe seizures — despite state-of-the-art medical treatment — continues to be a major problem for up to 30% of patients with epilepsy. Although drug resistance may fluctuate in the course of treatment, for most patients, drug resistance seems to be continuous.
Until the late 1970s, legislations in the United States prevented people with epilepsy from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]
“Most of my life, I have been scared to talk about my epilepsy. Why? Because I was scared what others would think. Society does isolate, even discriminates against people with epilepsy.” — Louis S.
The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.
If you don’t know about these rights, please read on…
Dear Friend / Neighbor,
This isn’t a note asking for money. (Although feel free to donate if you want to!)
It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.
The following letter was written to local Legislators, Health & Human Service Agencies, The Office for Civil Rights and selected members of the President’s Cabinet…
Dear President Obama:
Re: Epilepsy Abuse and Civil Rights
It’s a situation often mentioned but rarely understood – the effects electrolytes have on seizures.
But a simple blood test can detect the danger of unbalanced electrolytes…
They say: “You are what you eat.” Not necessarily.
But here are some suggestions for sensible eating and supplementing your diet.
Of course everyone is different — with different needs — and on different meds.
But there are some rules that hold true…
They say that “laughter is the best medicine.”
Well, believe it or not, it could help your EEG results!
For example, scientists traced the brainwave activity of people responding to funny material. They were hooked up to an (EEG) and their brain activity was measured when they laughed…