Epilepsy Talk

Who is your personal hero?

February 7, 2010
7 Comments

For me, it was my Grandfather, who believed in me completely and thought that I could do anything I set out to do. At the age of 14, I said I wanted to be a writer. “Fine, he said. You’ll go to the Columbia School of Journalism.”


Childhood Abuse and Epilepsy

February 7, 2010
3 Comments

It looks like a seizure…it acts like a seizure…but is it epilepsy?

As recently as the 1980s, many doctors and scientists thought that by the time babies were born, the structure of their brains was already genetically determined. However, new research shows evidence of altered brain functioning as a result of early abuse and neglect. These changes are associated with adult anxiety, depression and personality disorders.


“Accelerating Research in the Epilepsies.”

February 6, 2010
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CURE announces a groundbreaking new focus on funding and collaboration in epilepsy research.


Possible Causes for Epilepsy and Seizures

February 5, 2010
5 Comments

While there are about 40 different kinds of epilepsy, there are probably even more types of seizure disorders — caused by a number of internal and external events. However, most doctors and publications agree upon a number of possible or even probable reasons for these seizures. Here are just a few of them…


SHARE THE LOVE!

February 2, 2010
3 Comments

This Valentine’s week, please ask your co-workers, friends and family to share the love by donating to the Epilepsy cause.


Affordable Meds at Costco!

February 1, 2010
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“I just got three months of Lamotragine for $30!”


ANTI EPILEPSY DRUGS AND THEIR SIDE-EFFECTS

January 30, 2010
20 Comments

For people with epilepsy, Anti Epilepsy Drugs (AEDS) are the most common method used to control seizures. Although there are 40 different types of epilepsy, the right medication or combination of medications can usually control seizures. However 30% of people are drug resistant, owing to either their gene factors or biological makeup.

The most important consideration in your treatment is identifying the exact type of epilepsy you have, therefore you may want to consult more than one doctor.

Medications prescribed will also depend on factors such as which side effects you can actually tolerate, other illnesses you may have, and how the drug should be taken.


Prison Abuse

January 25, 2010
4 Comments

This is a story of a staggering atrocity by both police officers and prison officials committed to a person with epilepsy upon arrest. His mother wrote to me here…


Preventing SUDEP?

January 23, 2010
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Imagine a simple test to determine your risk for Sudden Unexplained Death in Epilepsy. An EKG, and if positive, a further genetic screening test to identify the family of genes that are associated with this new risk factor.


Major Tylenol Product Recall

January 17, 2010
5 Comments

Important news about a recall of Tylenol products such as Tylenol, Motrin, Benadryl, St. Joseph Aspirin, Rolaids, and Simply Sleep.


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    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

    Important Resources

    • The Epilepsy Foundation of Eastern Pennsylvania. This is the Eastern Pennsylvania chapter of the Epilepsy Foundation of America. It provides many important services, including a wonderful camp for kids with epilepsy.
    • The Epilepsy Foundation. This is the national organization. Dedicated to improving how people with epilepsy are perceived, accepted and valued in society; and promoting research for a cure.